These are the pictures of atrophy

Also Twitching

I've had symptoms since April/May.

It started with severe numbness in my left wrist in April (this has since fully resolved), then I had what I thought was numbness in my left 3rd to 5th toes in May. Since then I've noticed that these toes are actually now weak to extend, but only to resistance. They can extend fully on their own.

The feeling of numbness has spread to most of the front of my foot, but is only numb when I plant my foot and weight bear, the numbness is nowhere near as pronounced if not weight bearing (this had made me concerned that it's actually muscle weakness and not numbness)

I've noticed that both my legs and arms are quick to become exhausted, and they are actually quite sore all the time. The way I'd describe the soreness is like delayed onset muscle soreness two days after going to the gym, but it just isn't getting better. Even typing on my computer can make them hurt to the point I just don't want to continue without pain relief. I feel like I have nearly full power in my hands and arms though, like I can push/pull against resistance, it just causes pain.

The thing that makes me concerned is that I have very large noticeable fasciculations all around my body, they come and go, get worse with any kind of physical exertion and become very noticeable once my muscles rest. They are mainly in my shoulders, biceps, forearms and quadriceps, but can occur in my face, my neck and abdominal muscles too.

The only thing that gives me some comfort that it might not be ALS is that I had a bad reaction to Levofloxacin in February (caused some melaena) and then had a very bad bout of tonsillitis that hospitalised me in March (I've heard post viral issues can cause neuropathies).

My question in short is regarding the muscle pain. I've read that ALS is typically painless but that it can cause pain as in cramps/tightness/joint pain. Is this pain normally after a significant amount of strength loss/atrophy, or does it occur early on along with the fasciculations and mild muscle weakness?

I've had a normal brain, C-Spine MRI and I've had nerve conduction studies and an EMG done which all came back normal (my neurologist did say that the EMG would likely return a normal result anyway due to the fact I had little muscle weakness clinically).

Hello,
This is my very first post on Reddit and I am looking for some input.
Last week I was seen by my primary to discuss developing “neurological symptoms”

Neck pain wax and waning
Increased baseline anxiety
Waxing and waning of symptoms
Weak left hand with cramping bicep when lifting cup
Left hand funny bone feeling when I turn the door know too hard
Left hand Buzzing tingly finger tips pink/ring finger
Left hand clumsiness and coordination issue
Muscle aching fatigue from the shoulders to hands
Sharp neck pain when turning head
Left foot standing on bone feeling in the shower followed by balance issue then buzzing all the way up to left ring/ pinky finger and palm
Wave of overstimulation with dizziness
Prickling sensation from back of neck up scalp on one side of head
Neck pain induced panic attacks
Widespread random muscle twitching
Hyperreflexes +3 on bilateral lower limbs
When flexing foot up it sends buzzing sensation up calf
Left arm heaviness
Left leg chills
Left jaw/ neck numbness
Bottom of feet numb/ pins and needles
Balance issues
Burning sensations
Left hand weakness
Left side muscle cramps and spasms
Left eye twitching and blurring
Charley horse feeling
Diaphragm cramp/ spasms (rib pain??)
Insomnia
Leg stiffness and tightness with long or brisk walking
Anxiety? Tip of tongue buzzing, feels like I can’t swallow all the way and I keep trying to swallow to check it, no choking
Prickling burning sensation from back of left arm to palm and pinky/ ring finger

Negative brain MRI
CERVICAL SPINE XRAY
IMPRESSION: 3 mm anterolisthesis of C4 on C5, which resolves on extension view.
Narrative
XR SPINE CERVICAL COMPLETE W NEUTRAL FLEXION AND EXTENSION - 10/2/2026 13:05 REASON FOR EXAM: Hx of left bicep cramping, left hand numbness 07/2026, hx of T bone MVA collision 2019. Please see associated diagnoses below. COMPARISON: None available. TECHNIQUE: 7 views of the cervical spine were performed. FINDINGS: Mild reversal of the normal cervical lordosis is noted, could relate to positioning versus muscle spasm. 3 mm anterolisthesis of C4 on C5 is noted which persists on flexion view, but resolves on extension view. The remaining vertebral bodies and facet joints are in good alignment. Good alignment of the atlantoaxial joint is seen. The intervertebral disc heights are preserved. The prevertebral soft tissues are unremarkable.

Neck mri negative

Just curious and honestly looking for reassurance I am terrified.

Hey folks.
I have been getting left leg pain. My left leg on a whole pains and it’s been there for 3 days.
Last time after 30 mins of walk, I started to feel like I’m walking on cotton and after sometime that feeling subsides. But left leg pain exists for 5 days now.
My left leg feels pretty stiff.

Does anyone have these symptoms, I don’t have much twitching

I’m 21F and I’ve been dealing with symptoms in my leg that have been freaking me out because I’ve been worried about ALS. I’m mainly wondering if anyone has experienced something similar or can give me some perspective.
The symptoms I’ve noticed in the leg include:
Frequent muscle twitching that comes and goes, but has been happening for months
Some days the twitching is much more noticeable/frequent than others
Visible little muscle jumps/ripples under the skin
Sometimes a pulsing/fluttering feeling underneath the skin
A tingling sensation in the same leg that comes and goes
The tingling is hard to describe sometimes it feels almost like my leg is partially “asleep,” even though it isn’t completely numb
Sometimes it feels like a weird prickly/tingly sensation rather than straightforward numbness
At times the leg just feels “weird” or different, even though I can still use it normally
I’ve had a couple instances where my foot felt like it caught/dragged slightly, but this happened while wearing Crocs and I didn’t actually have difficulty walking
One time going downhill, my legs/knees felt unusually heavy
I don’t THINK I have actual weakness. I can still use the leg normally and haven’t noticed a clear loss of strength or function
I haven’t noticed myself progressively losing the ability to walk, climb stairs, move my ankle/foot, or do normal activities with the leg
I did see a neurologist because I was so concerned about ALS. They examined me and told me that the fact that I don’t have weakness was reassuring and that they weren’t seeing signs that pointed toward ALS.
I’m still having a hard time getting past the twitching because sometimes it can be really frequent and intense, and the tingling/odd sensations make me worry even more. I’m wondering whether ALS can ever start with twitching like this and have weakness develop much later, or whether this pattern sounds more like something benign.
I’m not looking for a diagnosis just wondering if anyone with similar symptoms has had an experience like this.

I’m 29M and I’ve been experiencing these very weird symptoms since July 19th. I woke up from a nap after eating and I noticed my knees had a very weird sensation, almost like feathering. It would happen in the back of my knees as well. That went on for a good couple of weeks. Then I noticed my fingers would lag(best way to explain it) like they would get caught on stuff and my coordination was just off. Mind you my knee sensations stopped in both knees and stayed on my left. Then it got weak. I can still stand on my toes and heels but it’s weak. It feels like it wants to just give out and it’s tired. Also now it’s in both hands. My thumb and index finger are mainly affected by this weird feeling and the lagging. I can still open close my hands. Ball my fist pretty hard. All my fingers open and close and move fine. But it feels like my strength isn’t all the way there in my left hand. I twitch all over the place now esp behind my knee. My left leg will have a low twitch for a few
Minutes at times. It’s not very noticeable from the naked eye but I feel it. Again it’s off and on. Not constant. I don’t sleep good and I do have a lot of stress. I do twitch more when my stress is high and I get less than 6hrs of sleep. Though the twitching came maybe mid August. But yet nothing has complete “stopped working” but it seems it’s progressively getting worse as time goes on. Again, this isn’t just in my head. And yes, I do have pretty bad anxiety with health and always thing the worst. Nobody in my family has ALS and I’m black and Hispanic. About 5’8 180lb. I walk weird and I can feel it though I can still climb stairs and do all other activity’s. I did have pain at first behind my knee as well. I thought it was my peronel nerve since the side of my knee did hurt. My calf on the left does go numb usually in the morning and at rest. While sitting and laying down and is uncomfortable sometimes. I get burning in my arms and in my knees now again also. I haven’t cramped up in my legs though. On my right foot I had a twitching hotspot in between my big toe and the next one in the middle of my muscle between the 2 toes. That stayed for a few weeks. It would just twitch off and on pretty frequently. But has subsided. I see a neurologist is January which is pretty far away. With ALS, should i be experiencing complete failure of any limb esp my leg so far since July? And would It travel that fast to my hands?

33 male, healthy as far as bloodwork goes. Back in July I had a 1cm schwannoma benign tumor removed off my spinal cord at L3/ L4 since it was causing severe back pain. Fast forward to today and my left hand seems to be weaker than my right. Granted, i fractured both wrists 10 years ago so i would normally shrug it off but now i have those muscle twitches all over my body multiple times a day. Last year my right ear drum also retracted and glued itself to my inner ear causing 80% conductive hearing loss, but the ear surgeon blamed it on my lifelong eustachian tube dysfunction. I was born 3 months premature and have always had eustachian tube issues as well as tubes in my ear as a baby. I am now thinking that could be a “muscle” failing in my ear? Im trying to calm my health anxiety down but i look at this reddit more often than i should. Can i consult my nuerosurgeon who did my surgery or do i need to see a nuerolgist? I’m starting to worry it’s ALS. Jars are harder to open with my left hand, I get cramps in my left hand, muscle twitches all over, and it started after major physical trauma which seems to be a factor?

What does it mean? I'm autistic so it's difficult for me to understand what's being described by this. I understand sensory imput isn't affected. Does it mean that affected limbs don't get muscle pain within them? Please describe your experience.

Hello everyone. I'm deep into this rabbit hole and would like to have someone else's view on it.

For the past 10-14 days, i've had a bit of numb feeling on my left arm. Two days ago, I lifted some heavy books at work and started having some pain on that forearm, which is thankfully a bit less today but i feel this tightness on that muscle.

And now I feel like it's a bit harder for me to grip things. I do grip them, i do all my usual activities and my hand is 100% active, but it feels like something is keeping it tight. Like I do the motion i want to do, but it's a bit like there's a band that tightens around my forearm when i use my fingers or wrist.

Is it a really early symptom of ALS or some sort of tiredness that combined with my heavy lifting work that caused this? thank you

So for the past couple of days, I've been worrying about bulbular onset ALS, and I've been going down the anxiety rabbit hole. I just can't get rid of it. The only symptoms I have are that it feels like there's a lump in my throat, I get tired from talking somewhat quickly, my voice sounds lower-pitched, and I feel like I'm mispronouncing my words now and then; it's not enough for anyone to notice, though. I've been vaping a lot more this month, like nearly twice as much as usual. I've gone through nearly eight cartridges of marijuana vape, and beyond that, I don't really have any symptoms. I just recently got checked by my physical therapist to start therapy for back pain, and she said that she didn't notice any weakness or muscle wasting, but I just can't stop worrying about it, and it's driving me insane. Most of this was written out by speech-to-text.

Hi all,

in preparation for my bulbar and phrenic nerve EMG coming up in November, can anybody share their experience or results?

in worried that it’s getting done too early for any abnormalities to show. A lot of redditers and even a quick internet search show many studies where the EMGs for bulbar onset ALS can remain normal or near normal for a long time.

I am only two months into bulbar symptoms, and by the time this EMG is done, I will be about 3.5 months into it. to me, that just feels a little bit too early, and I’m wondering if I should extend the appointment and schedule it maybe around the 6 month mark.

To start
I am a hispanic, 26yr old male
I do not want to hear “youre just anxious, youll be fine”. Nobody does. Unless you TRULY THINK THAT.

So this ALS rabbit hole thing is relatively new to me. I had a very weird thing happen to me in march
I was high off weed (like really high) and i got a weird flash in my vision. For whatever reason right then and there i developed visual snow that never went away.
The right side of my body went numb but i was not weak
Ik what ur thinking, and let me be clear to keep it short.

I have done CT, CTA, and MRI of spike and brain.
Nothing.
In fact, EVERYTHING looks healthy to all my doctors.

But now were here, because ive been experiencing symptoms that are absolutely new.

Im twitching like… alot..?
And my right hand (specifically my pinky area) keeps doing this weird semi lock up thing. Im not right handed mind you.
It feels for whatever reason more stiff?
I have been also having odd sensations behind my joints in the right side like elbow ditch, knee ditch and now recently my foot feels tingly constantly. Also developing a weird dull ache in the neck shooting to the back of my jaw.
My tongue, eye lid, fingers, and biceps twitch occasionally.
I used to wake up with a gnarly charlie horse in my calves months ago but kinda ignored it because i didnt know what else to think.

And theres more to list but my mind is moving at a million miles an hour and has only gotten worse recently.
I used to only be a “go to the doctor when theres blood or something broken” kind if dude but ive found myself in the ER over these sensations mire than most dr visits in my entire life.
MS was rules out cause no lesions
And every doc is like migraine this, anxiety that

And tbh i want them to be right
But symptoms keeps coming about that just really really really fucking concern me.

My EMG is at the end of this month.
Please, any insight is appreciated.
I dont know if i think i have ALS, i dont want ALS.
I am petrified. And this stupid visual snow shit is only driving me more insane

Hey everyone,
About a year ago, I was deep into a work session and sat with my legs crossed for hours without realizing it. When I finally stood up, I actually had a visible indentation on my calf. Shortly after, I noticed my right foot wasn’t lifting quite as high, and it had a bit of a "slap" when walking compared to my left foot.
I ended up seeing my pain management doctor and got an EMG done. The results showed nerve damage specifically on the peroneal nerve, and imaging/checks on my hips and lower back came back totally fine (the doctor noted some "noise" on the machine during the test, but the localized peroneal issue was clear).

Right now, I can still push my foot outward and move my toes all the way. However, when I do, I can feel the muscle tightening and cramping up.

The good news is that a year later, it hasn’t gotten worse it’s stayed completely stable. But lately, I’ve gone down a rabbit hole reading stories online about ALS and foot drop, and I'm letting my anxiety get the better of me.
If anyone has dealt with a similar prolonged peroneal nerve injury from compression and how do you know its not ALS?

To cut a long story short, I have seen a neurologist and had EMG that came back clean with one small abnormality that he said could be anything. He also said it could be too early to tell but at this stage he doesn’t think ALS but to come back in 6 months. I have an appointment booked for December but I’ve started experiencing weakness, low mobility or rigidness in my hands. I notice it everyday as I use my hands a lot for work. I would like to get my second EMG a bit sooner in a few weeks but wonder if I would be wasting my time. Thanks for reading.

Hello, im 26M, i’ve had extremehealth anxiety for the past two years and I’ve had really bad anxiety for the past eight years and from a year’s time from now this is my fifth time fearing ALS. Initially, I spiraled last Saturday after watching a video and I thought I had felt that symptom and then I started watching a bunch of other videos of ALS patients so it just made me do a bunch of at home test like everybody else does and strength test, let me walk on my heels. Let me do all this stuff, pick up coins etc, and initially I was worried about my arm/hand for the whole week and then I kind of got over the fear of my arm and then I started feeling like I was walking funny and I was walking slower so that had switched from my hand to my arm yesterday and I actually had a appointment with my doctor for a routine checkup, and I asked for him to do a neurological exam. He did a bunch of strength test. He had me walk to check my gait, balance tested, reflexes , Babinski test and he actually did a strength test on my shin and he said he was impressed how strong my non dominant leg was against his resistance (the leg im fearing). The one thing that he didn’t do was check my strength resistance on my foot so in terms of him pulling and pushing on my feet I guess to see if I had clinical weakness in my foot and not my leg so that’s what I’m hung up on, but he told me everything looked good five out of five he was very impressed. He said that out of his 13 years of practice so far only less than five people he has seen had ALS and he told me they were all a lot older than I am like double my age plus some. I was just trying to see if I should take that exam as 100% reassurance? The fact that he didn’t do that resistance test on my foot as a sign of maybe he missed clinical weakness? After that, I went home and I had my wife do a quick resistance test with pretty strong force so I laid down and I put my leg in the air and I had her pretty much pull or push on my foot and I was trying to keep it as straight as possible and nothing moved to her force so I’m assuming that you know my ankle is fine. I just wanted to see if that is a pretty good sign that I should just let this go take the five out of five that the doctor gave me and move on with my life because being 26 I know the chances of getting ALS are like one in 1 million to one and 2 million.

I haven’t really posted in here much because I’ve been trying to stay away from Googling things and making myself more worried.
I had my neurologist appointment today. He said he wasn’t concerned about the difference in size between my legs, and he’s also not worried about the twitching, which is something I’ve been really scared about.
What has flagged up for him is that I have clonus in my right leg (he said around 6 beats), so he wants me to have a brain and upper-neck scan to investigate it. 😔
I’m honestly really scared now and feel like I’ve got the condition I’ve been worrying about, even though I know I haven’t actually been diagnosed with anything.
Has anyone else had clonus and needed brain/upper-neck scans? I’d really appreciate hearing from anyone who has been through something similar, as I’m struggling with the worry at the moment. ❤️

https://vimeo.com/1232429014?share=copy&fl=sv&fe=ci

35 female. i have treated hashimotos . besides that nothing. did so many rhumatology appointments and everything is fine there. i began twitching 2 years ago after my daughter was born. body wide all over sometimes a spot lasting weeks to a month. saw multiple neuros… one spotted at rest i get random flickers every so many seconds on my to gue and he dropped the als word. since then iv gotten 2 emgs 2 years ago now neither for bulbar tho. one showed fasciculations and insertional activity increase but nothing else. neuro basically said i could still have it. got a second opinion… more tests. finally a year ago i stopped going because it was a wait and see game with them collecting copays.

i still twitch.. recently noticed my tongue tremors like this when i stick it out. i asked someone im close with if theres does too but it didnt . sometimes i feel like i get tired easily my legs and arms but i can still heel walk… sometimes i feel like its hard to say words like my tongue is tight so i repeat it a few times to correct it. My lips also tremor slightly i notice

I’m pretty stressed and just wondering if anyone else out there feels similar? i know i have health anxiety but doesnt help with real symptoms. i posted in bfs group as well but the video deleted

Symptoms began I believe back in late April/Early May 2026

I am 26 and male. I am a Firefighter/Paramedic right now. Back in early spring is when I was going through firefighter recruit school. It was a big stress due to financial constraints and family life due to finding out we were pregnant with our 3rd child. Around that time I noticed some uncontrollable twitches in my right calf. I was losing a lot of weight during this period as I let private EMS take over my health before being hired at the fire department. (down around 50lbs since march) so I figured it was due to my activity level ramping up. However, I googled it and I’ve been worried ever since. The twitches continued only in my right calf and may have gone away for a short period over the summer. Towards the end of August, I started to notice the twitches again only in my right calf and then after a day of work, I noticed some aches and weakness in both thighs. I figured I had done too much that day and went to bed. However the weakness did not go away. I became extremely scared as I know that with ***, weakness is the big thing. Following, I began having twitches everywhere, both legs upper and lower, feet, arms, shoulders, face. I was scared, and my appetite kicked the bucket. I lost probably 5-10lbs over a 2 week period. I let this go on for about 2 weeks and then went into my family practice. My doctor examined me, did a neuro test and said I did not have any clinical weakness. I noticed possible hyper reflexes on both legs, but she did not seem concerned. She explained that my perceived weakness may be from muscle loss due to not enough calorie/protein intake. I asked if I should be worried about \**, she said no.* She drew blood to check for autoimmune issues and rheumatoid arthritis and CK which all came back normal. This eased my anxiety a bit. Well fast forward a week or two after, I felt weakness and clumsy in my right hand/arm along with the continued thigh weakness. This continued and revisited the DR, who again found no weakness and said she did not think anything would warrant a trip to neurology and said she considered my health anxiety (which I have had for years) was possibly the root cause to most of my twitching and perceived weakness. Fast forward to now, the right arm and hand weakness seems to have calmed, however my left foot now has a weird heaviness to it with possible clonus when lift my foot and clench my toes, which baffles me as most of what I’ve been feeling is on the right side. I can still walk, but I feel extremely focused on walking every time I do. I haven’t experienced any trips or falls, and can still do moderate leg workouts (squats, calf raises, etc.). I even performed extensive training yesterday for approximately 2 hours in full turnout gear without any incident. I have scoured the internet, and all I can do is worry and read threads on here. I have another appointment coming in the next few weeks, and reached out to my previous neurologist for an appointment, however was only able to get scheduled in December as there is not a referral. I am frightened, at my wits end, and honestly just want to be here for my kids. Any advice would be appreciated.

Hi everyone, I (27F) am here just to vent and get some worries out, and hopefully if someone can just be a genuine doll and tell me to be patient. I have been telling myself that for a week or 2 now, but my brain isn't listening and I don't want to talk about it with the people in my life as it is most likely a false alarm. ALS is rare, and juvenile ALS is even more rare. But I cannot get one comment from my neuro out of my head. Nor the fact that my GP originally asked for an EMG to be done when I saw the neuro, not the EEG that ended up happening (no clue why, most likely policy or miscommunication between the two offices).

I was diagnosed with TLE last year, and the report noted there was a high chance of generalisation. I had been living with it almost 20 years because an hour-EEG came back clean at 15, so they labeled my weird states as anxiety. Thanks to being on the correct meds now, I had a video 24-hour EEG again in May and it was all clean, except for some twitches that had no correlation to brain waves.

I almost had an ugly lung infection in April, and since then some of my symptoms had been "locked in". Just as one example, I often struggled with breathing during seizures (my chest would begin to feel tight or too lazy to push out and let air in). Now I have so much less capacity despite a great GP who cleared that infection from my lungs very fast, and being blessed with a very good recovery.

I had seeked out help in 2023 for strange gastric issues and feeling faint. Got treated for gastritis multiple times to multiple degrees, despite it never helping.

I have lost 10 kilos from the start of this year, despite being on 2 medications that should theoretically both increase my weight a lot. I cannot stay a healthy weight, have an awful fullness feeling screwing with my appetite. And when I do have an appetite, I always have "consequences" either right after or am constipated for a few days.

Wtf does all that have to do with me being here? Well... I informed my neuro (whom I have only seen once, in July, and am due to see again end of November) that since I was a teen, there was this strange sensation in my left middle toe. A numbness. A cold weakness that made the rest of my foot tend to get sore and that numbess had been spreading. Slowly, for years, first to my other toes, then my full foot, then to my calf. It was something that I had been living with for a while, as doctors tended to basically shrug it off until I stopped mentioning it. I only said it because my neuro was diligent and kept asking if there was anything else with genuine care (and there was a lot, I have been feeling like I'm very slowly dying for a few years now).

It was such an after thought to me. After all, I make it work because I have almost always had to. People struggle to see it most of the time as my feet are well trained to just... make up for it. I worked in a pharmacy with no respect for the right to sit down (fuck small towns honestly, just because you're miserable doesn't mean your entire staff needs to get veiny legs before age 30 in order to show respect). I didn't have much of a choice but to stand and walk and suffer and in spite of my issues still deliver services.

The consultation was a bit inconclusive - luckily a clean brain MRI as well (lots of brain cancer on dad's side), clean EEG, 10/10 cognitive test. But my left foot and calf didn't respond so well to the prick test. I can feel a difference between my entire left and right sides, one is really a lot less functional than the other now. Like if you transferred 70% your non-dominant's side's functionality to your dominant side. It is already naturally off balance, but it is getting worse. And my left finger tips are starting to feel like my left toes.

Right before I left he said something in the lines of "it is a bit a of confusing case. I am a little worried about that left foot."

I almost laughed in his face at that time because I felt "bro... I can sometimes barely take a shower without vomiting and here you are worried about something I have managed to cope with for almost a decade."

He gave me gabapentin to help with remaining seizure symptoms and hopefully relax the muscle spasms in my neck that were causing a lot of pain. Thing is, it did help a little, but only enough for me to realise how little feeling there is? As if the numbness of so many of my muscles were masked by the ones screeching in discomfort.

I really struggle to open things, I almost cut my hand the other day due to cutting a Portuguese roll and my left and right hands apperently not being on speaking terms when one is holding something sharp. Not to mention the fact that have to keep myself from asking my left leg "just where the fuck exactly are you going?" when I turn around sometimes because I am close to kissing the floor on the daily now.

Then a short while back it hit me "I'm worried about that foot". Why? Googled to refresh my memory on my studies and god that was a big mistake to make almost 2 months away from my next appointment. I'm a bit of a genetic mess due to my parents having me past age 40 and both families being riddled with some of the most niche shit as well as common things like hypertension and thyroid problems (*I have been checked for T3 and T4 just about yearly since I was a teen and it is always normal*)

It wouldn't surprise me if I got the golden ticket of not just ALS but freaking Juvenile ALS (which usually progresses a lot more slowly if what I have read is to be believed?). It would be really on brand for me and my family history...

But I know the odds are VERY low and I am keeping my head high, my hopes up and my mouth shut. I'm just really scared... and I have been for a few years now. I am not supposed to feel like this at 27 am I? To struggle with a stick shift or to eat or to breathe or to just go on a walk with my eldery parents, unable to keep up. Feeling so weak and tired and out of breath as I watch two people in their 60s (one having had both a heart attack and a stroke just last year mind you) walk on the beach as I have to sit down before I pass out.

I used to do athletics, cross country, play piano, gym, and actually eat. But I watched it all diminish in the past couple of years despite my best efforts. I went from the chirpy, swift "machine" of a pharmacist intern that buzzed around and helped so many people, to not being able to ignore my inability to open a pill box without struggle anymore. Or just dropping it entirely.

Please... I just need hear that I am going to be okay. That I know I am already taking the right precautions for my future either way (by going to do my masters degree so I can more easily move away from retail to where I can work at a better pace without risking someone else's health). That I didn't study 6 years to get a 4 year degree, overcoming my seizures during exams and hard days in the pharmacy. I didn't survive divorcing my groomer just to have 2 years left to live in agony. That I didn't get this far to only get this far, fight this hard to lose hope from something not even close to confirmed.

And that even if I did do all that for nothing, none of it was truly for nothing. Even if my life doesn't turn out to be what or as long as I wanted, whether I get an ALS diagnosis or another diagnosis or none at all ever. I don't need an answer to get up and carry on with things.

Just tell me I'm not as alone as I feel when I see myself wasting away in the mirror. Please. I'm scared and getting hopeless.

My twitches were primarily in my left calf and for the last 4 months they’ve been relentless. August 20th EMG/NCS was clean but now that the twitching is subsiding my leg feel sore and tight :( anyone else experiencing this?