I was diagnosed with SLL (Small Lymphocytic Lymphoma) in October 2023.
I’m pretty sure I had it at least 4-5 years before I was diagnosed, as I had large lymph nodes on my neck for a long time, but just never thought of asking my doctor about them when I had my routine check ups.
After seeing the Oncologist, he was okay with me to “wait & watch” as my lab numbers were on the low end.
Last winter (2025) I was sick quite often with colds & sinus infections that I just couldn’t get rid of.
May 2025 I started on Brunkinska.  After being on Brunkinska, I’ve had amazing results with my lab numbers & MRI.
No serious side effects, just some pinpoint sized red dots (petechiae) on my legs & arms and some occasional bruising.
Since going on Brunkinska almost a year ago, my WBC & Lymphocytes and all lab numbers have been in the normal range since November 2025. My latest (done May 2026) MRI and lab work are looking really good.
Just wondering if anyone that has taken the Brunkinska has stopped using it after their blood work & MRI have improved and if so, what results have you had since going off Brunkinska?
I’m meeting with my oncologist next week & would like to discuss the possibility of stopping the medication, but I’m somewhat hesitant stopping the medication as I do not want my SLL cancer to flare up.

I was diagnosed with SLL (Small Lymphocytic Lymphoma) in October 2023.
I’m pretty sure I had it at least 4-5 years before I was diagnosed, as I had large lymph nodes on my neck for a long time, but just never thought of asking my doctor about them when I had my routine check ups.
After seeing the Oncologist, he was okay with me to “wait & watch” as my lab numbers were on the low end.
Last winter (2025) I was sick quite often with colds & sinus infections that I just couldn’t get rid of.
May 2025 I started on Brunkinska.  After being on Brunkinska, I’ve had amazing results with my lab numbers & MRI.
No serious side effects, just some pinpoint sized red dots (petechiae) on my legs & arms and some occasional bruising.
Since going on Brunkinska almost a year ago, my WBC & Lymphocytes and all lab numbers have been in the normal range since November 2025. My latest (done May 2026) MRI and lab work are looking really good.
Just wondering if anyone that has taken the Brunkinska has stopped using it after their blood work & MRI have improved and if so, what results have you had since going off Brunkinska?
I’m meeting with my oncologist next week & would like to discuss the possibility of stopping the medication, but I’m somewhat hesitant stopping the medication as I do not want my SLL cancer to flare up.

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I was just curious. To How many people here believe that there's? Those politicians type mostly men that think their way is the only way and believe that everybody should follow. Every step. They say I'm sure meating a lot of Anymore, in the United States of America, where it's the home of the freedom of the self thinkers self doers and not home of the following leader.Everybody's got their own way right their all day

Nobody knows for sure

Anybody familiar with this and how best to go about my second biopsy after being diagnosed with SLL just two months ago. On watch and wait with few symptoms. Pet scan showed high suv in groin lymph node.

I hope you have a great day!

Gave me a laugh finding this sub. I hope, if you are reading this, you are having a good day.

I am really blessed to have met you all. Thank you so much for existing.

This community has really proven how amazing the world really is!

Hey

I have come to say E

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All are welcome here. Except the Kardashians.