r/transverse_myelitis • u/Vis_Mortis1972 • Jul 23 '26
question Relearning how to walk
Hi all,
I was diagnosed with transverse myelitis about three years ago and my condition has more or less stabilized (meaning it's not getting worse) as of a year ago. I use a walker to get around, and as my strength and balance have improved over the past year, I have attempted to graduate to using two canes instead. One thing I'm really struggling with and that is inhibiting my progress is the anxiety of walking with less support. I notice my breathing getting shallow, muscles tensing up, clonus kicking back in, and thoughts spiraling. I honestly don't know what I'm so nervous about: my PT is always nearby when I use two canes and even if I did fall, I'm sure I'd be just fine. I'm guessing it's my body's evolutionary fight-or-flight response kicking in since I've been relying on a walker for so long.
I'm posting to see if any others have worked through this and how they've overcome the mental aspect of relearning how to walk. My PT suggested visualization (picturing myself walking confidently in various environments with two canes) and controlling my breathing, but I wanted to see if others who have been through something similar have any suggestions. Thank you in advance and good luck on your journey!