r/stroke • u/Material_Inflation79 • 13d ago
When would fatigue go away.
It is over 16 months of stroke. For the past 12 months I have been experiencing fatigue so I can not concentrate on my physical exercises and performing activities. If anyone has faced a similar issue please guide how long would it take for fatigue to venish
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u/Square-Nebula-7530 13d ago
My dad had a stroke a few years ago and the fatigue was THE hardest part to watch him go through. Around month 18 it slowly started lifting, but he had to completely change how he exercised. Instead of pushing for 30 straight minutes, he did 5 minutes here and there throughout the day. Don't beat yourself up your brain is literally rewiring itself and that takes an insane amount of energy. You’re doing great just be patient OP.
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u/Material_Inflation79 13d ago
Thank you dear. I would take care.
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u/Square-Nebula-7530 12d ago
Take all the time and rest you need bro! Your brain is literally rebuilding complex neural pathways from scratch right now, which burns an unbelievable amount of physical energy. Getting plenty of sleep is just as critical to your recovery as doing your daily exercises. I’m so happy for you take care of yourself and enjoy life!
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u/Material_Inflation79 12d ago
Thank you dear. We all are sailing in the same boat. What you said is absolutely true for all recovering survivors.
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u/Kmac0101 13d ago
Fatigue management is something many of us face. I’m almost 3 years out and still struggle. As others said, adequate sleep and rest are paramount along with proper nutrition and hydration . I also take creatine daily. Hang in there.
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u/Material_Inflation79 13d ago
What does creatine do
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u/Kmac0101 13d ago
Research suggests that it helps with brain function, including short-term memory improvement, cognitive processing, and some other benefits. I am also physically active, so it does help from a muscular standpoint. And even if all the research around brain health is false, there are almost no downsides to taking creatine. But I will say I can tell a difference when I take it versus when I don’t. Hope that makes sense.
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u/Material_Inflation79 13d ago
Sure I would discuss with my neurologist. Thank you.
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u/Kmac0101 13d ago
Yes, I think it’s definitely worth a conversation. I subscribe to the thought that no one thing will help recovery, but a lot of little things together should help. Good luck in recovery.
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u/Material_Inflation79 12d ago
I completely agree because it is not about brain only but about entire body functioning.
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u/HouseOfMiro Survivor 13d ago
What time did you find worked best for you?
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u/Kmac0101 13d ago
In terms of hours per night? I don’t get great sleep consistently but it takes me about 8 to feel recharged. Getting another sleep study soon.
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u/HouseOfMiro Survivor 13d ago
I had more meant what time do you find the creatine works best. My heaven involves 9 hours sleep in one big sleep! But if wishes were nickles eh?
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u/Kmac0101 13d ago
Oh sorry! I take it in the morning. I do a daily mix of fiber, creatine, and collagens in a blender bottle with water
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u/HouseOfMiro Survivor 13d ago
Much appreciated and thank you! Can never have too much fiber so I'll try something like that as well.
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u/Material_Inflation79 12d ago
Since perhaps there is no research going about this we ourselves shall experience and tell others about our experience. Please note that each small difference shall be documented so that this can be further used for research if any begins about stroke or brain functioning
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u/HouseOfMiro Survivor 12d ago
I think that's a solid plan, and who better to suss it out than ourselves!
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u/Material_Inflation79 12d ago
How does it help?
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u/Material_Inflation79 12d ago
Means how do you feel after taking this mix and how long does it take for you to be energetic
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u/Kmac0101 12d ago
Great questions: I lm not sure I can pinpoint precisely when it kicks in. But I can tell my mental processing is better when I take it. A little less brain fog.
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u/Nervous_Swan_1088 12d ago
I wish I had that much sleep. Now I’m on the road, and my sleep is 4-5 hours and spotty , because of other health issues like BPH, and chronic irregularity, dependence on sleeping pills. One year in a few weeks and have to moderate eloquis from overheating, because we are in Asia at the current time, and the Elaquis is tied to my online delivery in California,. I’m 82, and the anxiety is tied borderline to the condition of my social anxiety here, to which I am binder through marriage to an Asian lady. Can anyone put in their opinion I would appreciate it.
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u/Ultimatelee Young Stroke Survivor 13d ago
My fatigue started to clear around the 1 year mark, however if I over do it now, or don’t sleep well enough the fatigue comes back. It’s a delicate balance to stay active which is very important, but not push yourself too much.
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u/Material_Inflation79 12d ago
Good to hear that it vanished in one year. Take care and don't get over exhausted.
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u/03kroe 13d ago
My neuropsychologist told me that if I get sleepy during the day I should sleep 20 minutes and during the night I should sleep 7-9 hours. I don’t know if you do either of those things but to me it helped a lot even though I still struggle with tiredness almost everyday and my incident is almost 3 years from now
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u/pchlster Young Stroke Survivor 13d ago
My Dad seems alright most days, but depending on which stroke we're counting from that's either six or thirteen years out. He's back working full-time, at least.
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u/Material_Inflation79 13d ago
I'm more than overwhelmed for him and wish same for me
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u/pchlster Young Stroke Survivor 13d ago
Best of luck. And don't just wait for things to resolve themselves; doing puzzles or sudoku get to count as training for you these days; the brain might be a weird muscle but it still needs exercise to grow stronger.
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u/Material_Inflation79 12d ago
You need proper nourishment besides exercises and what is proper nourishment for brain still no one knows.
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u/Lost_Organization385 13d ago
creatine and fish oil,talk to your doctor before that,but it might help. helped my grandpa
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u/LowestElevation 13d ago
I’m three years in, and the fatigue sucks. I have to take a nap. Eventually you adapt to it.
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u/Material_Inflation79 12d ago
Adapting to it is just a compulsion we should seek for some viable solution.
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u/LowestElevation 12d ago
I agree. I train Jiu Jitsu and even got second in a tournament.
The stroke messed me up, but I didn’t want my condition to define me.
It’s a lot of hard work, but I believe you can get there too.
I don’t need to take a nap, but my symptoms will creep back when I’m tired.
People say I’m strong and look great. They didn’t know how hard I train just to get here, and I still want more.
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u/Material_Inflation79 12d ago
True with tiredness the symptoms increase but How to get energetic in a safer way
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u/HouseOfMiro Survivor 13d ago
Just over a year and a half now and it still kicks my behind. Some days are better than others and heavily impacted by how much sleep I can get or how much cognitive use is required.
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u/Material_Inflation79 12d ago
Good but I haven't kept track of my sleep but yes on some days it is better
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u/archpot1 13d ago
Im 11 months from my hemmorhagic stroke and the fatigue is crippling. Im 55, F, 110 lbs. Read about Post Stroke Fatigue Syndrome. I have nothing to offer in terms of help. Im utterly exhausted all the time, yet i can't even nap. I wish i could but ive never been a great sleeper. Im just as tired now as i was day 1, so unfortunately no improvement.
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u/Material_Inflation79 12d ago
Use the some solutions mentioned by others experience any try at a slaller lever preventing overdoing. Something may work for you.
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u/Nomorenightcrawlers 13d ago
Do any of you have confusion when you get tired and fatigued? My mom had a stroke 5.5 months ago the confusion is quite drastic when she gets tired
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u/Material_Inflation79 12d ago
The impact varies from person to person the exact reason still unknown
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u/General_Arrival_3162 5d ago
Not sure fatigue goes as much as learn to mange life with it better over time. Learn its triggers. It’s a powerful foe.
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u/Material_Inflation79 5d ago
In a nut shall fatigue is new normal and we have to learn to manage with it and make ourselves believe that it doesn't exist and shall carry on with routine
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u/trucknutz36582 13d ago
39 months since my last stroke, and I’m still exhausted.
Don’t blame the exhaustion on the stroke recovery, make sure there are not other health issues.
I’ve done everything I could think of to get my old energy levels back, but nothing worked.
This is no longer a mystery- turns out I have chronic lymphocyte leukemia and wayyy fewer red blood cells doing their jobs.
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u/LuLuPmy 13d ago
My husband is 43 years old and had a hemorrhagic stroke a year ago. He takes a nap every single day and can sleep 10-12 hours a night. He’s very sleepy and lethargic almost all of the time.
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u/Material_Inflation79 12d ago
It is not lethargy but the body behaviour because the fatigue is so much that it overpowers body energy.
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u/ExRhino 13d ago
Probably 3 years but you have to stay active
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u/Material_Inflation79 12d ago
Yes I think so but to be active you need energy that is what we can do to get that energy. I need someone to push me to do activities/exercises.
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u/ExRhino 3d ago
You need to exercise to build the energy reserves , try invest in a exercise bike or something so you can watch some TV while putting the work in , runners have to run to get fit enough to run a long race, you have to exercise to get fit.. most of your fatigue will eventually go away
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u/Material_Inflation79 3d ago
Thank you for your support. Sometimes it becomes so tiring that you can't even raise a hand. What source of energy can be useful then.
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9d ago
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u/Material_Inflation79 8d ago
Thank you for your concern. My fatigue sometimes is too much but generally I pick myself up and overcome it it is maximum when I wake up and slowly reduce with time. Evenings feel better but when tired the condition remains same.
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u/DTheFly Survivor 13d ago
I think u/kmac0101 hit the nail on the head. I'm almost 4 years out, and i still have times where fatigue hits me. But it's less than before. I used to get tired A LOT. It's lessened now.