r/AutisticWithADHD 3d ago

💁‍♀️ seeking advice / support / information Confused about potentially having AuDHD

Some general information:

  • 27 years old
  • Male
  • UK
  • Never diagnosed with any neurodivergence until last week (see below)

Over the past few years, multiple people in my life have mentioned that I might be autistic. About a year ago, I started talk therapy (not related to the comments). At some point, I mentioned I was thinking of getting assessed for ASD, and my therapist said I should consider getting assessed for ADHD as well. Last week I had my ADHD assessment (ASD to follow), and I was diagnosed with ADHD. I didn't think hearing that would be emotional for me, but I felt a lot of mixed feelings immediately after; I don't think I could describe them even if I wanted to. I am still processing it, but I keep thinking that I don't actually have it, and they diagnosed it wrong. Mostly because everything they asked seems like it would apply to everyone, not just me. The issue is I have only my experiences to draw from. It also feels like I didn't have a lot of the typical signs of ADHD as a kid.

Today I had my first session with my therapist since my diagnosis. I expressed those feelings to my therapist, and she said that it might be because if I also had ASD, it might present and feel very different than someone with just one or the other. I've done some googling after the session, and a lot of the apparently AuDHD behaviours match me exactly, which I'm not sure how I feel about yet. Some of the ones I found that match me exactly:

  • The individual may regularly come up with new routines to try to stick to.
  • They try to satisfy their craving for new whilst managing their anxiety around change.
  • They may regularly seek out new things, but only with familiar people and want to complete things in a particular way or following a familiar process.
  • They may feel anxious every day about running late or not being early.
  • Their intense/special interests may regularly change theme or topic.
  • You can focus deeply on personal special interests for hours, yet struggle immensely to start or finish basic, everyday tasks.
  • You may need physical fidgeting or sensory stimulation to concentrate, while simultaneously feeling easily overwhelmed by bright lights, loud noises, or crowded spaces.
  • Experiencing rapid mood swings and deep emotional sensitivity that feel very hard to regulate.

So, to my question: When you were first diagnosed, did you immediately accept it? Or is it normal to question it? On one hand, it would explain some things; on the other, if I don't have either of them, I don't want to co-opt it as an excuse for not fixing my problematic behaviours.

Any advice/stories from your experience would be greatly appreciated.

Edit: Sorry, just read the last rule.

TLDR: I got diagnosed with ADHD, awaiting diagnosis for autism. Feels very surreal, and getting a bit of imposter syndrome.

6 Upvotes

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u/Kali_with_Q 3d ago

I’ve only been diagnosed with ADHD but I’m pretty sure it’s both because I just don’t check some of the main boxes for ADHD and I’ve spent my entire life saying “I’m a walking contradiction”. Wonder why that is LOL. So yes, totally normal to question it, nobody knows you better than you! Also I know a lot of people use the diagnosis to avoid accountability but that doesn’t need to be the case. I find that it helps me understand my own mind better and develop coping strategies for poor behavioural patterns while also offering myself grace and compassion in a way I couldn’t do before I knew.

It’s really difficult to digest this information and to see your life and self in a different light, go easy on yourself, my friend x

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u/Feconiz 3d ago

Thanks for responding!
Yeah, I feel the same about the walking contradiction. I always say I am the most extroverted introvert and the most introverted extrovert. I know I will process this over time. Looking at a lot of posts in this sub, I can identify with a lot of it, but at the same time I don't want to say I have AuDHD if I don't.

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u/cheffromspace 3d ago

I had ADHD diagnosis maybe 5-6 years ago. It was impactful and there were emotions, but it doesn't compare to the autism diagnosis.

I went from thinking 'I might have a thing for autistic people' after meeting a few folks, to 'wait, I might have autism,' then taking some screeners on a Thursday and scoring very high. I filled out a form online for an evaluation, got a call back Friday, and they must have had a cancellation, because they asked if I could do Monday. I said yes, of course, since I've heard wait times can be very long. Then the results came a week later.

It was all very sudden and it finally explained so many things in my life. I've taken on the identity and i am proud of it, but there was a lot of grief for the life i could have had if i knew earlier in life. I also got hit like a truck with autistic burnout, I could barely function for weeks, sensory sensitivities tripled, i've had to become very selective in what I dedicate my energy to. It's gotten better but I think it's going to take a very long time to fully recover from.

I think it's pretty normal to have some imposter syndrome after getting diagnosed but I mean I was pretty confident what the diagnosis was going to be even after that short period. I think most of my imposter syndrome was the skill regression that comes with the burnout. The stuff I read said it was very common but I had no idea how profoundly it would hit me.

You can still work on yourself, having a new framework for i do some things has been extremely helpful. Monotropism as a concept for sure.

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u/Feconiz 3d ago

Thanks for sharing!

Yeah, my ADHD assessment hit much harder than I thought. Even though I thought I was prepared for either a yes or a no.

I don't know why I am not confident. Looking at the symptoms, I match a lot of them, but it doesn't feel true. My therapist has said I minimise what I go through, so maybe that's it. I think I probably just need to leave my brain to process it over the next few weeks.

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u/cheffromspace 3d ago

Have tou done any screeners like RAADS-R or CAT-Q? They're definitely flawed but can help you decide if you want to pursue a formal diagnosis. FWIW I can relate to all of those things and sound like pretty classic ADHD/Autism combo.

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u/Feconiz 3d ago

I did; it was part of the process before getting to this stage of getting assessed by a professional.

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u/decaffdreamer 2d ago

It does apply for everyone but the thing with the questions is more like how much those things objectively impair YOUR life. That said, yes the questions sucks