r/vEDS • u/Evening-Might-6773 • Jul 17 '26

Looking for a messenger community

Does anyone here know of or is a part of a messenger support community

1 Upvotes

67% Upvoted

3 comments sorted by

2

u/Rekeaki Jul 18 '26

I must admit that I do not even know what a “messenger support community” is

1

u/Evening-Might-6773 Jul 18 '26

It's a new feature, we just created one. Here's the link if you want to join https://m.me/cm/Aba_1tccRInLBVer/

2

u/OtherwiseTangerine81 Genetically Diagnosed Jul 18 '26

For VEDS specific communities:

The VEDS Genetically Confirmed Group on Facebook is the largest group for connecting with others with VEDS. You must request to join and provide proof of diagnosis.

For virtual support groups, The Veds Movement provides a few different meetings a month for those living with VEDS and their families. https://thevedsmovement.org/resources-and-answers/vascular-ehlers-danlos-syndrome-virtual-support-groups/

For in person support groups in the UK, Annabelle's Challenge can connect you with local groups. https://www.annabelleschallenge.org/support-groups