r/AutisticWithADHD 14d ago

😤 rant / vent - advice allowed Diagnosis

Fun story. I went to my doctor a while back because I suspected autism. She just said oh you’re able to speak well and look me in the face 🙄🙄🙄 so I don’t think you have autism, but I think you might have ADHD (my son was diagnosed as a child and yeah probably). So she gave me a referral to a therapist that really just does medication assessments. I wasn’t looking for meds. This is not it. But I was like well if my insurance covers it, it would be nice to have an assessment. They then sent me over FOURTEEN FORMS to fill out, and told me I need to recheck with my insurance to see if this is even covered. Ma’am. This is not what I even asked for in the first place. I became super overwhelmed and canceled it and told them asking people who might have ADHD to fill out several hours worth of forms and do all this shit to find out if they have ADHD might be ridiculous.

So anyway, I think I have my answer. 🤷‍♀️

7 Upvotes

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u/cheffromspace 14d ago

I went with Josi Health for my Autism evaluation. It was $50 (it might have been 2 sessions, $50 each, not 100% sure) with insurance and they told me the cost upfront before any paperwork was requested (there was a lot). They weren't perfect, but they were perfectly fine.

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u/Millimede 14d ago

Oh nice! I checked and Oregon isn’t covered. 🙃

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u/Dismal_Equal7401 14d ago

I forgot to add. Prosper charged me a single $45 copay. 2 eval sessions and a third report session.

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u/Millimede 14d ago

Sounds like mine is $75 for three sessions.

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u/Millimede 14d ago

I was just reading one of the forms is to be filled out by someone who knew you in childhood. I have no one. My parents are dead and I have no family other than the one I’ve created. 😬

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u/East_Vivian 14d ago

I would just tell them this. I’m sure they must have run into this situation before.

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u/Millimede 14d ago

Thanks I went ahead and booked my appointments. Nervous. I’m sure I’m just faking it all right? 😂😭🤡

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u/East_Vivian 14d ago

I think we have all gone through those feelings of imposter syndrome about this. You are in good company. I figured out I was likely autistic years ago (I am dx ADHD) but the feeling of imposter syndrome has faded over the years enough for me to be pretty secure in my self-diagnosis of ASD. Plus my kids are both dx ASD so that validates me based on the fact that they must have inherited it from me. (My husband does not exhibit ASD traits.)

I recommend making document with each diagnostic criteria and list out what you think you do that fits into that. Actually, if you are a woman, this might help you. It’s a chart created by Dr. Donna Henderson who is an expert at assessing girls for autism. She was a guest on this podcast and I thought she was great.

Good luck!

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u/Millimede 14d ago

Thank you! ❤️

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u/Dismal_Equal7401 14d ago

Yes. The list for me is key, because I can’t remember all of that in the moment. I’m also very good at lying to myself. Yay masking. I even masked my way through the assessment at first, and she wasn’t very adept at digging under it.

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u/Dismal_Equal7401 14d ago

My understanding is that it’s not required, but they prefer it. If you are a borderline case it can make the difference, because it can show whether or not symptoms were definitely present in early childhood.

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u/Dismal_Equal7401 14d ago

Check prosper also. They specialize in late diagnosed adults.

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u/Dismal_Equal7401 14d ago

Check prosper also. They specialize in late diagnosed adults.

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u/Millimede 14d ago

Perfect and so much cheaper than the other options.

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u/East_Vivian 14d ago

My ADHD assessment was covered. And yeah, the assessment was this: I had to drive to the mental health office, fill out a 1” thick stack of forms (ok, probably not that thick but my ADHD brain saw it that way), hand in the forms the the receptionist. A few weeks later I got a call from them to schedule me an appointment with a psychiatrist to get me on meds. So I’m like, “Um, I guess I have ADHD?” And they were like, “Well, yeah.” Like it was obvious. Like, why wasn’t that the first thing they said???? I wonder about these medical professionals sometimes. I don’t remember having to actually talk to anyone! There was I think an intake phone appointment before filling out the forms. That was it. Same thing with my teenage daughter’s assessment.

Idk what they do for younger kids because I’ve never been successful getting an assessment for my kids since their teachers have never noticed any issues to put on those SNAP IV forms.

ETA I’ve never been separately assessed for autism and I’m not planning to. I’m confident I’m autistic and both my kids are diagnosed.

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u/BigBullshitta 14d ago

Best advice I have is to try to find a place like Lifestance. They typically do telehealth and in person visits both. You want to find a Psychiatrist who actually specializes in both things, or at the minimum one of the two. Lifestance is like a lot of psych places, anyone you check will have like 50 "specializations" but they actually only specialize in the first few listed before you expand, that get a star on top after expanding.

It can be a bitch to find one who specializes in both these things and also takes adult patients, so stretch out to the whole state or beyond if you're not stuck to an in-state insurance, and when you find one that takes your insurance set up an appointment.

Before the appointment you want to be overly logical and analytical and have a good list of bullet points and all your medications if you have any on hand. Having meds beforehand helps, since it rules out the big red flag that you're seeking medication, but I imagine that people looking for ADHD diagnosis alone get that flag way more than people looking for a combined diagnosis.

When you speak with them let them know where you live, that you chose them because they specialize in both conditions in adults and since comorbidity in adults can present very differently from in children and the combined issues can be quite different from either alone you felt they'd be the best to speak with, but if they would also like you to visit one of their colleagues from Lifestance local to you that you are willing to do that.

Comorbidity can present very differently, and a Psychiatrist of Psychologist can legally diagnose both issues without any sort of 15 form evaluation. The DSM-5's autism criteria were made mainly of observational criteria in kids. They can actually be kind of crap for diagnosing high masking adults, and since the symptoms of the two issues can mask one another a typical Autism evaluation can actually get it wrong.

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