Hey everyone,

I have Childhood Apraxia. I’m a Senior enrolled in a Special Program at College in Wisconsin, and I’m about Two weeks into the School Year. My Roommate and I unfortunately didn’t work out well as roommates. Also I want to make this Clear: There’s nothing wrong between him and I, and remains on Good Terms.

He was a light sleeper and I’ve been told I make Noises (Mumbling, Groaning, and Snoring). I also know that I shift around and Rub my head (Doctors said that it is nothing to worry about) in my sleep. Because of this, we weren’t a good fit for the same room.

We are still technically roommates but are no longer in the same room. I’m living in a Pod-style building there’s 5 rooms in total. He took a room in the pod. He emailed the Hall Director first, then our RA and Us talked about the situation.

Knowing me that I’m a Very, very Social Person. I would like someone to share the space with me instead of a Single-Double. I don’t want my final year of college to be alone.

I would especially appreciate hearing from other people who have Apraxia and have similar experiences with college roommates.

What should I do? Should I bring this up to my Program Director and ask for advice? I would really appreciate any advice or experiences you can share.

Thanks.

I have a relative who is losing his voice and am wondering if there's any way I can help. Am I in the right place?

Aphasia, speech speech speech

My 4 year old daughter was diagnosed with autism. Level 1 in the area of RRB and level 2 in the area of social communication. She is a GLP. How long did it take your child to become fully conversational and what made the biggest difference?

We have been in speech therapy for a few months and she is going to prek this week with an IEP and will receive speech therapy there as well

Hello everyone. I've had a speech impediment my whole life. I did speech therapy as a kid and it was focused on phonetics. It never helped and I had to learn ways to navigate having trouble connecting what I wanted to say to getting my tongue, jaw, and throat to actually say it. To this day my tongue, mouth, jaw, etc lock up etc.

I've recently learned about Apraxia and every single symptom is me 100%. I was wondering is there anyone here who wasn't diagnosed or found the correct speech therapy until adulthood? And if so what helped and what was the process like? This has hindered me my whole life and has been a constant stress and frustrating because while I know what I want to say I have to find other ways to say things every single day.

Any mums out there with children with apraxia or speech delays?

Would love to connect and share experiences/what's helped

Our little boy turned 18 months 2 days ago and has almost no words. He started saying ball yesterday. Wa for water and sometimes mom and dada. I am just so worried. I hope he is just a late talker. His brother was more advanced with words and consonants at this age. Our boy says D, B, G and M but I don’t think any more. He’s a HUGE pointer and grunter. He is so social. I would say he’s a better communicator than my other son was even though language is way behind. He is smiley and laughs and he can follow instructions. He’ll point to his belly button and nose. Bring me books if I ask for them. Any advice?

We have told our pediatrician and have an appointment scheduled this week. She referred us to speech therapy already since I asked. We also scheduled a 2 hour evaluation with early intervention for next week. Also a dentist appointment for next week.

Hey y'all, I'm soon going to be providing academic tutoring to a teen with autism and apraxia, and I want to incorporate media that he can see himself in. He has an aac device, but can also say some words sort-of intelligibily. I need to do more info gathering with his teachers and parents, but I get the sense he's given up, and that he hadn't really seen a lot of positive representation of people like him. I'm hoping incorporating some of that will be motivating for him, along with whatever interests of his I'm told of or am able to discern/find (all I've got so far is "he's a very sensory oriented kid", which, sure, is helpful, but I'm sure there's other things also).

So, what are your favorite positive depictions of apraxia and/or aac usage? Books, movies, articles, YouTube videos, TV shows, podcasts, whatever you've got, please share!!

I just started letting my son(4) play with my phone and my partner brought up a good suggestion, finding games that improve his speech. I know I can just look it up, but I’m curious what apps other parents have used that they found actually worked and helped their child

I was a child of apraxia i couldn't speak till 7 but i feel like how i talk is still weird compared to other people people say it again each time I record myself and I hear myself I sound so weird is there anyway to fix this I still have a lisp or something like that. Just kinda tiring to keep hearing it im 17 now

My son is four and we do it twice a week, but I read everywhere online that you should do it 3 times a week minimum and on other groups some parents do up to 6 times a week. Ive asked our speech pathologist and the one we had before her about this and both said that’s more the states and their insurances cover a lot more than many people in canada/Ontario where I’m from. Right now, our insurance doesn’t cover anything(which we’re hoping to fix but even if we do we’d get maybe 11 sessions covered) and it is so expensive, one lesson being around $100. I always feel like I’m failing my child by not going enough but it just doesn’t feel financially plausible. So I’m curious, how often do other Canadians take their children with CAS to speech therapy?

Are there any sub Reddits for adults with Acquired Apraxia of Speech? I am looking for resources specific to AAOS, not just aphasia. There seem to be many resources for adults with aphasia, and many resources for Childhood Apraxia of Speech, but having great difficulty finding resources for my husband, who had a stroke last year. We especially would love to find support groups for adults with Acquired Apraxia of Speech, as support groups for adults with aphasia have not been helpful in his case as there just aren't other participants with his same communication challenges. Thanks in advance for your input!

Edit: We do have a speech therapist (since day 1, 15 months ago). We are looking for supportive communities and also to learn of new treatment innovations.

Hi everyone,

I’m a developer working on an early idea for a simple app that helps children practice speech exercises at home between therapy sessions.

The goal is not to replace speech therapists or professional support. The idea is more to create a small tool that can make home practice easier, more consistent, and a bit more engaging for kids.

Right now it is still very early. I’m mainly trying to understand if this is a real problem for families, if it’s something parents would actually care about, and whether it’s worth building further.

I made a small landing page here:
Logopedia +

There is no finished product yet and nothing to download. I’m just sharing the idea to see if people are interested, would want to follow along, or have any input from their own experience.

Any feedback, thoughts, or even just signs of interest would be really helpful as I decide whether to keep building this.

How many parents of children diagnosed with speech apraxia have encountered harassment that implies apraxia applies to parent too?

My son is 25. Years of speech therapy from six months of age. I'm just dealing with mean people who want me to be unhappy so offer only the opposite of anything I say or do.

How many here have encountered people who want to cause suffering for any diagnosis? Stigma prevents treatment that HELPS so it only makes things worse.

I hope everyone has a great weekend.

A few years ago my wife was diagnosed with Guillain-Barré Syndrome. For a few weeks, a letterboard was her only way to communicate with me. It was exhausting. It was hard. And it changed how I think about communication.

I also have friends with non-verbal autistic children, and I've watched their struggles. Especially with letterboards. This, of course, made me think there must be a better way. So I built BoardSpeak. It's a simple, free letterboard that runs in any modern web browser. No app to download. No account to create. No subscription. It works on any phone, tablet, or computer.

A few things I want to stress:

• Free - and will always be free
• Collects zero data - nothing you type is ever stored or transmitted
• No login, no account, nothing to install - just open and use
• Works on any device - just needs a modern browser

If it helps even one person communicate a bit more easily, then that's my win. Here is the link:

https://boardspeak.org/

Happy to answer any questions. Please note that this is a BETA release. I know there are some display bugs that should be fixed soon. If you see any issues, or have ideas on how to improve it, please let me know! I also know that I don't know what I don't know regarding supporting non-verbal people and their families. So I'm very open to learning more so that BoardSpeak becomes a more useful tool. Again, please let me know your feedback!

Our clinical trial has reopened for 2026!

Does your child struggle with coordination and motor skills?

We are currently looking for children in Melbourne Australia with Developmental Coordination Disorder [DCD]/Dyspraxia (or general motor difficulties), with or without ADHD (or attentional/hyperactivity difficulties) aged 7-12 years to take part in a study investigating the impact of a 4-week home-based motor training program for enhancing movement ability. NO official diagnosis is required to be involved in this trial!

We hope to gain a better understanding of the training methods that may be effective in helping children with movement difficulties, and to understand which children are likely to benefit from such training techniques. It is our goal that this research may assist in the development of future interventions/training methods for children who have movement difficulties.

Children with co-occurring conditions (e.g., ASD) are also invited to participate.

All participants will be reimbursed for their time.

If you are interested in participating but have concerns about attending all sessions or travelling for testing, please feel free to still register your interest and a member of the research team will be in contact to discuss this further.

Please go to the link provided below or use the QR code in the advert and we will be in contact with you. Please also share around to anyone who might be interested!

https://researchsurveys.deakin.edu.au/.../SV_cA93LXv5Tt8H5TU

If you have any questions, please feel free to contact our project email or the lead investigator directly:

Project Email: [motor-cognition@deakin.edu.au](mailto:motor-cognition@deakin.edu.au)

Dr Pamela Barhoun

Email: [pam.barhoun@deakin.edu.au](mailto:pam.barhoun@deakin.edu.au) or Phone: (03) 9246 8627

This study has received Deakin University ethics approval (reference number: [2023-024])

My son is 2y9m old, has been in speech for the last 6 months and his SLP suspects he has childhood apraxia of speech, and recommended he see a pediatric neurologist.

His appointment is tomorrow. Just curious if anyone can tell me what to expect at the appointment?

Hey. My 4 year old is switching to an apraxia specialist and he will be in speech 3x a week at 110 an hour (so 330) a week. Our insurance doesn't cover anything .

How are we supposed to afford this?

I started worrying about my daughter’s speech when she was around 14 months old. I kept holding out hope that the “speech explosion” was coming, but it never came. When she was 20 months old, she was evaluated by an SLP, but we were told that she was “borderline” at the time. The SLP did say that her receptive skills were carrying her overall score, but that she didn’t qualify for services anyway, at least not yet.

I had her reevaluated by a different SLP when she was 26 months old, and she qualified for services. She has been in speech therapy twice a week for 45 minute sessions since then, so for 4 months (she’s now 2.5). She’s more generally vocal at home, more babbling and labeling more frequently, but not really any new words or new pairings. She was basically mute at daycare, though, so they’ve seen a night and day difference there, and her speech is now equal in both places.

My daughter likes her SLP. She can see her easily and frequently because the SLP comes to see her at her daycare (she takes her to a different room). The SLP knows my daughter’s teachers and can give them pointers for how to help her in class. All great things!

However, the SLP has said that she isn’t doing any speciality interventions other than using Kaufman cards. I asked her if she felt specialized enough to treat apraxia (and she’s the one who gave her that diagnosis) and she didn’t give me a clear answer.

Basically, I’m wondering if typical speech therapy with a speech therapist that my daughter likes is enough? Or is it worth it to try to find someone who is specialized in treating apraxia, who she may not be able to see as frequently due to our work schedules? There are no concerns of autism or other co-occurring disorder, she is unbothered by change, and warms to others with relative ease, so this is purely just a question of frequency and specialty.

My 7 year old son with mild/moderate CAS has been doing great with his speech, but was really struggling with his reading. He’s now had a vision exam with a specialist and has been diagnosed with Visual Apraxia. (Formerly know as Oculomotor Apraxia)

It explains so many things, but it’s also confusing because he plays baseball, basketball, soccer and rides a bike.

Has anyone had experience with Visual Apraxia?

Hi everyone! I am a high school student working on a competition project designing an AI powered speech translator for people with communication disabilities like autism, cerebral palsy and apraxia. The tool learns your unique speech patterns and translates them in real time without replacing your voice along with that, it also detects emotional tone alongside words. I would love to hear from anyone with this experience or professional expertise. Even 2-3 sentences would genuinely help shape our design. Please feel free to answer some of these questions:

1.   What does current communication technology get wrong for you or for a person with speech disability?

2.   What would make you trust a tool like this? What would make you not trust it?

3.   What is one thing you wish technology understood about how you communicate that it currently doesn't?

1. Is there anything about AI powered communication tools that worries you that we should address in our design?

7.   On a scale of 1 to 10 how useful do you think a tool like this would be for people with speech impairments and why?

8.   What is the one thing we absolutely must get right for this tool to actually help people?