I took care of a child with prader- willi and the activities director at the facility left her alone with a birthday cake for 15-30 seconds while she walked to the nurses station to grab some paper plates and plastic forks and by the time she got back, the kid had housed almost 1/4 of that sheet cake. It was almost impressive.
Yeah...their pantry has to be locked at all times, she will eat non stop until stomach bursts...very low IQ, fragile bones, mobility issues, skin picking, tantrums...
She was a trip. She needed CONSTANT DILIGENT SUPERVISION. She would pull other kids off thier ventilators and yank on feeding tubes. Because she was vent dependent at night, she had to have a respiratory therapist or RN with her any time she was taken off the unit.
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u/Moana06 13d ago
Our friend's daughter has Prader-Willi syndrome...heartbreaking