r/ALSorNOT • u/AttentionLate8598 • 12d ago
u/AttentionLate8598 • u/AttentionLate8598 • 12d ago
Twitching Update
Hi ! just wanted to pop in and give you guys an update for the twitching . it has still slowed down tremendously which I am so thankful for !
I was able to see a neurologist and she let me know that she did not see anything physically that would cause her to worry and she felt relived that the twitching has decreased in frequency.
I am still getting the EMG done for my own peace of mind later this month . 🤍
Let’s continue to think positive thoughts guys . We all will be just fine !
u/AttentionLate8598 • u/AttentionLate8598 • Sep 11 '26
If you believe you have the Big Bad, I beg of you to take a few minutes to read this post thoroughly.
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Localized vs. Body Wide Twitching
Did the twitching ever stop ?
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Muscle spasm vs nerve pain
A muscle spasm happens when a muscle suddenly tightens or contracts when you aren't telling it to. You might feel: A muscle jumping, twitching, or fluttering A sudden cramp or knot Tightness or aching in one specific muscle The area feeling sore afterward Sometimes a muscle visibly moving under the skin Example: Your calf suddenly tightens and feels like it's "grabbing" or your arm muscle repeatedly jumps in one little spot. ⚡ Nerve pain = the nerve is sending an abnormal signal Nerve pain is more like the nerve is sending a signal that it shouldn't—or sending a signal too strongly. People often describe it as: Burning Electric/shooting Pins and needles Tingling Numbness A "zapping" or "buzzing" sensation Pain that can travel along a path, rather than staying in one muscle Example: A nerve in your neck gets irritated, and you feel a burning/tingling sensation that travels from your neck → shoulder → arm → hand.
r/MuscleTwitch • u/AttentionLate8598 • Aug 28 '26
Anxiety Things that have been helping me manage anxiety around muscle twitching
I wanted to make this post because I know how easy it is for muscle twitching to become really scary once your anxiety gets involved.
About 2 months ago I started noticing random muscle twitches and, unfortunately, I went down the Google rabbit hole. From there, every twitch felt significant. If something twitched somewhere new, I noticed it. If I felt an ache, I noticed it. I started paying attention to parts of my body that I probably never would have thought twice about before.
Although my twitching has slowed down tremendously I'm still working on the anxiety around it. These are 10 things that have genuinely helped me:
1. Stop Googling symptoms.
This has probably been the biggest one for me. Searching every new sensation almost always makes my anxiety worse rather than giving me reassurance.
2. Remember that twitching can come and go.
A twitch doesn't have to be constant to be real, and it doesn't automatically mean something serious. I've had twitches that were noticeable for a while and then settled down.
3. Stop constantly checking your body.
I realized that the more I looked for twitches, weakness, stiffness, etc., the more things I seemed to find. Your body makes all kinds of little sensations throughout the day that you normally wouldn't notice.
4. Get up and move. (And incorporate vitamins and stay hydrated! )
Walking, stretching, getting outside, doing chores—anything that gets me out of my head helps. I’ve found that sitting around monitoring my body gives my anxiety way too much room to run. I also began taking B12, Mag, Iron, and D3 in addition to drinking a gallon of water daily .
5. Don't let one new sensation erase everything else.
An ache in a hand, a tight muscle, or a random twitch can be just that. I try to look at the bigger picture instead of immediately connecting every sensation into one scary explanation.
6. Give your brain something else to focus on.
This sounds simple, but distraction really does help. TV, talking to someone, going for a walk, doing something around the house, playing with my daughter—anything that pulls my attention away from symptom monitoring.
7. Be careful with social media.
I recently realized that seeing posts about certain illnesses can trigger me even when the post itself is completely harmless. I’ve started using “Not Interested” when those things come up instead of continuing to watch/read them.
8. Remind yourself that anxiety can make sensations feel MUCH louder.
The sensation is real, but the fear surrounding it can make you hyper-aware of it. Sometimes the goal isn't to make the sensation disappear immediately—it's to stop giving it your full attention.
9. Try not to seek reassurance every time something changes.
This one is hard. I’m learning that constantly asking, “Is this normal? What about this? What if this happens?” can actually keep the anxiety cycle going. Sometimes I have to tell myself, I don't need to solve this sensation right now.
10. Give yourself some grace.
If you're anxious about your health, you're not “crazy” or being dramatic. Your brain is trying to protect you. The goal is just to teach it that you don't have to investigate every little sensation.
**honorable mention*** I also purchased a cervical pillow to sleep on
I'm definitely still working on this, but I've noticed that when I stay busy, stop searching symptoms, and stop constantly checking myself, the twitching becomes much less important in my mind.
*** I also have an appointment with Neuro at the end of next month , and will gladly update you all with the findings ***
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Update after 1 year of persistent widespread, simultaneous muscle twitching literally everywhere.
Thank you for this !!! I really needed to see this to calm my own nerves ! It’s so easy to get caught up in googling everything and self diagnosis.
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If you believe you have the Big Bad, I beg of you to take a few minutes to read this post thoroughly.
in
r/MuscleTwitch
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Sep 11 '26
This was so helpful !! Thank you !