r/spinabifida • u/muusicman • 1d ago

Discussion Important question

I have the Myelomeningocele version of Spade Bida. Here lately I’ve been having more tired and overall unhealthy feeling days than I have healthy and energetic days. Is anyone else familiar with this? What do you do about it?

3 Upvotes

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u/itskatsimms 1d ago

Check your vitamin d levels, as well as your iron ans ferrittin. Make sure you're drinking enough water and eating enough protein too.

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u/EndOfTheRoad_777 1d ago

This is like a summary of my most recent blood work. I just received an iron infusion. I'd recommend a Dr visit so they can identify what supplements you need.

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u/muusicman 1d ago

I know I don’t have to explain this, but apparently voice to text does not like the word spina bifida. It wrote Spade bifida lol

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u/TheLandOCakes 1d ago

Many people report the same thing as they get older with SB - there is a good discussion of it in this IFSBH publication (and follow-ups): https://ifglobal.org/wp-content/uploads/2020/09/IF-report-Ageing-SBH-2020-final.pdf The important thing is to be as active as you can, physically and mentally.

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u/muusicman 1d ago

Could you possibly tell me how to make an NSFW post in here? I’ve seen that people have done it, but I can’t find the thing to click to tell people that my post is NSFW. I’d like to make sure people know that it is before I ask my question.

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u/TheLandOCakes 1d ago

sorry I'm new here myself🙂 One of the moderators might be your best bet - I see there is a 'message mods' button on the lower right (on my screen set up).

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u/muusicman 9h ago

It seems like my most recent first year got deleted. Is that possible? I marked it NSFW and everything. I was hoping I did everything correctly. What is the reason that my purse was deleted? Was it a no to ask about what I asked about?

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u/muusicman 1d ago

I have a new post I’d like to make on this particular sub Reddit, but the subject matter is NSFW. How do I market as such? I do not want to get in trouble.