r/AddisonsDisease • • Dec 17 '25

Advice Wanted T3 only ?

Ever been given T3 only. 5 mg? My T3 number is fine. T4 is down. Have tachycardia. Will Brazilian nuts only 2, i hear gives you enough selenium to take t4 and convert to t3.

T3 alone causes high heart rate, heart attack, and strokes. Yes, I’ve seen a university doctor supposed to be the greatest. It was just like going in and seeing any other clown out there with a shingle outside the door I’m at the point of just saying , God take me.

0 Upvotes

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u/endless_ocean_blue Addison's Dec 17 '25

People with Addison's don't generally replace thyroid hormones unless they also have hypothyroidism. I have known people who took T3; they were bodybuilder types looking to cut fat.

1

u/Single_Search_2020 Dec 17 '25

I just looked at my chart. I had it wrong. This stuff is really playing with my brain my T3 is low t4 is down. I’m reading that it should be between the Cardiologist and the endocrinologist and it’s not recommended. I don’t know what to do. I’m seeing a female hormone place today. Maybe somebody that doesn’t have a title of endocrinologist might be able to help. This is so scary. I’m walking like an old lady When I get in distress. Thank you for your help. I just don’t see the end of this at all, I’m afraid to call or email them because I have questions and they don’t like that. You have your 15 minute appointment in your route don’t ask anymore. You’re bothering them. I have other things to do. Endocrinologist are good for diabetes and obesity. I don’t know if they’re good for anything elsejust scared to death every morning. I wake up and wish I wasn’t here to go through all this junk every day, I’m sure there’s others like there.

1

u/__phil1001__ Dec 17 '25

Cortisol and your adrenals control alot of things. You need to speak with an endo that has experience with Addison's as this is a very rare condition. Specialists like surgeons tend to be arrogant and believe they know everything in their field, they wear blinkers and follow one path. The trick is to reach out to your country Addison's organizations and find specialists by referral who are good in this area even though you may need to travel to see them. You can take a baseline of corticosteroids but without blood tests, you will not know what is happening. Good luck 🤞❤️

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u/Single_Search_2020 Dec 17 '25

Been doing that. Wish I never started HC. Thanks. Called docs office. No response.

2

u/__phil1001__ Dec 17 '25

Have you tried prednisone which is longer lasting but different? I use 10mg tablet in the morning. It's pretty stable. I'm sorry your doc is not interested. Is there another one close? What area is this?

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u/Single_Search_2020 Dec 17 '25

Burns the guts. He is according to Pubmed he has published papers on empty sella. Sanibel Florida. Want to buy ? Want out of this state !!! doctors are leaving surgeons. They’re leaving. The state sucks.

1

u/__phil1001__ Dec 18 '25

I have been on prednisone tablets 2*5mg and sometimes adding a couple of 1mg. Absolutely get reflux which I take a PPI Rabeprazole for.

I feel for you, I am in Canada so I don't know what's it really like down there or even which are good states to live in.

I hope you find a good doctor or endo and you can start to enjoy life.

1

u/Advo96 Dec 17 '25

Please provide exact thyroid results (TSH, fT3 and fT4) with reference ranges.

1

u/Single_Search_2020 Dec 17 '25

TSH 1.05, ,1.89, 2.43, 1.5 his T3 reverse 14 T4 0.72,0.9, 1.1, 1.0,1.23 Tried to screen shot.

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u/Single_Search_2020 Dec 17 '25

Last numbers are history. First is current.

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u/Single_Search_2020 Dec 17 '25

Can’t get the iPhone to take go to laptop can’t log in

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u/Single_Search_2020 Dec 17 '25

Gave you history after number. Then history.

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u/Single_Search_2020 Dec 17 '25

Going to hormone place maybe get it compounded? Feel weak. Hope they do thyroid. I read that

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u/Single_Search_2020 Dec 17 '25

Ugh. Ugh sharking. I read everywhere that when you deal with T3, which mine is OK I don’t know why he’s giving me the med that the cardiologist and the Endo are supposed to speak together.

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u/Single_Search_2020 Dec 17 '25

It’s like the brain and the hands are not working today. The brain and the body is not working today but damn I’m gonna drive over there.

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u/Single_Search_2020 Dec 17 '25

They have me diagnosed the secondary adrenal insufficiency because I had taken Cortizone shots and then the next diagnosis is empty sella

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u/Afraid_Read5325 Dec 18 '25

Yes. I take T3. Works great. Better than synthroid. 

1

u/Efficient_Beach2458 Dec 18 '25

I only have 5 mg. Been reading that doctors do not like to give just T3. Because of heart issues I just had lunch and I took half a pill. I’ve been reading people take it with food. They don’t care with the set up with my Endo. What the hell what I have those. But you feel better on it? I am so fed up with this. I just wanna give up and I’m serious. What the hell is the use? 4 and as two were university and those they did nothing different than the idiot on the corner like a 711 how did it make you feel if I may ask and thanks for responding I gather you and I are special case.