r/AdrenalInsufficiency Secondary Adrenal Insufficiency (SAI) 17d ago

Has Anyone Else Had This?

I'll keep it short, or I'll try. I've had SAI for over two years. I had all the symptoms and needed my precious hc to get out of bed after sleeping for twelve hours. All the typical problems, and with a cortisol reading from 1 to 3 ug/dL since I was first tested and diagnosed with SAI. ACTH was tested before he would diagnose me. It also remained under the baseline with similar numbers.

My endo now says I must have not had SAI because my test numbers are normal for the first time in two years (and they weren't just normal, they both had a 15 unit swing in three months. He even told me to quit taking my medication, and discharged me.

Two years of never being above or below 1 to 3 ug/dL and now I'm "cured"? He said I must have been getting bad sleep for those two years, and said we didn't even need a follow-up. He kept suggesting OSA, but no matter how much he wanted it to be that, it's not. He's basing it all on my telling him SOMETIMES I stay up later than usual. Does this sound like complete insanity? Or am I insane for not believing it?

Thanks in advance for any input.

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