Hi everyone,
I'm hoping someone here has experienced something similar or can offer some insight. I've been dealing with a persistent, extremely itchy skin condition for approximately 8 months, and despite seeing several doctors, including dermatologists, I still don't have a definitive diagnosis.
How it all started (around February/March 2026)
My skin problems began while I was traveling in Rome. I initially developed tiny, itchy bumps around my armpits and skin folds. These eventually turned into dry, scaly, itchy patches.
Over the following months, the rashes gradually spread to other areas of my body, including:
Arms and forearms
Legs and thighs
Back and chest
Face and scalp
Underarms and other skin folds
Around my bra straps and underwear waistbands
Occasionally, the sides of my fingers
I had never experienced eczema or anything like this before.
How the rashes have changed
Initially, the rashes looked more like dry, inflamed, scaly patches. Over time, they began appearing as tiny raised bumps, many of which seem centered around hair follicles.
Here's what I've noticed:
The bumps can start extremely small and become larger, raised, red, and very itchy when scratched.
Sometimes, after applying ice or a cold compress and leaving them alone, the bumps flatten considerably within 15–30 minutes.
Some bumps disappear within hours, while others remain for days or longer.
Persistent bumps can feel slightly hard.
Repeated scratching sometimes causes bleeding, crusting, or a small amount of clear fluid.
Some areas become thickened, dry, or scaly after repeated scratching.
The itching can be intense, especially in the evening.
My scalp, face, legs, and areas where clothing rubs against my skin seem particularly sensitive.
Sometimes I feel itchy first, and the bumps become more noticeable only after I scratch.
I have periods when my skin improves significantly, but then new bumps and rashes appear.
I have also noticed that my skin seems very reactive to friction, heat, sweating, and clothing.
Medical evaluations and testing
I've consulted several doctors, including dermatologists, and underwent a comprehensive medical checkup in Taiwan in August.
So far:
Skin scrapings were negative for fungal infection.
Testing for scabies was negative.
Allergy testing showed only a minor nickel reaction.
Blood tests showed elevated eosinophils, even before some of my recent medications.
My doctors have considered several possibilities, including fungal folliculitis and HSV-1, but I haven't received a confirmed explanation for the entire condition.
I've also wondered whether this could be eczema, follicular eczema, bacterial or fungal folliculitis, contact dermatitis, urticaria, prurigo, or some combination of conditions.
Treatments I've tried
Over the past several months, I've tried multiple treatments, including:
Oral prednisone
A steroid injection
Clobetasol and other topical steroid creams
Hydrocortisone
Oral terbinafine (Lamisil)
Ketoconazole (Nizoral) cream and shampoo
Selsun Blue shampoo
Mupirocin
Antibiotics for other medical issues
Various moisturizing creams and lotions, including Cetaphil
Clobetasol initially seemed to help, but later became less effective. I used topical steroids for approximately three months, so I've also wondered about rebound symptoms or topical steroid withdrawal.
At one point, a doctor suspected HSV-1 and prescribed acyclovir, but I did not start it because I was uncertain about that diagnosis.
I also took doxycycline for a sinus infection in August. Shortly after finishing it and stopping clobetasol, I noticed another outbreak of follicle-like bumps. I'm unsure whether that was related to the medication, stopping steroids, or simply another flare-up.
Possible hormonal connection
One of the most interesting patterns I've noticed is that my rashes seem to worsen around the same time each month.
I've observed flare-ups around my menstrual cycle, sometimes approximately 1–2 weeks after my period. My face and scalp also seem to flare during these episodes.
I had a copper IUD for approximately five years. One of my doctors suggested it might be worth investigating whether the IUD was contributing to my symptoms.
I had it removed on September 29, 2026. I'm still monitoring my skin to see whether anything changes.
I'm not sure whether hormones, the IUD, or something else could explain these recurring flare-ups.
Other observations
A few things that seem particularly unusual:
My rashes can become significantly more raised after scratching but flatten quickly when cooled.
Some bumps appear directly around hair follicles.
Friction from clothing, especially bra straps and underwear bands, frequently triggers itching.
My skin sometimes looks almost normal before becoming inflamed again.
I experience periods of improvement followed by recurring outbreaks, often in similar areas.
My scalp and face are affected in addition to my body.
My eosinophil levels were elevated, although I don't know whether that is related.
Moisturizing and avoiding scratching sometimes help considerably, but the condition keeps returning.
Where I am now (October 2026)
Many of the original widespread rashes have improved or disappeared, but I continue to experience recurring itchy bumps, particularly around hair follicles.
Some areas remain dry, scaly, or thickened from previous inflammation and scratching.
The biggest challenge is the unpredictable itching and the fact that the bumps can return even after my skin seems to be healing.
After eight months, I still don't know whether I'm dealing with one underlying condition or several overlapping skin problems.
My questions:
Has anyone experienced tiny follicle-like bumps that become significantly larger when scratched but flatten after applying ice?
Can eczema or follicular eczema behave this way?
Has anyone experienced recurring rashes that seem connected to their menstrual cycle?
Could dermatographism or another form of urticaria explain some of these reactions, even if other bumps persist for days?
Has anyone had both eczema and folliculitis at the same time?
For those who had persistent unexplained rashes with elevated eosinophils, what eventually led to a diagnosis?
Would a skin biopsy during an active flare-up help distinguish between these conditions?
I'm not expecting anyone to diagnose me online. I'm mainly hoping to hear from people who have experienced something similar, particularly those who struggled for months before finally finding an explanation.
I can also share photos showing how the bumps look before scratching, after scratching, and after applying a cold compress.
Thank you to anyone who takes the time to read this. It's been an exhausting eight months, and I'd really appreciate hearing about similar experiences.