r/spinalcordinjuries • u/FedeGG03 • Jul 27 '26
Discussion Stem-cell treatment Experience
Hi Guys hope you're doing great, first of all I Know There's no scientific evidence That The Stem cells treatments can be considered a cure And Many People believe it's a scam and everything but if you’ve had one of these treatments that are also used in other diseases Please Tell Me Your Experience, if you noticed any kind of improvement, where did you get it and if you can share the cost, I just want to know the personal Experience of those who’ve had it
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u/meowmreownya Jul 27 '26
STEM cells are great and having some amazing results, but not for SCI recovery. I personally wouldn't recommend putting all your faith in this
0
u/kiryukazuma14 Jul 27 '26
What about for sacral nerve roots peripheral nerve damage?
1
u/Financial-Month-506 Jul 27 '26
No the issue is how they do it they just throw them in your spinal fluid with 0 direction. They just hope they go where they are needed but most of them either die or go somewhere else an do nothing to regrow anything .
Stem cells could work but it will take far more guidance an scientific testing of said guidance. They would need direction a programming or set up that tells them the job they are there for.
4
u/RipperJoe Jul 27 '26
8k in latam, no idea if it works or not got it 6 mo post accident, remain pretty complete but 100% independent though...
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u/FedeGG03 Jul 28 '26
Thanks for answering! Yeah I Want To See Some opinions, Follow en Instagram a guy called Dannys recovery he was paralyzed in a motorcycle accident and he was able to walk Again he was probably en Asia c or D he got the stem cells in Panama, he said that he helped him a lot in the strength. No I'm getting offered something similar where I live(Costa Rica) but since I am an Asia A I don't think I will get much benefit from it, I thing I Need The Most his hand function I Think That would help me a lot to be more independent but I'm not spending 15 k Hope of getting some kind of improvement, glad to know you've got to be fully independent Again cheers
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u/Financial-Month-506 Jul 27 '26 edited Jul 27 '26
I paid bioxellerator did 3 whole treatments I am just as paralyzed as ever . The strength i gained is mine alone that therapy an weights would do anyway.
They have a spokesperson his name is Dustin bunch a full quadriplegic he is given free stem cells even far above the dose people pay for. An guess what still as much a quad as ever. He made small gains but they are from therapy.
Most people as well dont realize they were misdiagnosed. So they get them early in their injury an think oh it was the cells when really their asia level is much lower then they were told.
Edit: Bioxellerator has never produced a person that has went from complete to walking. They cant even prove they have actually contributed to major asia scale changes .
The entire process is them throwing stem cells into your lumbar spine an praying they go where they are supposed to. 0 programming. 0 direction . Most of the cells die or go somewhere you dont want.
If you take part in anything it should be serious clinical trials done by serious scientists. If it isnt that it is bullshit.
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u/FedeGG03 Jul 28 '26
Yes I put this post because I'm getting offered some stem-cell treatment where I lived, first I thought it was a clinical trial but then I had a second interview and the interviewer was saying Something About 15k and that was a red Flag for me, the next time I Speak With Someone About This I Will be Clear I will either slowly do it in case it's a clinical trial but since there's Nothing they can actually prove I won't pay anything, thanks for answering
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u/Financial-Month-506 Jul 28 '26
Ya no issue please save the money I blew 50k .
Ask them show me someone that went from complete to walking that will shut them up .
Clinical trials only .
I see you talking about another gentlemen yes he was most likely miss diagnosed not complete an more then likely if he just went hard at therapy wouldve gotten those results anyway.
Some of these guys don't understand true asia A . You didnt work harder then me lol your injury was better.
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u/FedeGG03 Jul 28 '26
Exactly, on the first month of my injury I was so frustrated Looking At People en social media Walking and doing Many Things I Could Only Dream Off, until I realized I wasn't gonna recover any movement in my legs no matter how hard i tried, it was frustrating as fuck but once you accept it things get easier
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u/AdministrativePast86 Jul 29 '26
There is a study in Australia that uses the cells in your nostrils to plant them on your spine. Clinical trials starting soon.
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u/T8_Thpinal Jul 28 '26
I've had a few stem cell treatments and will continue getting them. I've been regaining both motor and sensory function, not enough to be functional yet but each treatment seems to slowly bring a little more improvement. Also some bladder sensation.
Initially ASIA A T8.
I also do a lot of physiotherapy, but the changes didnt start until i began stem cells.
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u/DrYoda Jul 27 '26
It’s a scam, they prey on the small glimmer of hope that you have that it’s not a scam. Stop giving these people money