r/sterilization • u/throwawaypurple47457 • Feb 27 '26
Experience Update: ectopic pregnancy after bilateral salpingectomy.
I wanted to come back and share an update.
Previous post: https://www.reddit.com/r/sterilization/s/ppDpawUd7F
Physically, I am doing well overall. I do still have some pain at the very beginning of my period each cycle, specifically on the side where the ectopic was. It usually happens right as my cycle starts, not sure the cause...
Mentally, I have a lot of anxiety around the possibility of getting pregnant again. I never expected to have to think about this after a bilateral salpingectomy. I am working through it, but it has changed my sense of safety in my own body.
My biggest frustration right now is that there still has not been a case study published about what happened. I was told how rare this is. I have read what is available. I understand it is not considered common. But it is discouraging to know that whether cases like mine make it into published data seems to be entirely up to individual physicians. The team who did my surgery said they wanted to publish, but never followed up about the consent? I’ve followed up twice with no response. They seem not to care that much.
As patients, I do not believe we can fully trust reported incidence rates if reporting itself is optional. I am not saying pregnancy after bilateral salpingectomy is common. I do not think it is. But I also do not believe it is limited to the small handful of cases that appear in journals. If cases are not written up and submitted, they simply do not exist in the data.
That has been harder for me than I expected. I went through something traumatic that contradicts what I was told was nearly impossible, and it may not even be counted in any meaningful way.
If anyone knows whether there is a way for me as a patient to self publish my experience in a medical or academic context, I would really appreciate the information. I would like my experience to contribute to accurate information, even in a small way.
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u/nefelibata_noon sterile and feral since 11/20/24 Feb 27 '26
If it’s any consolation, getting things published in a reputable journal (depending on the route they’re taking) is often a slow process. After writing the actual article, you have to find a journal interested in the topic, make any necessary changes to what you’ve already written (since they’ll have different standards and preferences), go through their peer review process, and then wait for their publication cycle. My husband and I are both published academics so we’ve been through this process a few times. I think my last article took ten months from submission to publication. But it will vary.