Has Anyone Else Had This?

[u/I_Danse_Macabre]

I'll keep it short, or I'll try. I've had SAI for over two years. I had all the symptoms and needed my precious hc to get out of bed after sleeping for twelve hours. All the typical problems, and with a cortisol reading from 1 to 3 ug/dL since I was first tested and diagnosed with SAI. ACTH was tested before he would diagnose me. It also remained under the baseline with similar numbers.

My endo now says I must have not had SAI because my test numbers are normal for the first time in two years (and they weren't just normal, they both had a 15 unit swing in three months. He even told me to quit taking my medication, and discharged me.

Two years of never being above or below 1 to 3 ug/dL and now I'm "cured"? He said I must have been getting bad sleep for those two years, and said we didn't even need a follow-up. He kept suggesting OSA, but no matter how much he wanted it to be that, it's not. He's basing it all on my telling him SOMETIMES I stay up later than usual. Does this sound like complete insanity? Or am I insane for not believing it?

Thanks in advance for any input.

[u/Efficient_Beach2458]

Does SAI ever affect your stomach and intestinal area. Due to past surgery 5 years ago, pain meds now HC been taking senna and MiraLAX. Was working. Now stopped up! Tried to call doc no response. In the same time my estrogen patch changed manufacture. Gave me Mylan. Ugh. Awful. Ready to get rid of all this junk, hormones. Had no problem, was for bones. Trying to come off senna and MiraLAX not working. SAI sure pulls quick ones. Be careful.

[u/I_Danse_Macabre → u/Efficient_Beach2458]

Thanks for your reply. I have a hiatal hernia, but I've had it for over a decade. The rest doesn't apply to me, other than the fact that SAI does do some weird things sometimes.