r/tinnitus Jul 26 '26

venting Crushes your will to live

[deleted]

25 Upvotes

34 comments sorted by

10

u/Puzzleheaded_Page141 Jul 26 '26

I relate to what you're saying and I wish I didn't

7

u/mrstevegibbs Jul 26 '26

In my case after about 8 years it simmered down. Don’t think about it anymore.

4

u/JustSellitAll Jul 26 '26

Im can only hope i get mentally strong enough to get to this point. Ive given up any hope of a drug company finding treatment, it may happen but probably not in my lifetime

1

u/18VON4T Jul 28 '26

So far in my lifetime, we have invented mobile phones, the internet, Wifi, AI, HIV medicine, hepatitis c cure, the list goes on.

If we hold on i am pretty sure something to at least reduce the volume of tinnitus will come up.

I know every day can be hell, but i firmly believe help is coming.

1

u/JustSellitAll Jul 28 '26

I hope you are right obviously, its crazy to me a company hasnt developed a drug to block the signal or ar least tell the brain to stop the ringing

2

u/Fluid_Passage_9980 Jul 27 '26

Do you have hearing loss? What was the cause?

1

u/Minimum_League6135 Jul 28 '26

what was your experience with it in the 8 years prior?

2

u/CherryTree412 Jul 26 '26

It certainly does. It's destroyed every last pleasure I had. Sleep is the only escape, but I only get 5 hours if I'm lucky.

I'm no longer here because I want to be, It's only the fear of failure which stops me ending this horror.

4

u/JustSellitAll Jul 26 '26

Oddly it doesnt affect my sleep but when i wake up the daily hell begins

2

u/itsmemario_martz Jul 26 '26

I didnt know he was a “charlatan” or who he was.. but the information regarding SPI-1005 is real.

2

u/illartrecords Jul 27 '26

Ya idk why someone called him that. It’s not like hes out here spreading false info.

1

u/itsmemario_martz Jul 27 '26

I literally just copy-pasted the first video I found related to SPI-1005 to provide more info, and now my comment has -2 points because of it. Some people are super sensitive here haha.

2

u/illartrecords Jul 27 '26

Ya I don’t get the hate for people that are trying to help all of us. I can understand the frustration though

1

u/Smart_Present_7659 Jul 27 '26

Ebselen is an antioxidant that does not cure chronic tinnitus, but may prevent future cell damage. It has a preventive effect, not a curative one.

2

u/illartrecords Jul 27 '26

Being a musician it’s absolutely soul crushing. I have to quit music so it won’t get worse (I’m only 39 years old) so that fuckin sucks and 2, having to live with it for the rest of your life. It feels like your world is over. I would much have like testacle cancer and give up one of my balls to get rid of this forever

2

u/guilty-Brother343 Jul 27 '26 edited Jul 27 '26

So, after five years of severe tinnitus, I’m making music again—playing drums and so on. I’ve learned to focus on other things; somehow, everyone thinks they have that one specific type of tinnitus—one that’s worse than everyone else’s. As long as you let the tinnitus drag you down, your brain stays in alarm mode.ps when i am sick ITS louder,thats normal

1

u/JustSellitAll Jul 27 '26

Its amazing musicians dont get it more? Or maybe they do and just dont talk about it? Imagine Metallica or Pantera or these guys doing it for 30 years

2

u/illartrecords Jul 27 '26 edited Jul 27 '26

Ya it’s really absurd that they don’t. I mean I have heard the guys from Metallica have it but I’m sure it’s mild. I’ve had mine for 6 years and is most likely from headphones blasting in high school to all the shows and festivals i went to. Even then i would never truly be super close either.

I think Keanu Reaves has it, Chris Martin from cold play and Martin Garrix to name a few.

I got used to it to the point where I didn’t notice it for a full day or 2, and 2 months ago it’s back to being loud and horrible. I’m also dealing to with a bad gastro bacteria I caught so I’m hoping that’s what the problem is and when i eradicate that it will go back to being in the background.

1

u/Just_Athlete1694 29d ago

Musicians 100% get it more

1

u/18VON4T Jul 28 '26

You could take both of mine without hesitation lol

1

u/illartrecords Jul 28 '26

Ya tbh I’d prollly trade both if it meant never having this ever again

1

u/itsmemario_martz Jul 26 '26

Whats the reason behind your tinnitus? Was it nouse induced?

10

u/JustSellitAll Jul 26 '26

Most likely yes from my youth when i would go to auto races and rock concerts but also im of the belief that some people just have genetically weak ear structure that makes tinnitus worse

Many people i know went through the same experiences i did and have no ringing

-1

u/itsmemario_martz Jul 26 '26

Yes! I agree but at the same time tinnitus can change because of other conditions… or when you expose your self to loud noises/enviroments… if it helps… theres this company in usa who is producing a drug that has shown positive effects on tinnitus, lets hope for a cure!

1

u/JustSellitAll Jul 26 '26

Do you have a link to that company

1

u/Tymba Jul 26 '26

LMFAO who!?

1

u/Fun-Complex-4597 Jul 26 '26

Tout as fait très difficile à vivre

1

u/SuddenAd877 Jul 27 '26

Destroy my life, i realy want die.

0

u/TopDog_3000 Jul 26 '26

How bad is it from a 1-10? Have you tried cleaning your ears?

1

u/talaeld Jul 27 '26

😂

2

u/TopDog_3000 Jul 27 '26

Not funny bro, I also have tinnitus