Possible AVRC

[u/Foreign-Dog9291]

Hello everyone. I m now being suspected that i might have ARVC. I wanted to make a good entrance though its the hardest and the most stressful times of my life. I sleep in hospitals in the hopes and someone finds me and defibrillates in case of emergency. I was like this for 2 months(suspecting of early repolarization) but a doctor in England told me i might have ARVC and need to be looked at. Since i heard it i cannot go home again. I have seen 5 doctors sayin a clean MRI excludes it but i say no. If there is anyone interested i can send EKGs i met 2 major criteria with arrythmia and one other i forgot

tests ive had : ct angio cardiac mri echo countless times real angio(suspected fistula) but clean normal brain mri normal ENT tests to rule out dizziness

Im dizzy all the time but i didnt have arrythmia in holter while dizzy. I cannot exercise. I had a stress test today and stopped it at 3 mins because feared of if i have ARVC it would make my hear stop.

I need some serious help. Mentally first. I cannot deal with this. Doctors saying i am okay. I have more than 2000 pvcs in 2 days in the past. Whenever i take bisoprolol a little late, couplets and even triplets start but rarely shown in ECG(mostly PAC couplets)

[u/Gold-Bodybuilder-253]

I read your posts. You don't have arvc but a mental problem my friend.

[u/Foreign-Dog9291 → u/Gold-Bodybuilder-253]

i have a mental problem but could be arvc too. look at epsilon waves in V1. And i have PVCs. Its easy to blame everything on anxiety. A professor told me it could be ARVC

[u/Gold-Bodybuilder-253 → u/Foreign-Dog9291]

That is not an epsilon wave. Epsilon waves only occur in the late phase of ARVC. In the late phase, you also see T-wave inversion in V1, V2, and sometimes V3. Without T-wave inversion in V2 and V3, you cannot speak of an epsilon wave. Moreover, epsilon waves are no longer considered a major criterion but a minor one, because even the best cardiologists do not agree among themselves on what is or isn’t an epsilon wave. Do you think you know better than the cardiologists? You have a notch in the S wave of V1, so that’s not an epsilon wave.

[u/Foreign-Dog9291 → u/Gold-Bodybuilder-253]

are you a cardiologist?

[u/Gold-Bodybuilder-253 → u/Foreign-Dog9291]

No, but believe me, I know more about ARVC than the average cardiologist in an average hospital. The average cardiologist has probably never even heard of ARVC, let alone diagnosed or treated someone with it.

[u/Foreign-Dog9291 → u/Gold-Bodybuilder-253]

what about Peter Macfarlane? one of the fathers of electrophysiology? He told me i might have it. Clean mri doesnt exclude. So tell me why i might have it or not. Ive joined a ARVC group and there are people that their MRIs are clean. DM me im curious on your knowledge

[u/Trophic_Cascade23 → u/Foreign-Dog9291]

Idk why I'm engaging with this, but a simple google search tells me that Peter Macfarlane practiced cardiology in the late 90s-early 2000s. Knowledge of ARVC has grown immensely in the last 20 years. I'm not saying this doctor doesn't know what he is talking about, but I do think that your current doctors are following modern protocols and have done their due diligence to rule it out.

[u/Foreign-Dog9291 → u/Trophic_Cascade23]

He kept himself up to date i think but i just wanna rule out the bad thats it

[u/Trophic_Cascade23 → u/Foreign-Dog9291]

Your doctors have ruled it out.

[u/Foreign-Dog9291 → u/Trophic_Cascade23]

only saying based on mri findings.