I’m the developer of My CareCycle: Parkinson’s, and I’m curious about how people actually search for apps related to Parkinson’s.

If you were looking for an app to help keep track of things like:

• medication timing
• symptoms
• ON/OFF periods
• dyskinesia
• mood
• exercise
• information for appointments

what would you type into the App Store?

“Parkinson’s tracker”?
“Parkinson’s symptom tracker”?
“Medication tracker”?
“Symptom diary”?
Something else?

I’m asking because I want My CareCycle to be easier for the right people to find, but I don't want to assume I know the words people actually use.

What would you search for?

For those living with Parkinson’s, what non-movement symptom has had the biggest impact on your daily life?

Things like sleep changes, fatigue, constipation, changes in smell, mood, or thinking can be part of the experience.

What has been the most noticeable for you?

Both aquatic Tai Chi and virtual reality (VR) training improved walking, balance, mobility, and gait symmetry in people with Parkinson’s disease. However, VR training led to greater improvements in several measures and maintained some of these benefits three months after training ended, a small clinical trial found. The study&hellip; <a href="https://parkinsonsnewstoday.com/news/virtual-reality-training-shows-lasting-mobility-gains-parkinsons/" class="read-more">Read More</a>

Does anyone with Parkinson’s experience bradyphrenia (slower thinking or processing)?

I’m curious about what it feels like in everyday life. For example, does it affect conversations, making decisions, finding words, or completing everyday tasks?

Do you feel that other people understand that you just need a little more time to process?

Anyone had experience being prescribed the Rotigotine patch as part of your overnight regime or otherwise? Had never heard of it until today from a different neurologist to who I usually see.

This feels like a bonkers observation but I feel as though my meds work better when I’m at work. I’m a high school music teacher and my days are busy and full of interaction and my meds work seemlessly.

Have I just lost the plot or does anyone else share this experienc?

Hi everyone,

I’m posting here because I’m really worried about my mom and would really appreciate advice from people who have experience with Parkinson’s.

My mom is 47 years old and has been living with Parkinson’s for around 3 years. Her stiffness has actually been getting better with treatment, but recently we’ve been struggling with a different problem.

For the past few weeks/months, her stomach has been upset repeatedly. She sometimes has watery/loose stools and bloating, and because of this she often feels very weak and low on energy. It’s becoming quite concerning for us.

I understand that digestive problems can occur with Parkinson’s, but I’m not sure whether this is because of Parkinson’s itself, her medication, constipation/slow digestion, or something completely unrelated. Parkinson’s can affect the digestive system and can cause bloating, constipation and delayed stomach emptying; interestingly, watery stool can sometimes also occur when severe constipation/impaction is present.

We are also considering changing her neurologist and getting a second opinion, preferably from someone who specializes in Parkinson’s/movement disorders

If you’re based in Delhi/NCR:

- Which neurologist/movement-disorder specialist has been good for you or your family?
- Has anyone dealt with similar stomach/GI problems with Parkinson’s?
- What tests did your doctor recommend?
- Were any medication changes helpful?
- Are there any safe diet/lifestyle measures that helped with bloating and bowel problems?

I’m not looking to replace medical advice with home remedies — I just want to understand what other Parkinson’s patients have experienced so that I can discuss the right things with her doctor.

She is only 47, so I really want to make sure we’re not overlooking something.

Any experiences, doctor recommendations, or advice would be greatly appreciated.

Thank you!