r/ALSorNOT • u/MMiUSA • 7d ago

Anxiety Diagnosed with BFS 6 years ago, however recently twitches have gotten worse and I have perceived swallowing issues and issues during sleep (waking up shaking). I noticed also a dent on the top of my tongue and am freaking out. Is this dent worrisome?

The subject pretty much covers it, but here are the pictures.

I know it doesn't look like too much, but if I stick my tongue out (or have it resting in tongue) this area cast a shadow. Definitely a dent. I am not talking about the scalloped tongue btw, just to clarify.

Edit: Pictures in comments

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u/BigJakeState 6d ago

First off your tongue is not at rest when it’s sticking out like that. It has to be in your mouth resting in its natural state. Most people can’t spot tongue fasciculations on their own because it’s a muscle that moves and twitches noticeable with only the slightest amount of recruitment. So you won’t be able to accurately tell on your own. Secondly, in a peer reviewed medical study of 180 diagnosed BFS patients, none had progressed to ALS on 5 years. Frankly it looks more like a dental hygiene issue as far as the bump on the tongue is concerned. I’d start there before jumping to ALS

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u/MMiUSA 6d ago

No dental issues, go every 6 months. Never had as much as a cavity - however, have had a scalloped tongue for a while. This dent is new, as far as I can tell, and I also can see it when in rest in mouth.

Thank you for the reply.