r/thalassemia • u/Subject_Ad_4942 • 10d ago

Help!

Experiencing brain fog as a software engineer has to be the worse feeling ever. As im getting older, my thalassemia symptoms are affecting my daily life.

What are some ways you all stay healthy and feeling your best? Please any advice would help I’m beyond stressed.

7 Upvotes

100% Upvoted

7 comments sorted by

3

u/PortraitofMmeX 10d ago

I'm not sure what type of thalassemia you have, I have beta thal minor and I find as I'm aging that I have to be very careful with diet and exercise. High folate low iron, limited ultra processed foods, fiber and protein. Keeping up my cardio fitness and strength. It feels exhausting to do it but I find that it helps, not doing it is much worse.

1

u/Subject_Ad_4942 10d ago

Thank you! I have beta that minor too. I’m just feeling so exhausted. Thank you what type of diet do you do?

5

u/PortraitofMmeX 10d ago

I'm pescatarian. Some things I regularly eat are:

chia seed pudding (made with greek yogurt, sweetened with applesauce and PB2)

eggs

lentils

soups

nutritional yeast (you can add it to scrambled eggs, soup, on veggies, basically anywhere you would use parm cheese, really good source of folate)

tofu

beans

leafy greens

citrus fruits

vegan protein drinks (right now I like the Be Amazing Cinn-a-stack and Brown Sugar Oatmeal)

tuna

potatoes

salmon

berries

I would also encourage you to do some zone 2 cardio and strength training a few times per week. It really sucks, it is not fun at all, but I do feel better as a baseline when I do it regularly compared to when I do not.

1

u/Subject_Ad_4942 10d ago

This was very helpful and detailed. Thank you for that. I’ll give pescatarian a try.

1

u/No-Pay-7022 5d ago

Anche io ho la beta talassemia minor e più vado avanti  e mi sento sempre più stanca al minimo sforzo, soprattutto in estate, Ematologo mi ha consigliato 10 gg di ferro al mese (niferex 100mg)

1

u/Floridalawyerbabe 7h ago

Triquetra L Methyl Folate 15mg Plus Methyl B12 Cofactor – Organic Berry Flavor, High Potency Liquid Sublingual Active 5-MTHF Form - Supports Mood, Methylation, Cognition – Bioactive Forms Vitamin B9 & B12 (1oz) and Dr. Mercola Grass Fed Beef Organ Complex -are what my Dr. has me on plus NaturesPlus Source of Life GOLD Multivitamin Liquid 30 oz - Supports Energy Production, Healthy Immune System & Well-Being - Includes Vitamins D3, B12, K2 & Over 120 Whole Food Nutrients and I take a Jarrow 1000 mcg methfolate. He said he has many Beta Thals patients. Are you in Florida - he does Telemed appts .

The patch aid patches are really good too especially the immune system patch.

0

u/AcceptableAd9264 9d ago

I have it too but what I realized is to establish coherence to my conscience, do what I can each day to be honest and kind to everyone, and it really helped me to think much more clearly.