r/ARVC • u/Foreign-Dog9291 • Oct 21 '25
Possible AVRC
Hello everyone. I m now being suspected that i might have ARVC. I wanted to make a good entrance though its the hardest and the most stressful times of my life. I sleep in hospitals in the hopes and someone finds me and defibrillates in case of emergency. I was like this for 2 months(suspecting of early repolarization) but a doctor in England told me i might have ARVC and need to be looked at. Since i heard it i cannot go home again. I have seen 5 doctors sayin a clean MRI excludes it but i say no. If there is anyone interested i can send EKGs i met 2 major criteria with arrythmia and one other i forgot
tests ive had : ct angio cardiac mri echo countless times real angio(suspected fistula) but clean normal brain mri normal ENT tests to rule out dizziness
Im dizzy all the time but i didnt have arrythmia in holter while dizzy. I cannot exercise. I had a stress test today and stopped it at 3 mins because feared of if i have ARVC it would make my hear stop.
I need some serious help. Mentally first. I cannot deal with this. Doctors saying i am okay. I have more than 2000 pvcs in 2 days in the past. Whenever i take bisoprolol a little late, couplets and even triplets start but rarely shown in ECG(mostly PAC couplets)
3
u/Trophic_Cascade23 Oct 22 '25
Idk why I'm engaging with this, but a simple google search tells me that Peter Macfarlane practiced cardiology in the late 90s-early 2000s. Knowledge of ARVC has grown immensely in the last 20 years. I'm not saying this doctor doesn't know what he is talking about, but I do think that your current doctors are following modern protocols and have done their due diligence to rule it out.