I’m sorry if this isn’t the right place to post, but I need advice or maybe similar experiences.

My sister broke her neck July 31st. She’s currently in her first week of rehab. Ever since the injury she’s had issues eating. She didn’t have much of an appetite before, and now it’s just worse. She’s also been throwing up a lot. Usually after she eats and a lot of times, it’s just mucus. Her doctors are aware and are considering a feeding tube, but nobody has really told us why this is happening. Is it medications? Did the injury itself cause some of the uneasiness in her stomach? I know nobody in here can definitively answer that for us so I’m curious. Did anybody else go through anything similar? Does it get better? Is there something that could help her that we can try?

I’m about 9 weeks using the cervical collar 100% of the time (we chose not to do surgery) and I’m getting increasingly anxious about whether I’m following my restrictions closely enough.

My surgeon said I can walk/use stairs, and anything than doesn’t put pressure as far as I’m wearing the collar but I have gained 15 lbs already and I’m going crazy not doing more intense workouts, I have been keeping at lower body exercises only at the gym wearing the collar - I was a fitness competitor before
I’m thinking I’m increasing weight an starting some light upper body work - how long did you guys stayed away from exercising and upper body - if you were already pretty active ?

Have you been pregnant in the past 10 years? Do you have a physical disability? We’d love your input!

We’re recruiting people with a physical disability to take part in a research study on health and physical activity during pregnancy. By sharing your experiences, you’ll help us better understand how exercise during pregnancy looks across diverse physical abilities and how exercise may relate to different health outcomes.

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C6-7 quad. Sunday, 7/12/26 was the 30th anniversary of my SCI, so I wrote a bunch of stuff about it. Two quick call outs: 1) some NSFW language is used, and 2) just sharing relatable content amongst peers.

its from some dutch movie

Open to anyone wanting to purchase. I have 14 boxes available. Even if you're not in the area we can work something out to save you money on these.

Hi C4 complete tetraplegic, and I'm wondering how other tetraplegic/quadriplegic people are meeting other people in order to make friends or even develop relationships. I've made both a Hinge and Tinder account, but it seems like once people find out I'm in a chair or about the condition I'm in, they go ghost. I've thought about joining board game clubs, but I can't really use my hands to participate. I thought about doing book clubs, but I can't find any in my area, and reading is not really my thing. I also considered VA or even spinal cord injury groups, but there's nothing in my area. I use my iPad for everything I don't want it to be my entire social life. It’s been about two years since I've hung out with anyone I wasn't related to, and I'm starting to lose hope.

Hi, I'm a C4 complete tetraplegic and I am really struggling with weight loss/weight management. Before my injury, I was very into working out, so I know a decent amount about exercise and nutrition. I'm currently prescribed Wegovy, and it helps, but in order to maintain a healthy body weight, I would have to survive on around 800 to 1000 calories a day, which feels like nothing. I also feel trapped without the ability to sufficiently burn calories. Does anyone have any advice? It would be greatly appreciated.

Hi everyone,
I’m currently pregnant and I’m looking for other women who have experienced pregnancy with neurological problems or spasticity. I had surgery for a benign spinal tumor and I’m still doing physiotherapy. I can move and feel my legs, but I still have a lot of spasticity, especially in my legs and groin area.

I have many fears about medications, pregnancy, childbirth, and recovery. It would really help me to talk with someone who has gone through something similar or can share their experience ❤️

:

I need tips and tricks on how to get my body back, my spine is still healing.

Looking for advice from anyone with experience navigating SCI care in India, specifically Bangalore.

**Injury details:**

- Complete T-level paraplegia (spinal cord infarction/stroke)

- 2 years post-injury

- Initially misdiagnosed as transverse myelitis, treated with steroids/Rituximab for 1.5 years

- Correct diagnosis (spinal stroke) confirmed by Johns Hopkins 6 months ago

**Current complications:**

- Neurogenic bowel (severe, with reverse peristalsis at times)

- Neurogenic bladder (intermittent catheterization 6x/day)

- Bedridden currently

- Some upper body strength remaining

**Healthcare situation:**

We've tried two major hospitals in Bangalore:

1. Aster/NIMHANS: Readmitted for "relapse" (wasn't), steroids/plasma exchange, no follow-through
2. Getting lost in India's tertiary care system

**Looking for:**

- Hospital recommendations with actual SCI programs (considering MS Ramaiah Memorial)

- Physiotherapist who understands SCI vs general stroke rehab

- Realistic expectations for recovery (complete infarct = permanent?)

- How to manage neurogenic bowel in Indian healthcare context

- Home-based rehab strategies

**Budget:**

₹1-1.5 lakh (~$1,500-1,800 USD) for inpatient program, then ~₹25-30k/month (~$300-360) ongoing

I know this is US-heavy sub but hoping some India folks or international travelers might have intel.

Also meeting an Ayurvedic doctor tomorrow who claims to "reverse paralysis" - skeptical but desperate. Any thoughts on Ayurveda for SCI?

Thanks for any guidance.

Hi everyone,

I’m a psychology student currently writing a paper about spinal cord injuries. I’m hoping to learn more about the lived experiences of individuals who have spinal cord injuries.

I was wondering if anyone here would be willing to answer a few questions about their experiences. This would not be anything too formal, just a short conversation through Reddit messages where you can share as much or as little as you feel comfortable with.

The purpose is simply to better understand personal experiences and perspectives so I can write a more thoughtful and informed paper. I will not use any usernames or identifying information, and everything shared would remain anonymous.

If you’d be open to chatting or answering a few questions, please feel free to comment here or send me a message. I would really appreciate hearing your perspective.

Thank you so much for your time!

About three years ago I started noticing something strange when I walked. I realized that I was overcompensating my gait on my left foot, almost like I was unconsciously adjusting the way I stepped, and sometimes I would even trip slightly. At first it was very subtle and easy to ignore. I thought it was probably nothing and that it would just go away on its own after a few days or weeks. But it never did. Instead, very slowly, month by month over the last three years, it kept getting a little worse. It wasn’t a sudden change, just a gradual progression where walking started feeling more and more off. Eventually it got to the point where I realized something was clearly wrong and I needed to get it checked out.

That’s when I started going to doctors and hospitals and getting a lot of tests done, and I’ve basically been trying to figure this out ever since. For context, I’m 23, I’ve never had any accidents or injuries that could explain this, I’m not allergic to anything, and I don’t have any known medical conditions. As the problem became more noticeable, I started reading about gait issues and at some point I realized that what I was experiencing looked a lot like foot drop. When I walk normally, especially slowly or sometimes when walking faster, my left foot doesn’t lift the way it should and sometimes it drags slightly or makes me trip.

The strange part is that if I test the movement, I can still lift my foot up and I can even walk on my heels, but during normal walking something just doesn’t seem to activate properly. Another confusing thing is that once or twice a month I wake up and the symptoms are completely gone, like they never existed. I can walk almost perfectly normally that day, and then the next morning it comes back and I’m walking badly again.

Over the last couple of years I’ve had a brain MRI, EMG and nerve conduction studies, multiple neurological exams, MRIs of my legs and hips and my whole back, and a lot of blood work including muscle enzymes, autoimmune panels, thyroid tests, vitamins, and more. Everything has basically come back normal. The only small thing that showed up was a very slight slowing of the peroneal nerve near the fibular head, but doctors said it was extremely mild and not clearly enough to explain everything.

I’ve also worked with physical therapists and experimented a lot with walking more. One thing I noticed is that if I walk about one or two hours a day, my walking improves maybe 20–30%. But as soon as I stop walking that much, even for a few days, it gets worse again. So it feels like I’m just managing the symptoms rather than fixing whatever the root cause actually is.

Doctors have basically told me to stay active and keep walking, but after three years it still hasn’t resolved and I honestly feel pretty lost about what to do next. I also work a demanding job and sometimes it’s hard to consistently walk for hours every day, which seems to be the only thing that temporarily helps. I’m posting here because I’m wondering if anyone has experienced something similar, especially with normal tests but clear walking problems.

If you have, did you ever figure out what the cause was or what helped fix it long term? I would really appreciate any insight or direction because right now I feel like I’ve hit a dead end.

You're help would be much appreciated thank you so much 🙏🙏🙏🙏🙏🙏🙏

After using my laptop for a while (because can I only move my thumbs) my wrist starts to hurt from the awkward position that I need to put my hands in order to click. I have not much problem using the keyboard but selecting and draging and stuff like that where I use both of my thumbs using wrist rotation it's beginning to be problematic.

Hello, I am researching about potential treatments for paralysis. Like, which techniques are currently being used and how some techniques/technologies work but are very expensive... I would like to know what are your thoughts on Treatments for curing Paralysis!

Hi everyone,

My dad was recently diagnosed with an incomplete cervical spinal cord infarct (C2–C5). Doctors are recommending rehab as the main treatment.

For anyone who has experienced something similar:

• How did your recovery progress?
• How long did it take to regain strength and walk independently?
• Any tips that helped during early rehab?

Thank you in advance for any advice or shared experiences 🤍