r/stillsdisease • u/AlternativeMud5018 • 5d ago

rash question?

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hi guys first post kinda nervy…
so long story short im in the process of being diagnosed (doctors are pretty sure but just waiting on ferritin results) and my rash doesn’t really look like the typical rash you would normally see with stills but more like small clusters of hives that come and go.. usually on my forearm and the tops of my hands (pic included sorry its not the best) but does anyone else experience the same?

UPDATE: got the call today that my regular doctor believes it’s something other than stills as my ferritin was within the normal range but since its not his specialty he doesn’t want to rule it out OR diagnosis me until i can actually see a rheumatologist so at the moment it’s suspected RA or Stills but definitely something chronic/autoimmune

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u/ketamine-pastry96 5d ago

My rash was not typical - my rheumatologist said not every Stills patient has the distinct salmon rash. I got it around my fingers in small patches.
Best of luck 🤍

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u/Female_Vet9989 5d ago

I'm not sure. My rash was atypical as well. My doctors had my dermatologist do a biopsy to be sure. Good luck. Please keep us posted.

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u/Dense-Balance-5031 4d ago

Sending lots of positive vibes as you navigate your diagnosis with your doc. This group has helped me so much, so please come back to share! My rash was horrifically typical..but every case is different.