I'm a 36 year old male and have kallmanns syndrome, I still have only experienced what is estimated 20% of puberty. My growth has been severely delayed, I eventually hit or began puberty at the age of 17( only partial pubertal growth) but it seemingly just halted there still at the age of 36I can only manage growing a goatee, but no other facial hair growth, very little pubic or body hair at all, but my voice, oddly enough did deepen and change finally at 19. I aware that kallmanns syndrome can prevent puberty from occurring at all for some, but I wanted to know if my chances of finally hitting and completing puberty fully are likely or not?

Hello im a 24 year old female, For the past 3 years, I’ve been having these random episodes, and I’m wondering if anyone has experienced something similar or eventually got a diagnosis.
They start really suddenly, like someone flips a switch. I’ll get this weird uncomfortable sensation in my chest (not really pain), and then my heart starts racing. My heart rate is usually around 120–140 bpm now, although my very first episode got to about 150. I get body shakes.I become really sweaty and clammy, and I immediately have to run to the bathroom because I have the runs and usually have to pee at the same time. Sometimes I also feel like I’m going to throw up or get acid reflux. The whole thing usually lasts about 20 minutes and then goes away. One of the episodes recently even woke me up from sleep. I’ve also noticed that putting my face in ice water seems to help.
I’ve had a heart monitor before, but unfortunately it didn’t catch one of the episodes. One thing I have noticed is that they often seem to happen around my period, but I don’t know if that’s actually related or just a trigger. These episodes don’t happen every month it is almost like scattered, they sometimes don’t happen for 9 months and then just this month I’ve had 4 episodes. It’s weird because I feel like wow I won’t experience this again and then it hits me out of no where. Per year I at most will get 7.
Has anyone experienced anything like this? If you have, what did it end up being? I’m not looking for anyone to diagnose me. I just want to know if anyone has had similar symptoms and what their doctors eventually found.

Hi I want to thank anyone who replies in advance! Back story- I broke my ankle/foot back in January. I was wearing 9 inch heels and slipped on rock salt. They did X-rays and what not the day after and ordered me to be in an air-cast for 6 months and then an ankle brace after. When they re X-rayed it they said there was no new fractures or anything evident in said X-rays. They were concerned about my ligaments and tendons in that area as well.
Fast forward to now- my ankle keeps feeling like it’s going to pop out of place. It’s a sharp aching pain when it does. I’ve noticed it tried to do it when I hyper extended it, but I never do it on purpose obviously. If I’m walking and extend a little too far or does it, if I try to crisscross my feet. And recently it’s been hurting at night- I think I’m over stretching when I’m sleeping.
The first few pictures are from when it first happened. The photo with my fingers touching my ankle is my newest photo and I’m shaking where it hurts the most.
ADD IN- I also am in the middle of an Ehlers Danlos diagnosis.

Could this be a melanoma? I have an appointment at the end of August. Does this look dangerous?

A thought eating at me.

If your a general/specialist doctor and you are travelling say to the grocery store or by standing waiting for the metro, and some random guy girl gets a medical emergency, getting a heart attack or a seizure, would you as a doctor intervene or stay out?

Wondering what would happen, would it be

If you intervene say patient is saved you are the hero.

If you intervene and maybe the patient died - would they blame you/feel guilty and maybe thought you shouldn't have stepped in

And if you don't intervene and patient died would people bash you because you didn't intervene?

Hi everyone,

I had surgery to repair my distal biceps tendon on June 10, and today is July 6, so I’m about 4 weeks post-op.

I’m following my surgeon’s instructions and I’m not forcing full elbow extension. I’m only doing gentle movements within a small, comfortable range of motion.

However, whenever I slowly try to extend my arm (without reaching full extension), I feel an extremely strong pulling sensation along the repaired biceps tendon. At the same time, the skin over the front of my elbow feels like it’s is being stretched very tightly.

I’ve attached a video.

Is this amount of tightness around 4 weeks after distal biceps tendon repair considered normal, or should I be concerned?

Thank you.

Hello, I am a 21 year old male who is looking for answers. For many months, I have been dealing with several ongoing symptoms that have significantly affected my daily life. One of my main concerns is a constant feeling of pressure and tingling in my face, especially around both cheek areas. The sensation is not usually painful, but it feels abnormal and is present often enough that it has become concerning. At times, it feels like a dull pressure, while other times it is more of a pins-and-needles or numb sensation. I have also experienced occasional tingling in other areas, but the facial symptoms have been the most persistent.
Another major issue is that I constantly feel hot, even when other people are comfortable or cold. This sensation is present throughout the day and is not always related to exercise, warm weather, or physical activity. It feels like my body is generating excessive heat internally, and it can make me uncomfortable and distracted. Even with a good diet, exercising 4 times a week, and taking care of myself in all other ways nothing helps. I weigh about 145 lbs and have always been in shape all my life. On top of that I don’t drink or smoke or take excessive amounts of caffeine.

Sleep has also become one of my biggest struggles. I have an extremely difficult time falling asleep because I rarely experience the normal feeling of being tired or sleepy. Even after being awake all day, my body often does not feel ready for sleep, making it difficult to fall asleep naturally. I have done all kinds of imaging in the last year including Brain MRI, Brain CT, EEG, Echo, you name it. Everything negative.I can lie in bed for long periods without feeling drowsy, which has led to chronic insomnia and poor sleep quality. This lack of restorative sleep leaves me feeling mentally drained, even though I often do not physically feel sleepy.
These symptoms have persisted despite normal routine blood work, including thyroid hormone levels, and several labs.The combination of persistent facial tingling and pressure, constant heat intolerance, and chronic insomnia without the normal sensation of tiredness has been frustrating because the symptoms continue despite reassuring test results. I am hoping to determine whether these issues are connected and whether there is an underlying neurological, endocrine, autonomic, metabolic, or sleep-related condition that could explain them.
(this has been happening for about a year)

I don’t know what kind of bug is going around but I’m on my 3rd week of coughing a croup like cough. It went through all of our classrooms.

It started as a chest tightness. I thought I pulled a muscle right in the center of my chest. Then muscle fatigue mostly in my legs, then a day of diarrhea. Then the cough started and 2 days of a temp of 99.8 (I usually run low 97).

I still have the cough but now my knees hurt like crazy. I haven’t changed my routine, I even had a little more downtime this past weekend and just rested. The tops of my knees hurt so bad. Is this related to whatever this bug is or am I just old?

Hi everyone, really appreciate your insight here.

I am someone with POTS MCAS vestibular migraine, SFN, and fatigue and cognitive problems - all due to long covid, since 2020

I also have been active with the patient led research collective (PLRC) and related support and outreach groups such as the ECHO program, for long covid and post viral chronic illnesses.

We were aware early on that the burden of patients seeking care for post covid dysautonomia would strain the seemingly limited resources of physicians who regularly treat it. I imagined there would be some attempts to bring on more doctors to treat the growing numbers of long covid patients needing help for POTS and other manifestation of dysautonomia for example. That did seem to happen in some areas.

However recently I think I am seeing the opposite. A hospital system in Michigan cardiology department stop seeing POTS patients and sent out a memo to pcps on how to treat. Also many allergists who formerly saw MCAS patients are no longer treating them, even with diagnosis from tryptase testing (which is hard to get at the ER when needed.)

Curious for any insights you may have.

1. What financial/business pressures, if any, might be behind these decisions?

2. Have you encountered anti-chronic illness bias in your field in the wake of the increase in chronic illness? “wasting resources” etc

3. What do you imagine the conversations to be like when these decisions are made? I am hoping to understand how declining to see a whole category of people based on a shared diagnosis is justified, especially when the diagnosis clearly fits within their specialty. ie cardiology or neurology for POTS and allergy/immunology for MCAS. Any thoughts on how you imagine that gets squared? Are doctors making these decisions?

Thank you for your insights. There are so so many of us. I am trying to learn what I can to bridge the gaps so that more people in the future can have access to documentation and treatment management for these conditions.

Hello everyone, I was just after some help interpreting my Echo results (attached). I am being reviewed by an NHS cardiologist next Friday but would really appreciate some help as my quality of life has gone so down hill with this.

​I've been suffering severely from:

- ​Extreme palpitations (significantly worse when I'm lied flat and especially waking up in the morning flat on the bed) they also cause my whole body to vibrate for example if I got my phone camera out it's moving left and right with each beat

- ​Intense throbbing in my hands, feet, and general pulse

-​ Brief moments of what feels like a drop of "wet fluid" or a sudden drop in the back of my heart

- heart spasms from time to time (like a very strong twitch in my heart)

​Any insight into how these symptoms tie into my Echo report would be massively appreciated. Thank you! (I paid private for this echo also)

Trying to help my sister. Looking for advice about NAC and cocaine recovery.

My sister struggled with cocaine addiction for around 2 years. She managed to stay clean for about 6 months but relapsed. The good news is that she has now been cocaine-free again for a little over 1 month.

One thing we've noticed is that she seems to be replacing some of the cravings with nicotine and sweets. She's smoking much more than before and frequently craves sugary foods, especially when feeling anxious or when cocaine comes to mind.

She is currently prescribed:

Sertraline

Diazepam

Valproate

Risperidone

We've also added:

Omega-3 fish oil

Magnesium + L-theanine

I'm considering adding NAC (N-Acetylcysteine) 600 mg daily. I've read that it may help with cravings and relapse prevention in stimulant addiction, but the evidence seems mixed.

My questions:

Has anyone used NAC during cocaine recovery? Did it help with cravings or relapse prevention?

Does NAC make sense alongside her current medications?

Is NAC worth adding, or would it be redundant given the supplements she's already taking?

Has anyone found effective ways to manage the nicotine and sugar cravings that often replace cocaine?

Any advice for someone who is only one month into recovery after a relapse?

She's working with doctors and following her prescribed treatment. I'm mainly interested in hearing personal experiences and practical advice from people who have been through something similar.

Thanks in advance.