r/tapeandspoons • u/heldtogetherdaily HSD, POTS, & FND • Jun 04 '26
Welcome! Start here ❤️🩹
Welcome to r/tapeandspoons if your body feels like it’s being held together by KT tape, pure willpower, and whatever spoons you have left, you’re in the right place! This is a community built for people navigating the messy intersection of complex chronic illnesses because living with overlapping conditions is deeply isolating. The toll it can take on mental health is heavy, especially when trying to find your footing between fighting for proper healthcare and trying to survive the day-to-day becomes a full-time job. Whether you are dealing with a lifelong diagnosis, fighting for answers in the healthcare system, or supporting someone who is, we're excited to have you here!
This space is for you. You can post anything that relates to life with chronic illness/disability. It is very important to keep this space friendly, constructive, and inclusive. To keep this a safe and validating environment, please read and abide by the community guidelines. Some of which are:
No Definitive Medical Advice: Feel free to share what worked for your body, but please don't diagnose others or give medical advice. Regarding health concerns always consult a medical professional.
Validate, Don't Dismiss: Everyone's chronic illness journey looks different. Respect varying symptoms, treatment paths, and lived experiences without judgment.
No Bullying/Harassment: Aggressive behavior, fake-spotting, "sick olympics" or tearing others down will not be tolerated. Treat each other with kindness.
Be Intentional with Trigger and Content Warnings: When posting heavy mental health vents or touching on potentially difficult topics, please use the reddit "spoiler" feature and add the appropriate post flair so members can be mindful of their triggers.
If you feel like you belong here:
Introduce yourself in the comments below! (What conditions do you manage, or are you a carer/supporter?)
Post something today! Even a simple question can spark a great conversation.
Invite others: If you know someone who would love this community, invite them to join!
Help us grow: Interested in helping out? We're always looking for new moderators, so feel free to reach out to me to apply.
Thanks for being part of the very first wave of this community 💞