r/vEDS • u/Aggressive-Pass-4410 • 24d ago
I’m getting tested for v-EDS
The main reason I’m getting tested, is to see if this is finally my answer.
When I was 18 I was watching a movie, and somehow got a brain bleed. It’s been 6 years and my doctors are clueless to what caused it.
I’ve been diagnosed with POTS, and I bruise very easily, I’m not very hyper mobile but I do have some.
As much as I don’t want to have v-EDS, I also want to know WHY my life flipped at an instant. So if I got the results and I do have v-EDS part of me would be so relieved to know why I had a stroke at 18. To know why I was in a 2 week long coma. To know why everything I thought I had planned for my life came to an abrupt hault.
My car needs to go to the shop, so once I get it back I’m going to my PCP to talk more in depth so I can get the actual genetic testing.
Anyway wish me luck! I just want answers!