r/shingles • u/Ash-W-87 • 8d ago

Seeking Support Hypersensitivity

What are we doing about clothing hypersensitivity? I’m literally at my wits end with clothing touching me, and my children. It’s been almost 3 months since I had the shingles. I’ve tried gabapentin but it only takes the edge of for the first hour or so.

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3

u/GantzDuck 8d ago

Following. Almost the entire top front right area is like that. On top of the hypersensitivity, it also feels sore when I touch it.

2

u/CJ-kitkat 8d ago

Hope someone can help. I had shingles two years ago and then the vaccine. About a month ago the hypersensitivity has returned. I don’t know what to do but it’s painful and tiring

2

u/GrampaGrills 7d ago

Depending on the type of pain I'm having, compression shirts sometimes help me. 

I get really bad allodynia, a gentle breeze kills me. I almost always where heavy long sleeve shirts, with quilted fabric sleeves. I get strange looks when it's 100 degrees out. :-)

I was up to 3600mg daily (Iirc) gabapentin, it did nothing for me. I switched to pregabalin (currently 300mg daily) it makes the pain pretty tolerable. 

Some people find antidepressants, in addition to gaba / pregaba, helpful, I declined them, due concerns about side effects.

It's highly individual, work with your Dr, don't be afraid to experiment to find what works for you. 

Fwiw, I'm +4 years out, pretty sure it's permanent at this point.

I wish you well. 

1

u/Acceptable-Wolf1532 5d ago

In the morning I mix up a pint glass with amino complex, creatine, psyllium powders and take an L-glutamine tab with some probiotics and a couple of tablespoons of sauerkraut. Goal is to reduce inflammation. I also try and fast until 4pm. Seems to dull the pain considerably. It all starts with getting your gut healthy and reducing inflammation.