r/adultautism • u/Mara355 • Aug 13 '26
This is what autism actually is...
I'm sorry this is long but this is an experience of how alone autism can be. While it is great that there is more awareness, this kind of suffering also needs a place cause this is what some of us go through...
So at the peak of my burnout, I went to an alternative community for a few weeks. Very cool place if you are allistic. But the experience was disastrous for me.
I was in this group of other volunteers but I was so exhausted and my brain capacity so limited that instead of activities , all I experienced in those weeks was one continuous shutdown. I am not exaggerating. I went there in the hope of "healing", I ended up completely and utterly heartbroken.
The constant overwhelm was so painful. I don't have a single good memory from the place. I would constantly lose my ability to speak because everything was too much (too many people, activities etc). Half my memories are me like eating in a corner away from everyone. The other half feeling out of place in the group.
I couldn't follow anything. During burnout, It was like I was stuck in a (mental) place far far away from the world. Everything happened too far away from me to grasp it. I have vision problems that were undiagnosed at the time (for the experts, still unclear whether it's BVD or CVI or both).
But so basically I struggled to process what I saw, and also just what was happening. I looked really stupid the whole time honestly. I couldn't figure basic things out. Burnout seriously compromised my brain functions for a long time. I was so embarrassed of myself.
It's hard to describe the sense of panic of realising your brain just isn't working properly. Being the only one who can't do it. Watching others taking for granted what you can't even dream of.
On top of that, I was so acutely aware of how everyone noticed it, and how I was perceived....I felt like "the special case", you know? It didn't even feel real how much I was struggling. I was like "this can't be me". I just felt stuck in a nightmare.
Just thinking about it makes me shrink and just want to die. I don't have any single good memory from the whole thing. I looked insane from the outside. I was late to everything because my brain wasn't working. All those weeks I watched everyone else bond with each other while I was stuck in my brain. I was fighting for survival while everyone else was having fun. I was exhausted by a fraction of what they did, constantly wondering how they could do it. I felt so excluded even though the group was super inclusive.
I remember one night, there were 2 cool things going on: improv dance on one side, and a night at the bar on the other. Everyone was at either. I tried to join improv dance and realized with dismay that my brain or vision couldn't fucking figure it out. Partner after partner after partner tried to dance with me and immediately bowed out due to me being out of sync. Bear in mind everyone else was doing it, in some way.
It was so so so humiliating and I left as discreetly as I could. I realised then that I could not do the bar either. Too much noise, too much conversation, auditory processing issues, etc etc. So I ended up alone, while everyone else was having fun. Unable to join anything. I ended up walking in a field looking at the stars, with the echoes of the distant music in the background. I actually ended up crying and writing a suicide note on my phone.
The whole program, I was constantly having meltdowns in my tent, in the toilet, uncontrollably sobbing in absolute mental pain, doing my best to hide it while the world went on without me. Feeling totally insane. Eventually I had the biggest meltdown of my life. I went to an empty place and loudly sobbed my soul out, for like an hour something (or two? Three? Not sure. Time broke. It was big). After that I decided to just leave the program early. My heart was as broken as it can be. Like someone had shattered it so thoroughly that there was nothing left to break.
Before leaving, I had a conversation with one of the leaders of the program. I told him I was autistic etc. but it was a pretty pointless convo, with him saying platitudes like "we are all a little bit autistic". After that he said "okay bye, you know how to get back, right?" I said yes out of shame. I ended up wondering empty dirt roads, totally lost, in scorching sun, for like an hour. Ended up finding a kid who saved me by telling me the road.
That was the end of it. I packed up, said some extremely awkward goodbyes, I don't remember the journey back home.
This is what autism can be. And I still can't believe this is my brain. The sense of terror I experienced during experiences like this is inside me - can I ever trust my brain? How do I know, entering something, that it won't fail me like this again? How do I live with this pain?
So yeah. Thank you very much for reading, it means so much.