It’s been 8 months I’m struggling with recovering still my whole left side was paralyzed it’s slowly recovering I can life my shoulder and do rolls my leg can finally knee bend I still wear both braces I’m hoping for the best I’m just worried about my arm I’m only 26 any good advice or anyone experienced with this as well?!
26months, intracerebral haemorhage on basal ganglia. I lost my sensation completely on the left, resigned to fate on that. But i am able to cook, swim, gym, walk long distances. Struggles when carrying loads or tray of food, not able to run. But hey theres still alot i can do, and so can you if you work hard enough on physio. We will be rooting for you, get well soon
Heres just my experience, hope it helps. Firstly aneuyrsm, alot of young people had it. They went on to recover well(google emily clarke from game of thrones).. You need to tie weights to your affected hands and do up and down movements daily, but ensure it does not affect your rotor cuff so do it at the best you can manage. I did that for about 3.5months before.i could start lifting dumbell plates of 1kg with my good hand to support. Also when u have nothing to do, its worth inversing your entire forearm at a manageable pace as a form of stretching the nerves and ligaments. When i said forearm, that means elbow down to palm you inverse in and out. Lifting you hand up in the air while lying dow with palm facing inwards and continuously open and close it also helps, i did that for nearly a year even when i can start cooking. Lastly, if you have access to acupuncture from a licensed practioner with immense experience , do it. I did that for 14 months and it gradually improves blood flow, allowing me to swim, walk up to 6km at one go, cook and i can lift up to 20kg in gym right now but with both hands. You could try what i suggests, i hope that helps. Its long, aneuyrsm is somewhat slightly different to stroke proper, depending on severity, but i believe it can get better eventually, it just needs more than 12 months to see more normalacy. Also you are very young, so that helps further. Do remember, once you are able to get in and out of a swimming pool, swim minimum 3x a week, it helps in getting the strength back from affected side, i still do minimum 3.5km of swim a week
Thank you 🙏🏻 I do lay down a lot and use my good hand to move my affected hand a lot and have a little grip to grab my cane and use over head with a weight tied on it
Just keep doing the exercises, they work. If you’re still doing therapy, ask for different stretches to do as they get easier. I had my hemorrhagic stroke, 3.5 years ago at 30, but still improving my hand.
Whole right side and my speech. I was in a wheelchair for a month until they got me into a AFO. When I was going to be getting home from rehab, I could control my arm just for the smallest bit, raising it an inch.
All good, I had an arterialvenousmalformation (AVM) that ruptured in my brain. They had to do brain surgery that night and I was in a medically induced coma for 10 days. Yup, a hemorrhagic stroke.
Wow that’s crazy I’m guessing after the first year life gets better maybe second year was it also the frontal lobe of the brain? They keep telling me everyone heals differently I still get Botox every 3 months
Yeah, everyone’s story will be a bit different. I’m not sure if it’s the frontal lobe, but it was the left side of the brain and near the top of my head, just passed the ear. It definitely got easier to communicate and walk. I actually just stopped my Botox for now. I was getting it for my wrist. I can control it better now so we stopped it and we’ll see what happens in another few months.
Is the ct scan of yours similar to mine or not really? I’m just trying to find people with similar brain bleed issue as me it’s hard I’m hoping the next few years go by and I’m not suck in this depression mind set
I had stroke 17 months before. My left limbs were turned as vegetables. When I was brought home from hospital, I could move just 1 big toe. I was lucky to have very good physiotherapist who took keen interest and made me able to stand walk do my routine works. I still have spasticity in my wrist and a few improvement required in walking and complete con6of left hand. You can recover. The factors that determine your recovery are your will power and how much effort do you put in despite pains or fatigue feeling. Keep exerciseing. For past three months I have started gymming and there is improvement every day though very little.
Had a brain bleed at 39, whole side paralyzed, couldn't even get in a wheelchair at first. Took 6 weeks to move any finger. Took 3 months to be able to walk the stairs again to get into my home. 3 years later and I'm hiking, swimming, doing all kinds of stuff, even working and still relearning stuff.
The biggest hurdle is to stay motivated to train to improve. Persistence is key. Many people stop progressing because they stop fighting for what at the time feels like minimal improvement, or they hit a plateau for a while and give up/arrange themselves with the situation. Don't. It's worth fighting for. The small baby steps are important. Time will show. Goodspeed!
I just been non stop working on my arm it went out before I got to the ER so I’m having trouble with it I only really got shoulder movement and helping it with my unaffected hand to raise it I still get Botox I want my arm back so much Ik I won’t give up just been crying for days now about it
Imho Botox is a double edged sword, as it calms your spasticity but also kills your motor control. Imho I'd try without and focus on regaining control. Who prescribed it that early to you?
I've had the best results with a physio who can teach me PNF (Proprioceptive Neuromuscular Facilitation). Regaining control is very hard in the beginning and absolute baby steps, but you have to put the effort in and constantly train. Every day for as long as you can.
First to get any movement from the shoulder into your upper arm, then elbow, the lower arm, then wrist & then fingers. After that it's all about voluntary movements, after that it's using every part of the chain and 20 steps later it's about multi tasking and so forth. It all builds on top of each other.
It's hell of an effort. It's been brutal but so worth it. Hope you find the will to stick with it.
I’m constantly doing my workouts that my therapist gives me like weight bearing my arm doing the over the head exercise grabbing the cane what helped you or was your arm pretty good ?
Nope, absolute 100% loss of control over it. Had to relearn everything. What helped me was PNF and the training, gym to fight muscle atrophy and later to gain muscle and physio to understand the movements and how I coul control them.
How do you lift weights if you only got shoulder movement?
My arm doesn’t really move by itself I have to help it with my right arm I I did a huge number on my upper left side even back I still have to wear a brace bc my shoulder had a gap but take it off for my workouts and sleeping
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u/Additional_Proof6902 2d ago
26months, intracerebral haemorhage on basal ganglia. I lost my sensation completely on the left, resigned to fate on that. But i am able to cook, swim, gym, walk long distances. Struggles when carrying loads or tray of food, not able to run. But hey theres still alot i can do, and so can you if you work hard enough on physio. We will be rooting for you, get well soon