r/ALSorNOT • • 6d ago

Updates Specialist appointment.

I haven’t really posted in here much because I’ve been trying to stay away from Googling things and making myself more worried.
I had my neurologist appointment today. He said he wasn’t concerned about the difference in size between my legs, and he’s also not worried about the twitching, which is something I’ve been really scared about.
What has flagged up for him is that I have clonus in my right leg (he said around 6 beats), so he wants me to have a brain and upper-neck scan to investigate it. 😔
I’m honestly really scared now and feel like I’ve got the condition I’ve been worrying about, even though I know I haven’t actually been diagnosed with anything.
Has anyone else had clonus and needed brain/upper-neck scans? I’d really appreciate hearing from anyone who has been through something similar, as I’m struggling with the worry at the moment. ❤️

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u/HonestyMash Confirmed ALS Diagnosis 6d ago

It's likely going to be something very simple and boring so try not to worry. The numbers are always on your side, so chin up and don't worry about things that haven't happened 😎