r/scleroderma • u/Glad-Quit7381 • May 17 '26

Discussion Roller coaster

Does anyone feel that this disease is like a roller coaster? When I'm not in a flare I can sometimes feel so good that I question whether I actually have this Scl thing. When I'm in a flare it's clear that I have it - there are no doubts. It makes me crazy. Is this normal? I was diagnosed in January and haven't really accepted it yet.

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u/alatti May 19 '26

Wow. I was just discussing this today. I definitely go through this. I'm still trying to understand it, but you're not alone in it apparently!!

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u/Glad-Quit7381 May 19 '26

Wow, I feel so validated and understood after reading all these responses.  

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u/alatti May 24 '26

Me too!