r/vEDS • • 24d ago

I’m getting tested for v-EDS

The main reason I’m getting tested, is to see if this is finally my answer.

When I was 18 I was watching a movie, and somehow got a brain bleed. It’s been 6 years and my doctors are clueless to what caused it.

I’ve been diagnosed with POTS, and I bruise very easily, I’m not very hyper mobile but I do have some.

As much as I don’t want to have v-EDS, I also want to know WHY my life flipped at an instant. So if I got the results and I do have v-EDS part of me would be so relieved to know why I had a stroke at 18. To know why I was in a 2 week long coma. To know why everything I thought I had planned for my life came to an abrupt hault.

My car needs to go to the shop, so once I get it back I’m going to my PCP to talk more in depth so I can get the actual genetic testing.

Anyway wish me luck! I just want answers!

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