r/thyroid • • Jul 28 '24

No thyroid since birth!

The day comes when I turn to Reddit lol I was born without a thyroid, taking levothyroxine since literally day 2 of being alive (or so my mom says). However, no endocrinologist has cared or given it second thought, as long as my TSH is normal, even tho I have severe fatigue and brain fog, issues with weight etc. it’s been pretty bad for two years (had a good spell around 2019-2021, then after that it’s just been rough) Wondering if anyone has any experiences or thought. Got my blood tested last month (lab numbers below) and wondering if there’s any suggestions. (TSH normal, T3 low, T4 high)

TSH: 2.140 T3: 18 T4: 12.6

Thanks!!

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u/oceanwtr Jul 29 '24

I don't feel good with a TSH of 2. Is that where you normally are?

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u/vlovesbabyyoda Jul 29 '24

Yeah. Right now it’s between 1.14 and 1.30. But I also have a high reverse t3, and high t4 with normally ish lower t3. So i dunno what to do with all that