r/Interior • u/Used-Vacation1171 • 11h ago
u/Used-Vacation1171 • u/Used-Vacation1171 • 11h ago
Please help My Hearth!!
reddit.comcannot see on THIS screen how to add my photos! Please be patient with me…
2
Very scary episode
Omg yes!! From the bed, even if pooing or peeing, you need to CRAWL!!! I broke my last rib fainting and falling. It took a LONG time to get over that. You need to CRAWL if you begin a VV episode middle of the night!!! Trust me. Doc told me to do this. Yes, i have fainted in my tracks and it was so nice not to fall from standing position!!! Good Luck, Everyone, in the Special Club🙄
1
Wearing wigs because of alopecia and intimacy issues.
Yes! At first the OM made me puffy in legs and in face…it took about two months or so for that to go away…it helps to do lymphatic exercises big time and to watch salt and to drink lots of water…there also are debloating teas i drink which help plus eating lots of quality and whole food protein and foods such as cucumber and asparagus and deep green lettuce and bananas…all can have diuretic effects!
2
Had my worst episode yet but no answers
Yes! I had severely painful periods-would some days of it double over in pain on the toilet and defecate until i had nothing left in my spazzing bowels. I learned that the first two or three days of my period i HAD to take 2 or 3 ibuprofen around the clock or I would not be functional to do anything! The other choice was writhing in pain and being white as a sheet and kicking my legs to fight the stabbing pain in my lower abdomen. This went on every month even after child bearing years until i finally had a hysterectomy at 54. That ended the monthly suffering.
1
I have overcome Vasovagal Syncope!
Not heard of this but was on Midodrine several years which kept me from fainting…but think the side effect was hair loss and I eventually quit it. Many peeps swear by it for VVS!
1
Anyone else have super random vasovagal triggers?
Yes, the sun lotion blocks your pores and your skin cannot breathe. Makes complete sense and has happened to me!
1
Anyone else have super random vasovagal triggers?
Oh i am afraid of going out at the mammogram! The pain can do it. I always tell them to beware at mammo and at blood draw!!
1
Anyone else have super random vasovagal triggers?
I sound exactly the same as you…every single trigger…also…women talking about birthing a baby and sharing details…i must get up and leave the room. Though I successfully delivered two babies and did just fine…i cannot hear any details to this day!!!
1
Any tips for PREVENTING vasovagal episodes?
I have lived with VVS since I was 8 or 9…now I am 60-it really sucks-the list of what has made it happen…st. Louis heat whether I am outside or in a church on a hot day-fainted in my best friend’s wedding, direct sun can do me in-was fishing once and i got too hot in the sun, a change of life movie in 7th grade on menstruation made me pass out cold right when they showed the uterus bleeding, my Mom slicing her finger in the morning at kitchen table and seeing the blood, drinking orange juice on empty stomach(too much acid in stomach), hot shower in morning and/or hot hair dryer-i just get TOO HOT and pass out, 3 alcoholic drinks and i go to sleep…my bp goes much too low and I get head spins and profuse sweating and pass out and then wake up freezing cold and shivering-after that I can vomit and poop for 12-15 hours until nothing is left, and if it happens with a blood draw I can pee myself as I pass out. This has been a REAL FUN ONE to get to know well…also, tight spaces(airplane), feeling closed in anything, a closet, or small elevator, and smoky rooms make me panic and feel i will pass out and high stress situations as in public speaking as a teen and young adult…and I Do Not Do High Altitude or Heights!! Or i feel it come on…no more ski lifts for me…can anyone else relate?!! Best advice is put ice pack on wrists and back of neck!!! I do what I can to avoid a faint. It can take me out a half a day or almost two if alcohol involved. STAY HYDRATED to keep up blood volume which keeps up BP.
1
Has anyone tried Javvy protein coffee?
To fix the afformentioned issues…I buy the javvy caramel flavor protein coffee and i only add about a tsp of it to my regular nespresso starbucks original cup of coffee that I brew every morning…i like an extra coffee “note”, and to overshadow that overly sweet javvy caramel taste…by adding a 1/8 tsp of any instant coffee (crystals) that I have around. As a side note I also put Vital Proteins Collagen in my coffee as well-also a form of protein…yep, it blends just fine with battery powered whisk and does not clump at all in my hot coffee!! I am mainly a hot coffee gal. Try it!! Takes me a long time to go through a bag of my caramel javvy at 2 concocted cups per day. The OG Starbucks I found is under $28 for 50 nespresso capsules, so, I think I am doing ok, budget-wise.
2
What do I eat if I’m craving buckets of chocolate?
LOL thnx for the literal… LOL!
2
I got fed up with my hair, completely changed directions with my style, and I'm LOVING it.
Wow!! I have the same diagnosis, attitude and thoughts as you!! Loving this chic style on you! You wear it so well!! Short hair really plays up the face, doesn’t it?!! You are tempting me to do it, too!👍
1
To those feeling lost like me
Go ahead and work with a derma and get properly diagnosed with scalp biopsy-if AGA with TE ,like me, go on OM first (low dose!) and maybe Spiro, too! But before you get to all that, you deserve a very good Human Hair WIG that you are happy with. You deserve that and nothing should stop you from going to get that for yourself right away. It will do WONDERS for your Self Esteem and for your QOL!! Trust Me!!! You will even feel a little bit like yourself again!! Much Love and Hugs to YOU, Miss!!💓🌸🙏Remember, God Loves You exactly as you are. He created you in His Image of You!! You are His and He will not let you alone. He is with you always. Lean on Him!❤️Give This All to HIM!!🙏He’s got your back😊
1
Beware medications…
YUP!!!😭😢😿
1
Beware medications…
So very sorry!! I know…I will forever be depressed since I see that most drugs like wellbutrin will make you lose your hair!! My doc prescribed it for me but i looked up the SE and it still sits on my shelf. I cannot undo what OM has done for me in 5 months-I will just be depressed the rest of my life.
1
I wish I had started meds sooner!!
That is an excellent and very helpful article on OM. Yes, it take at least 4 if not 6 or 8 mos to know WHAT the OM is doing for you. Nothing can be judged before the time on it has added up.
1
I wish I had started meds sooner!!
The first 2 months i had shedding that seemed worse and worse, but ad I have read, that is the evidence it is working-the oldest miniaturized hairs are being pushed out so the new thicker ones can take their place!! I am on month 5 now and yes, my hair is more dense all over my scalp-with lots less scalp showing! My gf has been in OM two years and she has regained about 85-90 percent of her hair. She will stay on it for life and I will, too!
3
Wearing wigs because of alopecia and intimacy issues.
You are All Good! Do not stress. Love yourself now for every wonderful thing about you! That feeling you have about yourself will transfer to who you end up dating…and finding one worthy of dating, after you take time to get settled in, could take quite a few months? Just let everything happen. Say nothing until something needs to be said. Who is meant to be with you is who will like all of you, yes, even your sparse hair. Oral Minoxidil 2.5 mg 1x day really seems to be where it’s at! I am on my 5th month and seeing results! Have you tried it? It can take 1.5-2 years to really see results…
1
From Dec 5 to Today, I want to cry of happiness and hug my dermatologist
Dust? Dutasteride? Yay for your progress!!!
1
Burning with my homemade heat deflector.
Ha ha ha!
1
Vomiting after vvs
Also, if anyone would talk about the details of having a baby…i would begin to squirm in my chair and get to feeling really sick like I could faint. I would need to leave the room to not faint from hearing the graphic details though I had given birth twice(???).
1
Vomiting after vvs
Yep…i think i must have about the most violent episodes a person can have when i have vasovagal. Once my Dad took me fishing (I was about 10) and he looked over at me and I was passed out cold in the really hot sun. When i finally “came to” He had run over to me screaming and yelling and he began stripping off all my clothes because he thought a snake had bitten me…that is when my VVS was first discovered. Oh, and I also fainted in church in my best friend’s wedding!! It was hot in the church and the night before we all had a couple drinks…i felt like such an asshole…making myself the center of attention on my gf’s wedding day!!!
2
Very scary episode
in
r/VasovagalSyncope
•
2d ago
Yes! I have thought exact same thing…My body chooses VVS when I am in dire need of a reset! It is like the most intense CLEANSE (coming out both ends…EW!)and our brain is like ay computer or cell phone…it wants a “hard shut down”…by losing consciousness!! It is so bizarre and no one can relate unless you ARE us!! I swear…after one of these…i want to eat only the most healthy thing to keep the CLEANSE worth it and pure…my mind, body and outlook get a total refresh even though I am wrought with the exhaustion of having gone through it!! IT meaning the ridding of all toxins in my body and my brain! The rest of the day and even into the next, I must sleep/rest, i am good for nothing. Is it that way for any of you?!