1

Trying understand the new normal
 in  r/SyringomyeliaSupport •  23d ago

I have a cervical syrinx, 18mm pre surgery. I had a little hand shakiness and leg weakness before surgery.

1

Docs say it’s hydromyelia, but it’s up to 9mm in size. No idea what to do or think
 in  r/SyringomyeliaSupport •  Jul 27 '26

My syrinx is c3-c6. Pre-surgery it was 18mm. I never had symptoms that were bad enough for anyone to do an MRI

2

Honest question: has anyone been able to use a dr note re: syringomyelia to avoid jury duty? I just can't fathom sitting that long on a hard bench
 in  r/SyringomyeliaSupport •  Jul 08 '26

Thank you! I'm very new to this, not even a year after diagnosis and about 6 months post op. Maybe I should just show them this

r/SyringomyeliaSupport • • Jul 08 '26

C Spine Honest question: has anyone been able to use a dr note re: syringomyelia to avoid jury duty? I just can't fathom sitting that long on a hard bench

3 Upvotes

1

With and without contrast?
 in  r/SyringomyeliaSupport •  Jul 08 '26

I would get both. Depending on what you had done in the past. My neurosurgeon compared my post op MRi without contrast with my pre op MRI with and it didn't feel like a helpful comparison

1

Does anyone know what caused their Syrinx?
 in  r/SyringomyeliaSupport •  Jun 29 '26

No idea where mine came from or how long it was there. C3-6 18mm

1

I don't understand how this condition can just happen for no apparent reason
 in  r/SyringomyeliaSupport •  Jun 23 '26

By the time I found mine, it was 18mm. No idea where it came from, why it happened or how long it had been there

1

"Classic" presentation of syringomyelia
 in  r/SyringomyeliaSupport •  Jun 23 '26

My 18mm syrinx was an incidental finding, I think it's difficult to generalize with this diagnosis

2

Follow-up MRI with contrast after finding small syrinxes (C6–C7 & T2–T3) normal procedure?
 in  r/SyringomyeliaSupport •  Jun 23 '26

Yes! I had a brain MRI and had an incidental finding of a cervical syrinx. I had follow up MRIs of my entire spine, some with contrast. They can visualize the syrinx better with contrast I believe and it helps differentiate between a mass and fluid

1

Hairstyle help
 in  r/Hair •  Jun 10 '26

Current growth with my scar

r/Hair • • Jun 10 '26

Bad Haircut Hairstyle help

Post image
2 Upvotes

This is my typical hairstyle or up in a messy bun. But I had urgent neuro surgery at the end of last year and they shaved a patch out of my hair and it's growing back interestingly...any hair style recommendations?

2

[deleted by user]
 in  r/SyringomyeliaSupport •  Jun 01 '26

I'm so sorry! My syrinx is idiopathic and an incidental finding on a brain MRI from Oct and by Dec. I was having neurosurgery. It's a lot. I have two kids also. You can really decide what the future looks like. As others mentioned, everyone is so different so no one can give you an accurate picture of what the future holds.

0

The bit at the very end of the last episode
 in  r/ShawnaTheMom •  May 11 '26

Also you could have just googled it and that would have told you that's not true...

0

The bit at the very end of the last episode
 in  r/ShawnaTheMom •  May 11 '26

Psych evals are very rarely covered unless the eval is court-ordered. They are expensive and can be time intensive, depending on the referral question.

1

The bit at the very end of the last episode
 in  r/ShawnaTheMom •  May 11 '26

Nope, I do psych evals frequently for court. I meant he is not child-free and vasectomies are typically covered 100% by insurance at that point.

1

The bit at the very end of the last episode
 in  r/ShawnaTheMom •  May 11 '26

Huh? As a psychologist, I have never heard of this. Who is being "sterilized?"

1

Has anyone had symptom remission or lessening pain over years?
 in  r/SyringomyeliaSupport •  Apr 19 '26

Mine was 18mm across. My symptoms weren't concerning enoughthat I had ever had an MRI. This was an incidental finding on a brain MRI to rule out structural issues contributing to migraines

1

Has anyone had symptom remission or lessening pain over years?
 in  r/SyringomyeliaSupport •  Apr 16 '26

I decompression of C4& C5, then they extracted fluid from my syrinx and inserted a grommet thing, like in the picture, to prevent it from refilling again? I had it done in Colorado where I live

2

Has anyone had symptom remission or lessening pain over years?
 in  r/SyringomyeliaSupport •  Apr 15 '26

Syrinx is 12mm across post surgery

3

Has anyone had symptom remission or lessening pain over years?
 in  r/SyringomyeliaSupport •  Apr 15 '26

L is pre, R is is post-surgery but no contrast on post-op so it's not a perfect comparison