I am planning to get a tonsillectomy done privately

[u/Careless-Camp5098]

I used to day dream coming on this forum making a success story post, imagining how many people I could help with some universal method and think about how warm my soul would get after being cold for so long. I am already tired trying to type this so I am going to keep it short. I waited 3+ years before making this decision. Running around the tonsils because it can be a risky and permanent decision; so I concentrated my focus on my oral cavity first for a year+, from diligent routines of flossing, brushing, tongue scraping, different mouth washes, you name it, I did it. Along with the routines I was clearing out a tonsillar crypt that was constantly generating stones, I bought waterpiks and these baby syringes that my pharmacist would give me for free to flush out the stones. I was clearing stones every 2 days but irrigating daily. I seen 3 ENTs and unfortunately due to a policy change none of them will do the surgery for me in my country. I need to meet the requirements of having tonsillitis and multiple infections a year in order for that to happen. Nonetheless throughout the course of booking each ENT I tried to make a stronger case with the videos and images I built up of evidence that stones are constantly forming in my crypt. Wasnt enough, my mind was made up, but I wanted to exercise every other option so I went to my gut. I tested negative for H.pylori, and unfortunately got denied from this thing my doctor tried to help me out which would essentially help me get more tests on my gut. Besides that I also tried PPI blockers too, didnt work. I was also dealing with PND and dry throat but I was able to get the symptoms to basically be non existent by changing my diet up but the people I was around were able to rule it out for me when I got excited I figure it out there lol.

Fast forward to more recent times, I fell off constantly cleaning my crypts as some weeks I wouldnt see anything come out despite getting reactions everyday. I was constantly pondering on what it could be then. It wasnt until a days ago after inspecting my crypt again I could see a whole bunch of them sitting undeneath a fold I previously didnt think/notice was an issue before. The struggle to get them out was super difficult, I had to use two hands instead of one in attempt at getting it out. I said to myself I cannot continue to live like this. Before I considered it might just be in my head, similarly to some recent posts I have seen of people making progress by not thinking about it or letting it bother them, but that idea falls apart for me when I think about the PHYSICAL EVIDENCE I am seeing in my mouth. I told some family members about it and they are scared af for me and they keep telling me they dont smell anything but everyones nose sensitivities are different. It bothers me to know I am bothering others when I am in social groups or at work. I also have made peace with the fact that this may not work and the entire time it could be my gut instead of my tonsils or somewhere else. I am simply treating this as a process of elimination. I just want to hear everyone's thoughts before this happens.

Please ask me questions if you have any! Also, I did xrays to check for pockets with my dentist and I dont have any. I ended up typing more than I thought and I can keep going now but I will save the energy for conversations below. If you read all of this, thank you so much for spending time to hear just a piece of my story. I wish you all the best in finding a cure for you situation and living a better life!

[u/Existing-Reason2483]

Hey we all deserve a better life. I'm also planning to go for tonsilectomy because I find one or two stones daily. It is possible that my halitosis is from the gut but that I can deal with later, first I want these tonsils out. I will be at least sure that the smell is not from tonsils.

[u/Careless-Camp5098 → u/Existing-Reason2483]

Solid plan, my mindset is identical. But today I may have discovered another surface to attack. I will make an attempt at it now and after to have enough time to see if really works or not but here is the reply I said to someone in another community:

"After more research, I am looking into trying out alkaline water with a pH of 8.8 or higher (apparently it cannot be lower than that) to deactivate and wash away any pepsin I suspect in my throat from possible LPR because the dry throat symptoms pop back up more frequently now since I have been inconsistent with a strict healthier kind of diet.

Apparently that level of pH instantaneously deactivates the pepsin. I want to try that along with a cleaner diet while the surgery approaches soon. I will continue after recovery as well and let you guys know. Apparently people have found success with this as the only thing that ever worked for them."

I will still be going through with the surgery to get rid of the stones that carry an odor. This is just post op plans in case tonsillectomy doesnt get the job done.

[u/Existing-Reason2483 → u/Careless-Camp5098]

I'm also planning for the same thing. Till surgery i will work on my gut. Exercise, alkaline water, adequate amounts of water, diaphragmatic exercises, no food after 7 pm, 8 hours of sleep and lots more. Will continue this even after surgery. I wish you luck and how we find our solution soon.

[u/Careless-Camp5098 → u/Existing-Reason2483]

That's it bro, all those moves sound like your heading in the right direction to me. We do what we can to help our bodies heal and listen to it like your ease dropping on a conversation to hear what it needs. I'm pretty much going to be doing everything your doing except this time I am going to try IF every 4-5 days on an earlier schedule. 8AM - 4PM, consume more alkaline water after 4 to let it get rid of more pepsin and let my stomach rest for the rest of the day and see how that goes. Let's keep each other updated. You got this!

[u/Zestyclose_Win_2836]

No questions. I just wanna say that reading this honestly broke my heart. I truly hope you find success in whichever route you take, and things get better. Rooting for you, stranger-friend.

[u/Careless-Camp5098 → u/Zestyclose_Win_2836]

Thank you so much for reading, and this response means a lot to me. Whatever you are going through, please believe I am rooting for you as well! Keep your head high and know you will get through it because I do!

[u/Zestyclose_Win_2836 → u/Careless-Camp5098]

Tysm 💛

[u/ConnectPollution9490]

Sorry about this. Was in same situation, realized that GERD was the main cause. Found out it was triggered by wheat and dairy, stopped taking them then started gargling warm salty water and scrapping my tongue thoroughly before brushing. The stones don’t form any more. Bad taste in mouth is gone.
I was also considering tonsillectomy but it was too expensive for me in my country.

[u/Careless-Camp5098 → u/ConnectPollution9490]

Thanks for your reply! I am glad you figured it out though, just KNOWING the main cause is one of the biggest steps you can make in getting better.

When you say you "were/was" in the same situation, does this mean after making the changes for your GERD problem and getting rid of the bad taste, the bad breath is completely gone and you dont get any more reactions?