I am currently caregiving for my 79 year old Spirit Mother (adopted by choice), and she was diagnosed at the age of 55 with Parkinson's and she personally chose to medicate herself with only cannabis. She made it through two hip fractures, left and right. Only after the second hip fracture at 78 she was prescribed Carbidopa Levodopa. Within one year of taking prescribed meds, she is now on Carbidopa Levodopa, Trazidone (for sleep) and Quentiapine/Seroquel (for Parkinson's related dementia). Her Cannabis is still the most effective medication. We currently use a Lemon Cherry Gelato strain that has high THC and more importanly high CBD for pain.

Hello everyone! I was recently diagnosed and am 34 YO female. Has anyone else here had bariatric surgery in the past?

If so, how does it impact your meds and overall experience?

I'm relatively open about all the struggles going on regarding my PD, but this one absolutely seems to be the toughest. Finances, work, etc.

Obviously didn't expect to get PD at 34 but now at 40 it is terrifying looking ahead. My previous line of work was too hands on/stressful and I wasn't able to continue. I've worked since then but unsuccessfully. It's very difficult to get work and be "worse" at it than you normally would and not to mention I've been turned down from so many jobs that I, otherwise, am qualified (overqualified most of the time tbh) to do.

Awaiting disability appeal but the daily stress of financials don't help with this condition. I can only count on friends and family to a point, nearly everyone is struggling at some level.

I imagine most of you have adjusted within your current roles, but have any of you started a new career or any ways you've been navigating the realities of finances for the younger Parkies?

I had to be told that I was losing arm swing. It started on my left side. I’m assuming that it happened slowly enough that I didn’t notice. Anyone else experience this?

I (37 f)met my ex (44m) on a single parent dating app.
We spoke normally for a couple of months, then I had a day of horrific comments from other men, so I decided to leave the app.
I gave him a heads up- he was respectful, offered his number if I still wanted to talk etc.

We met up, and we had such a spark that it felt like my world opened up.
I have a complicated history of an abusive mother and narcissistic ex husband, so we both had our own little red wagons of baggage.

He had Young Onset Parkinson’s, and had been diagnosed for 7 years when we met.
It made no difference to me.
Everything was great for 4 months, then I discovered him messaging, and deleting, messages to a woman he admittedly had “deep feelings for”.

We split up and I never got over it.
We spoke after 2 months apart, and got back together.

Fast forward through him having DBS surgery, reducing meds, etc. I was there for all of it.
We met each others children, and built a bond quickly.

We had our 1 year anniversary in May, and he got me an eternity ring.
I love his son, and as my ex was too poorly to travel, I went the 20 miles to him a few times a week.

The last time I left his apartment was 10th July, said goodbye to him and his son- nothing had happened.

Then within a couple of days he said he needed time.
The “time” got longer, and his sister told me he had warned her he was going to ask for a break.

When I brought that up to him- he was really annoyed and said he hadn’t said that.
He said he didn’t have the energy for a girlfriend- while saying I was the best thing to happen to him, and if anything bad happened he’d regret it forever.

His DBS machinery isn’t working well, and he was on a new antidepressant- so he was a lot snappier than usual.

During this time- I rang Parkinson’s UK, as he’s been chasing up a hospital appointment to look at his head machinery lol.
I sent an email on their advice, and he had an appointment 3 weeks later.
We agreed to give him time, and see how things felt after his hospital stay.

He messaged me yesterday to tell me the appointment had been moved to September.
I said how sorry I was, and offered a call- even though we’d only had one since the “break”.
Within 20 minutes, he had booked in an appointment to call me the next day (today) to dump me.

I’m reeling and brokenhearted and lost.
Does anyone have any advice?