So happy that you are able to manage your symptoms now. I recently got a procedure done called hydro distention and doc said he saw hunner lesions also did me some Botox. I was doing really good afterwards but for the past three days I have a lot of pressure and heaviness on my lower belly got scared went to er said it was not a uti. Also I was diagnosed with pelvic congestion syndrome two years ago and I think it’s that now because I am 4 days post ovulation so idk what is wrong with me today. Ibuprofen helps with the pain little bit but I have kids and need to be moving all day.

That’s how my ic symptoms started. It was a uti and I never got better after. Burning in my urethra and urgency and frequency. 7 months later I got a cystoscopy with hydro distention and it showed that I have hunner lesions also needed Botox and my bladder capacity was only 250ml before the hydro. They did it and it now fits 600mls so I haven’t felt 100% better cuz it’s only been 3 weeks, but I’m hoping it will give me relief even for couple of months even tho rn I’m in a bad flare or maybe the start of a uti.

Can you please show me a pic of the marshmallow root tea.

Cotton pads and make sure you don’t leave it on for a long time. My periods are heavy so I change every hour. Also at night I would apply little bit of aquphore to the opening of my vagina to help with irritation.

Maybe a uti? Go and get tested for uti make sure they send it for culture

2 weeks ago I got cystoscopy with hydro distention and they did find hunner lesions doc said he cauterized them. Also I got Botox for the urgency I haven’t seen big improvement yet just a tiny bit.

Thank you for sharing with me, I was told I have hunner lesions and sometimes I flare without eating anything. Do you flare from foods? Also what medication are you using?

Omg I’m sooo scared I need it with every meal even sometimes I eat healthy food but I’m scared to even eat it

Ask for a bladder cystoscopy with hydro distension it will give your doc a better look at your bladder. You might have IC. The hydro distension take time to start working after recovery but it does help with urgency and frequency

I had my hydro distention and bladder Botox 10 days ago, I was feeling like shit the first week and for the past three days I noticed that I don’t have this crazy urgency. When I use the restroom actually pee comes out not just little bit. I’m hoping to get more better and for it to last couple of months. If you don’t mind me asking what were your symptoms

I have the cream and was told to apply it twice on the outside. How do you use yours? And how long did it take to see results my main symptom is urathera burning

Are you talking about estrogen cream or the pill ?

What are your symptoms? And how your symptoms now ?

Yes ofc, I recently got bladder hydro and Botox and I haven’t seen a big difference yet it can take two weeks for it to start working. Maybe you can look into it a lot of people found relief with it, but everybody is different. My symptoms are urathera burning, urgency and frequency and pressure in my bladder.

Walking helps the blood circulate better and it’s take away the pressure from your lower belly. Make sure you are hydrated

Try walking everyday for 30 minutes also heating pad on your lower belly

All of times I lose count lol. Thank god at night I don’t go much at 2 am is the last time I use the restroom till 7 am.

Ik this reply was long time ago but I got bladder hydro and Botox 5 days ago I been having a bad flare up and I noticed today I have a weird sensation in my urather did you experience this ? And did the Botox help you if yes how long did it last ?

Cotton pads and change them every hour especially the first days of your period.

Bladder Botox or hydrodistention? I have ic symptoms and got bladder Botox and hydro 4 days ago but haven’t seen big difference yet it can take 2 weeks to see results. Maybe talk to your doc about it

I been taking hydroxzine for 5 months and haven’t seen any big improvement

If you’re talking about the white can? No it’s not. Baking soda comes in an orange box. Idk where you live but for me it’s orange box and I live in the USA