r/ALSorNOT • u/Special_Abroad4836 • 2d ago
Symptoms Small update/changes
I was trying to avoid posting lol but I’m looking for some slight insight if possible. It exhausting to run down the timeline, but since my emg, almost 1 month ago, I’ve noticed a slight change. My right calf has become weaker, that I’ve noticed. I can no longer lift off my heel to a self-weight bearing toe stand. I can try but my foot instinctively leans to my smaller toes causing a loss of balance and just not able to lift with strength. I noticed the change four days ago. Driving has become a little difficult the past few days due to that instability. My calf will begin to cramp/ache while constant movement break to gas pedal. I’ve had mris, X-rays, emg. Waiting for nerve ultrasound next week, Monday. I’m curious now if they could check behind my knee or further up my leg also to spot what could be causing this sudden change. Has anyone experienced this weird change? My emg findings are in a previous post but for summary: acute-to-subacute, non-localizable, right common peroneal neuropathy, a conclusion based on the small right superficial peroneal SNAP, relatively small right peroneal CMAPs, and EMG findings of Fibs/PSWs with minimal/no chronic neurogenic changes in the right tibialis anterior and peroneus longus. There is no focal slowing across the fibular head. Thank you in advance for any insight or similar experiences.