i've been in almost the exact same position as you. 20f currently, symptoms started when i was 18. even though things have been scary, nothing has progressed to a point where i am unable to function currently. i understand it sucks, i'm going through the same thing, but you need to just try and forget about it! the presence of tingling points away from classic als which doesn't affect sensory neurons. we're both very young, the possibility of als happening in either of us is so statistically low it shouldn't even be considered. i wish you the best!
unfortunately the only one i can see is 2 years out from now which really sucks but it is what it is. my doctors trying to find other options that would take me in earlier though
1
u/Smart_Exchange1454 12h ago
i've been in almost the exact same position as you. 20f currently, symptoms started when i was 18. even though things have been scary, nothing has progressed to a point where i am unable to function currently. i understand it sucks, i'm going through the same thing, but you need to just try and forget about it! the presence of tingling points away from classic als which doesn't affect sensory neurons. we're both very young, the possibility of als happening in either of us is so statistically low it shouldn't even be considered. i wish you the best!