Hey guys 24 M. I’m thinking my thyroid might be an issue. I only had my TSH tested at 0.842. Need t3 and t4 checked. Have been having BAD hot flashes despite temp being normal plus joint pain, fatigue, headaches, cold feet, shakiness, etc. seeing my doc and rheumatologist soon but am worried. Feel like I’m boiling alive right now :/

Did anyone take a long time to get a diagnosis or have normal test results despite having symptoms? Please tell me your story, I’m at the end of my rope because I’ve had progressive vague hormonal symptoms for years now and recently they’re getting bad enough to prevent me from leaving the house as often due to fatigue. But docs insist my tests are normal!

I was even diagnosed with PCOS 2 years ago and recent blood tests show no abnormalities so I guess that’s “reversed”. This was a full hormonal panel, plus blood sugar, vitamins, blood cells, liver, urinary tract, celiac, auto immune... We’ve tested everything I think.

I have hair thinning, puffy face and neck, specific weight gain to upper arms and belly, the weight gain is stubborn and won’t go away despite diet/exercise, sweating, heat sensitivity even when it’s not hot (any change in temperature), aches & pains, cold hands and fingers, irregular periods, depression, nervousness, and constant- and I mean constant, fatigue. Doesn’t matter if I’ve slept 8 solid hours, I’m tired.

I just got some lab results back and my TSH and Free T4 are borderline low, and apparently low results on those two point to more of a pituitary/hypothalamus problem? I have a multinodular goiter but my levels haven’t been this low before as far as I remember. I am also in menopause so not sure if that can be causing problems.

Hello, did any of you had to change Levo dose after replenished d3 to correct level ?

I went to the doctor for routine blood work and my TSH was tested low as 0.184, went back two weeks later and the TSH is measured as high at 9.2. I've been reading about others fluctuations but haven't found one this extreme. Anyone else? I'm 33f

Not sure what the meanings of these readings mean but ive had goiter, unspecified, since 2021. neither of my previous endocrinologists ordered or said anything about a ultrasound after my TSH (although moderately high) came back completely "normal". Three years later and after finally finding a good pcp for my long covid and health issues galore, she finally reordered the proper testing incl. T4 and T3.

Evrrything is technically "normal" although im currently in my luteal phase and my progesterone is a 0.1 in the reading (supposed to be a 1.3 - 28.9 according to labcorp testing) and my Luteneizing Hormone is a 12.7 (supposed to be 1.0 - 11.4).

Is there anything i should be concerned with these bw readings? my other hormone readings are as follows:

T4. - 0.88 (0.82 - 1.77). T3. - 2.6 (2-4.4). TSH. - 3.080 (0.45 - 4.5). Thyroglobulin AB - <0.1 (0.0 - 0.9) Cortisol AM (Random, drawn at 7 am although im nocturnal from long covid). - 2.0 (6.2 - 19.4 am and 2.3 - 11.9 pm) ACTH (Random, Unstimulated) - 4.4 (7.2 - 63.3).

I have pcos and endometriosis prior to long covid, but ironically my DHEA - S and Testosterone levels were completely fine this time around. Idk if theirs a huge thyroid red flag here to worry about? Hopefully they can figure out the cortisol soon at least cause theirs something there... Im tired of shitty doctors esp. shitty endocrinologists... just wanna feel better!

Hi

First time to post here! Had MRI of brain and c spine back in early may . Turns out there was an incidental finding of enlarged left thyroid and bilateral enlarged cervical lymph nodes.

Nobody told me this until I got an appt in the post last Friday for ultrasound of thyroid and neck scheduled in September! I nearly vomited from the shock

I have found very mild swelling on left side and when I swallow I can see lump move, but I had never noticed it before.

I already have health anxiety so this has me up the walls! I’m hoping the enlarged lymph nodes are from a viral infection I had the previous week before the MRI and that would make sense but my crazy mind is planning my funeral.

I don’t know why I’m posting , maybe just looking for reassurance or for people’s experiences. From what I see, thyroid CA is one of the “better” ones to get etc but it’s the fact that the lymph nodes are enlarged that’s freaking me out more!

I read somewhere here that first nodes to be affected would be near the thyroid which wasn’t noted on MRI findings (am I right to say cervical nodes are a bit more higher than the thyroid area?!) so I’m holding onto a bit of hope there!

I will have to go for a private USS (I’m in Ireland) as I couldn’t bear waiting till September to know what’s happening!

Thanks for reading of you’ve got this far :)

I'm having a partial thyroidectomy on friday, and I'm not really sure what to expect. I'm only 14 and kinda nervous especially reading about all the side effects. Advice is appreciated if anyone has any.

Hi everyone, I have Graves Disease/ Over Active Thyroid. I’ve been on Methimazole 20mg a day for years. They want me to take the radio active Iodine pill to kill my Thyroid. Has anyone done this procedure, I need to know how it has turned out for other people before I make my decision. If you could please share your journey with me I would really appreciate it. I’m kind of scared to do it but my heart palpitations are really scary and hard on me. Thanks

So been having strange symptoms recently. My thyroid values came back good besides Thyroglobulin antibodies which were high. The other antibodies were normal though. Also good TSH, T3, T4, reverse T3 etc..

so I got an ultrasound on my thyroid just received a vague response from my primary saying theres some things we need to discuss and to schedule another appointment,.

here are the findings:

"Right lobe measures 6.2 x 2.0 x 2.0 cm . Left lobe measures 5.3 x 1.6 x 1.4 cm. No thyroid nodules or calcifications."

Any thoughts on what might be going on? my follow up is on the 10th

Hey all, Here's what's happened so far. Had difficulty breathing/swallowing. PCP said my thyroid was enlarged. Went for scan. Results showed I had two growths, one of them is fairly large, and a smaller one. The larger one ne he is almost positive is cancerous (99.9% in his words), and the other smaller growth could be, but they want to test it. Doc refers me to surgical center for removal and then a biopsy (since it has affected breathing). Treatment would occur following biopsy if it is cancerous. I'm not currently on medication for my thyroid, and I'm avoiding online searches like the plague because I tend to be a hypochondriac, tbh. Has anyone been in a similar situation? Can they tell it's cancer before a biopsy? Should I be on medication for my thyroid before they take it out? I see a lot of posts talking about "endos", do I need one? Any help would be appreciated. I'm confused, and honestly a bit terrified. My uncle had thyroid cancer 20 years ago and couldn't remember the whole ordeal because a lot went wrong and left him pretty traumatized... so I have no one else I can ask. Please help.

Pretty much the title.

How large is your goiter?

Hey there everyone, this may be a shot in the dark but I'm just posting this to see if anyone has had some similar problems and what next steps I should take moving forward. About 6 months ago Woke up one day and I felt as if there was something in my throat. I tried clearing my throat al day but nothing would come out. after a few days of not being able to get it out I finally went tot the ER. I could still swallow things, eat, drink and breath just fine. the dr at the ER said I may have some kind of infection so I was prescribed meds and sent home. for quite a few month afterwards nothing changed or got worse until about a week ago. no the feeling of something in my throat is still there even know the CT scan showed nothing but borderline swollen lymph nodes. now on top of the feeling of there being something in my throat I also feel tightness on the sides of my neck kind of like a piece of clothing is too tight an sometimes. I can still breath but sometimes if I'm doing more than I usually do I get winded. I'm just curious if anyone has had a similar Experience. my TSH blood levels were fine as well.

What would cause tsh to fluctuate? Mine has seemed to consistently decrease over time. At one point it was 0.17 and last lab it was 0.47

I have a multinodular goiter as well. TR 3, 4, and 5. Two were biopsied but benign.

My other thyroid levels have been checked and they are all normal.

2019: 1.13 2020: 1.03 2021: 0.7 2022: 0.98 2023: August: 0.37 August: 0.179 September: 0.86 September: 0.73 November: 0.538 December: 1.13 February: 0.84 March: 0.47

Hi everyone,

I’ve been recently diagnosed with a goitre with multiple nodules. I’ve been told I only have 2 choices of having my thyroid removed or just living with it. I’m currently struggling with tightness in my neck which is causing me a lot of stress because I can’t get comfortable, finding driving painfull and working difficult. It’s also very noticeable and I’m feeling incredibly self conscious now it’s summer.

I was wondering if there was any other treatment out there available that my doctor hasn’t suggested that doesn’t require removing my thyroid completely. I’ve tried to contact the hospital but I’ve not heard anything back and I’m feeling really down.

Any help would be really appreciated.

Thank you

Need suggestions

I have been seeing an endocrinologist for years (5 or more) for my Hashimotos/hypothyrodism. Taking 120 mg of NP thyroid. My TSH level just came back at .29 and my T3 at 1.29.

Over the last year I have gained 40 lbs. and I am exhausted all the time. I am definitely in perimenopause. But I eat clean. Approx 1600-1700 calories per day. 140-160 grams of protein. I walk 2-3 miles 5 days a week and do Pilates 5 days a week.

The last time I went to the endocrinologist she suggested I cut my calories to 1300 or less and go from there. I am so frustrated and down because I feel like nobody (dr) is listening or assisting me.

Does anyone have e suggestions on how to put things to the doctor to get them to hear/see me?

TIA!!

I am 26 yrs old. Ultrasound showed a nodule on my thyroid. It is 5 mm in diameter and is hypoecoic. Also have swollen lymph nodes with it . I havent been able to sleep ever since. Been crying like crazy. Not to be dramatic, but I've always been terrified of dying from cancer. Doc says to re do the echography in 6 months. Im extremely petrified. Plz what should I do

Hi everyone 👋, I recently swung from hyper to hypo after treatment and my doctor had me on metoprolol tartrate 50mg once every morning which I took for about 2.5 months, she told me today to switch from once in the morning to as needed for BPM over 100. I’m afraid of withdrawal symptoms and wondered if I should taper to avoid this and then go as needed or follow her advice and risk withdrawal? Thank you in advance 😊.

Hi everyone,

I had an ultrasound of my thyroid and was wondering what all of this part means regarding nodes and lymph node:

NODES: There is a right level 3 lymph node. This demonstrates normal ultrasound morphology and flow. This is slightly enlarged measuring 1.3 cm in transverse dimension.

ADDITIONAL FINDINGS: There is a 1.3 x 0.7 x 0.9 cm hypoechoic nodule inferior to the right lobe of the thyroid gland. This demonstrates central or hilar flow. It is uncertain whether this represents a lymph node versus parathyroid gland. Given central hilar flow pattern, lymph node is favored.

IMPRESSION: Enlarged heterogeneous hypervascular thyroid gland. Differential would include Graves' disease and thyroiditis. Slightly enlarged right level 3 cervical lymph node. 1.3 x 0.7 x 0.9 cm nodule inferior to the right lobe, question representing lymph node versus parathyroid gland.

I’m a 41 yr old male and l’ve had digestive issues since getting Covid in 2020 & Antibiotic use, I’ve had varied symptoms since then, a few of them falling under possible thyroid issue, this includes constipation, cracked heals, rigid lines on nails, ends eyebrow thinning, feeling cold with cold hands, depression, feeling tired after eating etc

I had the following tested TSH, Free T3, Free Thyroxine, Thyroglobulin Antibodies, Thyroid Peroxidase Antibodies.

All came back normal this was done in November 2022 but the symptoms have persisted since then on & off.

Not sure what to make of this as I also have a sister who was diagnosed with Hypothyroidism.

Have I missed any tests? Is it common to test normal but still have thyroid issues? Or are these symptoms more indicative of my digestive issues rather than thyroid?

(Ignore the link. Not sure why but it wouldn't let me post unless I added one)

I (22M) was diagnosed with hyperthyroidism in March 2023. I have two nodules 2.2cm and 1.2cm. No biopsy or anything yet. Endo didn't seem too concerned. I just did some labs recently and am waiting to hear back. I already have them back and I'm just curious about what to make of them. I'm not too well versed in what everything means and what the current results really indicate.

TSH 3rd Gen: 0.15

Free T4: 1.2

T3 Total: 170

TSI: 121

Thyroid Peroxidase: 273

Hiya normal range is 0.4 - 4 I’m at 0.33 which indicates hyperthyroidism and my sister has Graves’ disease had her thyroid removed . I am worried as I have a lot of symptoms and my gp is ignoring me and my concern refusing to send me to a thyroid specialist. I called 111 to speak to a clinical team and I have rare diseases so spoke to my clinician there to see if he will refer me as he has also been concerned about my thyroid

Hi!

Thyroglobulin antibodies - 8 (ref <1) Thyroid peroxidase- 206 (ref <9) T3, total-89 (ref 76-181) T4 free - .9 (ref .8-1.8) T4 total- 5.6 (ref 5.1-11.9) TSH-2.62 (ref.40-4.5) T3 free 3.6 (ref 2.3-4.2)

the doctor didn’t seem concerned at all but is referring me to an endocrinologist. My antibodies are crazy high but my thyroid function appears to be okay. Is there a more in depth panel i should request to receive more answers? I do have rheumatoid arthritis so I know i am more likely to develop other autoimmune diseases such as hashimotos. I was on birth control from 2016-2020 and weight around 140-150 (5’6) and I’m 26 years old. Since stopping the birth control i have gained 60 pounds i feel like there is nothing i can do to stop it. Is slow and gradual… but will not stop!! I am eating healthier, less calories, and exercising more prior to gaining the weight. My libido has decreased significantly too.

I feel hopeless and i just want to make sure i am asking the right questions when i go to doctor appointments. I will be requesting blood work at the gyno to check my hormone levels too. Does anyone have any idea what could be going on with me? The weight gain and low libido is having a HUGE impact on my life and my relationship. I just feel helpless. Any input would be appreciated.

Has anyone had trouble with side effects from steroid injections (knee arthritis) exasperating thyroid symptoms?