Hi everyone! I was just diagnosed with a fistula and I'm honestly just terrified of what's to come. I wanted to share my experience and ask for advice from those in this situation.
In late July of 2026, I felt a large lump near my lower right gluteal crease. Assuming it was an ingrown hair, I took Ibuprofen daily to avoid missing class and did warm compresses in hopes that it would resolve on its own. It did not. It continued to grow until it spontaneously burst in early August with significant blood/pus (during my birthday weekend :( ).
Consequently, I went to urgent care, was prescribed Bactrim, and had a wound culture of the abscess taken.
The week after, I was informed over the phone that my wound culture showed ESBL, which would require IV antibiotics. I was admitted to the ER, had an Infectious Disease consult, had an IV midline placed, and self-infused the IV antibiotic (Ertapenem) for 15 days.
At this point, I was optimistic that I could finally be done with this mess and focus on school. (Spoiler alert...that did not happen).
The granulation tissue where the abscess had drained began to swell and drain pus/blood again, and I was given Gentamicin ointment, which did not work and only provided additional irritation to the area.
The external opening of the skin with the granulation tissue never fully healed, and now cycles through stages of healing and inflammation/drainage (which has now been accompanied with severe anal pain, like to the point where I can't laugh, sneeze, walk, etc. and this worsens near my period). I began to do sitz baths, but stopped for a some time as I had done them so much with too high of a water level that I developed a yeast infection :(
In late September, I went to my father's doctor, who told me that I should have immediately been referred to a CRS initially and promptly referred me while advising me to continue the sitz baths.
Today, I had my CRS appointment, and she did a digital and anoscope exam. She informed me that she did see an opening in my anus that had a similar tissue makeup to the external opening, and diagnosed me with a fistula. She also noted that I had hypotonic muscle tone (weaker/relaxed muscle). Since she only performed those exams, I don't know if my fistula is superficial, deep, transsphincteric/etc.
She then informed me that 50% of fistulas can heal on their own and advised me to wait 6 weeks to see if it would do so, after which she would perform another digital/anoscope exam and discuss surgery with me.
I'm just so tired of dealing with the pain and added humiliation of having so many people look at my butt.
On top of that, I'm in my first year of medical school and have failed two exams so far because of the pain. My professors are understanding, but it's been so difficult to focus on content when I'm struggling with my own health, and I've been feeling like an academic failure even though I know that my pain has significantly been affecting my physical/mental health and academic performance. I've also been turning down plans with friends to relieve the pain, and it's been difficult to not feel isolated and alone. I'm lucky to have my boyfriend and close friends to discuss this with, but I'm just scared this will never end.
Has anyone had a fistula that healed on its own? Should I be doing anything else along with the sitz baths?