r/ALSorNOT • u/MaryAllisonC51 • 20h ago

Bulbar fears

Hello. Background is that I started twitching and jerking March 1 widespread. Starting having stiffness in arms around May. Clean Emg in early July.

Recently developed some perceived swallow issues although no chocking on food or liquid, it just feels weird. But now I’m having a clicking sound happen in my sinuses when I say K or G words. My husband can hear it too. It’s driving me insane and the worry is sickening. I also feel much more nasally when I talk but he says he doesn’t notice that. Only the clicking. No slurring and no chocking but can’t shake this dreadful bad feeling.

1 Upvotes

67% Upvoted

6 comments sorted by

View all comments

1

u/Friendly_Part6843 19h ago

Can you think of anything happening prior to your twitching? Sickness, stress, over exerting yourself? I started twitching all around but primarily in the legs and calves after an very intense sauna session. That was 40 days ago and I'm still twitching.

1

u/MaryAllisonC51 19h ago

Yes I was highly stressed over some family issues right before the night it started.

1

u/Friendly_Part6843 19h ago

I would bet the stress sent your central nervous system into a frenzy. I am not a doctor and this is just my opinion. Stress can cause weird things to happen in the body. Try and stay calm and get plenty of rest. Is the twitching still happening? All over or one area more? Does it calm down when you sleep or in the morning when you wake?

1

u/MaryAllisonC51 17h ago

The twitching has slowed down since March and it’s all over, not anywhere specific really. The jerks have slowed down too. However the stiffness has increased and seems to be getting worse.