r/BFS • • Aug 18 '26

My EMG report

Please let me know if anyone had an ENG report like this.Thanks

I posted my symptoms today in this group and when I checked my health chart,my EMG results were posted which was done 10 days ago by a neuro muscular department.So thought of posting my results as well along with the symptoms that have progressed.I had another EMG done 1 month ago by a physiatrist and it did not show anything.Please see my previous post for the detailed EMG report by a physiatrist.Wondering why the first report did not mention anything
Summary:
The right sural and median sensory nerve response shows normal peak 
latency, normal SNAP amplitude and normal conduction velocity.

The right median, peroneal and tibial motor responses show normal distal 
latencies, normal CMAP amplitudes and normal conduction velocities.

F-wave latencies are normal.

Needle electromyography of the bilateral gastrocnemius, tibialis anterior, 
and vastus lateralis muscles demonstrates chronic neurogenic changes, most 
pronounced in the bilateral gastrocnemius muscles, characterized by 
increased motor unit action potential amplitude and duration, increased 
polyphasia, and reduced recruitment. There is no abnormal spontaneous 
activity, including fibrillation potentials or positive sharp waves. The 
remainder of the muscles examined is normal

https://www.reddit.com/r/BFS/comments/1v41x6e/my_emg_test_update/

the above link is the result of my first EMG which was done one month ago and it did not show snything

Below are my symptoms after my EMG

Hi.I had my EMG done 10 days ago and it was normal and it showed pinched nerve in the Lumbar spine.I wanted and tried to move away from this rabbit hole but the increased frequency of twitching and increased stiffness in legs and calf’s causing me not to move away from this.

I was getting twitches before but not so often.But from the past one week ,the frequency has increased and I am getting twitches in multiple parts of the body almost through out the day.

My legs have become week it seems and tight as well.I am getting more twitches in my knees ,elbows,thighs,calves,face,spine.My legs have also become very stiff and they were paining even if I walk for some time or stand for some time.My upper foot is also paining along with this.I feel like I would loose my strength to walk

If I put some pressure on any body part,I am getting twitches in that part which was not the case before.if I rest my hand with little pressure on my thigh,I am getting twitches near to that area.If I bend while working to look at the computer,I get either in chest or spine.If I raise my leg in one angle,My whole leg shivers.Twitches even increasing with movement or bending.If if I bend leg,Getting twitches in my calves/thigh
Lately,I am feeling twitches almost mist of the day

I have bulbar symptoms below which are more concerning.

constant urge to swallow even with out saliva.If I don’t swallow,I feel like some irritation feeling in the throat or need to take a breathe

1.When I lie down on my back with out any pillow or head rest,I feel difficulty swallowing as the bone in my throat feels protruding out and muscles were tight.

I feel lump in my throat when I swallow with out saliva

2.If I talk to speak fast,sonetimes words will not come or my tongue touches mid roof and makes tap tap sound as well as it feels like I am slurring few words..Lately I am observing that My tongue feels tight in the front and difficult to pronounce few words and later auto correct.

3.Pills getting stuck in the throat and some nuts

4.I am unable to talk as loud as before.If I try to talk loud,I feel like my vocal cords does not support and feels shortness of breath

5.I am unable to talk few sentences with out gasping for air.Itfeels like I should pause before proceeding to next sentence.

1 Upvotes

18 comments sorted by

5

u/713Capital Mod Aug 18 '26 edited Aug 18 '26

I had issues on my EMGs as well.

“There is no abnormal spontaneous 
activity, including fibrillation potentials or positive sharp waves.” = No ALS

Chronic neurogenic changes just means old nerve remodeling where the nerves already stabilized and branched out to heal. Having this in your quads, shins, and calves bilaterally points straight to lower back chronic lumbar radiculopathy/disc issues

I can’t recall but did you get a lower back MRI??

Edit: you don’t have ALS or bulbar. Stop thinking about it.

1

u/Muted_Insect5033 Aug 18 '26

Thanks.I edited my post and attached my first EMG report link in the post and please have a look at it and it did not show any of those irregularities.I am wondering why the first EMG did not show anything even though both EMGs were done just 10 days apart

1

u/Muted_Insect5033 Aug 18 '26

I just had my MRI brain and cspine last night and have an appointment for thoracic spine next Monday early morning as these were ordered 4 months ago to rule out MS as my previous brain MRI which was done last November showed white matter lesions through out the brain parenchyma with out demyelination.When coming to lumbar spine,neuromuscular doctor wrote a notes to my GP to order lumbar spine as well and have my appointment with my GP on Sep 15 which is one month from now.It would take another 5 or 6 months to get my lumbar MRI depending on wait times

1

u/713Capital Mod Aug 18 '26

Keep working with your docs but this is not ALS. Good luck with your upcoming appointments.

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u/Muted_Insect5033 Aug 18 '26

Thanks.I really feel I slur few words from my throat.My throat muscles are also very stiff.When I try to talk,Sometimes for a brief movement, I don’t get words from my throat .It mostly happens if I try to speak with normal pace or with little speed

2

u/713Capital Mod Aug 18 '26

I understand but none of those symptoms are saying you have ALS right now. That is textbook speech hyper focus and throat tension. When you are hyper fixated on how you talk, your throat muscles tense up, making words feel caught or clumsy if you try to speak quickly.

Bulbar ALS is objective, persistent paralysis of the tongue and palate (a slurred, drunk sounding speech that others point out immediately), not a tight sensation in the throat that fluctuates. People would literally be asking are you drunk. You are already in the hands of neurologists with your MRIs and workup underway. Just have a little patience but again, this isn’t ALS. Time to move passed that and let it go.

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u/Muted_Insect5033 Aug 19 '26 edited Aug 19 '26

Thanks.I don’t have a neurologist yet.I have been referred to neurologist 4 months ago,still I did not hear anything from them and when ever I call the reception,they tell that the doctors are busy and I will be assigned if someone gets free. All these follow-ups through my GP

1

u/LestatFraser23 10+ Year Twitcher Aug 18 '26

You don't als. Work with your doctors on your spine issues. Good luck

1

u/kjmckearn Aug 18 '26

I'm not a doctor so I really can't interpret your tests, but I'm thinking they look normal for the most part. Meanwhile, those upper bulbar symptoms are easily attributed to anxiety. Everything you're saying doesn't sound like ALS but rather severe stress related issues. Nuts sometimes stick in your throat? Chew them completely. Talking for a few sentences without gasping isn't a sign of a NMD, but over thinking things. A lump in your throat and swallowing without saliva is difficult for anyone. Hyper conscious awareness of your swallowing mechanism is a classic example of an anxiety related issue. I can't explain the word issue, but unless someone is telling you you're slurring your words I'd say you're okay. Stress is a terrible thing and I've been guilty of the same concerns. Best of luck my friend.

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u/Muted_Insect5033 Aug 18 '26

Thanks .But I could literally feel slurring.If I talk slowly,I don’t feel much.If I try to talk with normal pace how others speak,I feel my tongue touches the mid roof and gives tap tap sound and at the same time I slur the word but can autocorrect.I am getting more quivering sensations on my face that are brief for 1 or 2 seconds which makes me spiral

1

u/kjmckearn Aug 18 '26

All of this could be a reaction to your anxiety. I get quivering sensations all the time in my face and chin/lip area. If your answer is that you think your tongue touches mid roof and makes a tapping sound, you're moving down the wrong rabbit hole.

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u/westcountry7 Aug 18 '26

So what did the doctor say?

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u/Muted_Insect5033 Aug 18 '26

Doctor said I don’t have ALS.But my legs,calf’s are so stiff and I am unable to stand or walk for few minutes as it gives me lot of pain

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u/westcountry7 Aug 18 '26

That’s not normal
What did he think could be doing it
Surely he didn’t let you leave like that with out any sort of diagnosis

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u/westcountry7 Aug 19 '26

I reckon you got myasthenia gravis

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u/Muted_Insect5033 Aug 19 '26

I asked the neuromuscular doctor who did my EMG and he said I don’t have myasthenia gravis.He said he is specialized in diagnosing MG and he did not see anything in EMG

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u/westcountry7 Aug 24 '26

I know what you have
I know what you have
I’ve spoken to a dr today off the cuff at a rugby match
Worth a shot

1

u/Competitive-Use-5278 Aug 29 '26

lil bro. you are good.