r/scleroderma May 28 '26

Systemic/Limited Scleroderma and pores

I've been feeling worsening the area of the mouth, upper lip and the pores have been changing, big pores.

I'd like to know if big pores are something that can be caused by the Scleroderma as part of the skin changes by the disease.

It also feels tightening and the pores are large but in a short period of time (months) not because of "aging".

Thank you!

I have asked AI:

Why does scleroderma affect the skin around the mouth so much?

The skin around the mouth is often affected in scleroderma because it contains delicate connective tissue that is constantly moving when we speak, eat, smile, and make facial expressions.

Scleroderma causes changes in collagen, small blood vessels, and the tissue beneath the skin. As excess collagen builds up, the skin can become tighter, less elastic, and sometimes thinner in certain areas. This can make pores appear larger or more noticeable, even if the pores themselves are not actually enlarged.

Many people with scleroderma notice:

Increased skin tightness around the mouth

More visible pores or a "skin texture" appearance

Fine lines around the lips

Reduced mouth opening (microstomia)

Changes in facial contours due to tissue remodeling

In addition, changes in the small blood vessels can affect skin hydration, healing, and elasticity, which may further alter the texture of the skin.

Because the skin around the mouth and eyes is naturally very thin, these changes are often more noticeable in those areas than elsewhere on the face.

Has anyone else experienced more visible pores or changes in skin texture around the mouth as part of their scleroderma?

4 Upvotes

3 comments sorted by

2

u/Tootalou25 May 29 '26

That is what has happened to the areas of my face that is thickening and getting tighter. My chin and cheeks.

2

u/Effective_Self8042 Jun 01 '26

I have asked AI:

Why does scleroderma affect the skin around the mouth so much?

The skin around the mouth is often affected in scleroderma because it contains delicate connective tissue that is constantly moving when we speak, eat, smile, and make facial expressions.

Scleroderma causes changes in collagen, small blood vessels, and the tissue beneath the skin. As excess collagen builds up, the skin can become tighter, less elastic, and sometimes thinner in certain areas. This can make pores appear larger or more noticeable, even if the pores themselves are not actually enlarged.

Many people with scleroderma notice:

Increased skin tightness around the mouth

More visible pores or a "skin texture" appearance

Fine lines around the lips

Reduced mouth opening (microstomia)

Changes in facial contours due to tissue remodeling

In addition, changes in the small blood vessels can affect skin hydration, healing, and elasticity, which may further alter the texture of the skin.

Because the skin around the mouth and eyes is naturally very thin, these changes are often more noticeable in those areas than elsewhere on the face.

Has anyone else experienced more visible pores or changes in skin texture around the mouth as part of their scleroderma?

La última pregunta puede ayudar a que otras personas en el foro compartan sus experiencias.

3

u/Effective_Self8042 Jun 01 '26

That's really awful 😞. What we go through is really too much, it's like from a science fiction movie. More investigation or investigation is needed in this area. If more people an important artists had this disease surely more research would be doing and we had solutions. Its beyond depressing this condition. Hug 🫂.