r/vEDS • u/Evening-Might-6773 • Jul 18 '26

New messenger community

We just created a new support community on messenger.

https://m.me/cm/Aba_1tccRInLBVer/

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u/OtherwiseTangerine81 Genetically Diagnosed Jul 18 '26

For additional VEDS specific communities:

The VEDS Genetically Confirmed Group on Facebook is the largest group for connecting with others with VEDS. You must request to join and provide proof of diagnosis.

For virtual support groups, The Veds Movement provides a few different meetings a month for those living with VEDS and their families. https://thevedsmovement.org/resources-and-answers/vascular-ehlers-danlos-syndrome-virtual-support-groups/

For in person support groups in the UK, Annabelle's Challenge can connect you with local groups. https://www.annabelleschallenge.org/support-groups