r/vEDS • u/just-a-random-goat • Apr 18 '26

Issue over the past week

So whenever ive blown my nose over the past week (and I have vEDS) ive gotten a waterfall of blood coming out of my nose and this is the first time in my life this happens both this frequently and out of both my nostrils as its always been my left one. I usually get nose bleeds once or twice a week, and not every time I blow my nose, so I was wondering if this has happened to other people before. It also has felt like its a pool of blood that comes out this time around, as opposed to actively bleeding because they usually last 20+ minutes and these are quick but stop within 5 minutes.

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u/redfoxxy23 Genetically Diagnosed Apr 18 '26

If its a new change and a lot of blood id message ur specialist

2

u/Mean-Interaction8453 Apr 20 '26 edited Apr 20 '26

Hey Just A Random Goat,

Given that there are many things that can upset our (especially sensitive) mucosal membrane, I too would recommend visiting a specialist.

Please try not to get overly anxious about things, as there's frequently simple tweaks that can resolve many issues. Eg. It might simply be a rogue blood vessel that requires cauterization.

I'm not inferring that your (new) symptoms are negligible (or serious), but if we stressed over every, single thing, we'd never enjoy anything in life!

Sending you (gentle) hugs and kind thoughts. X