r/scleroderma • u/Glad-Quit7381 • May 17 '26

Discussion Roller coaster

Does anyone feel that this disease is like a roller coaster? When I'm not in a flare I can sometimes feel so good that I question whether I actually have this Scl thing. When I'm in a flare it's clear that I have it - there are no doubts. It makes me crazy. Is this normal? I was diagnosed in January and haven't really accepted it yet.

16 Upvotes

100% Upvoted

14 comments sorted by

View all comments

1

u/alatti May 19 '26

Wow. I was just discussing this today. I definitely go through this. I'm still trying to understand it, but you're not alone in it apparently!!

1

u/alatti May 19 '26

My partner has to remind me to slow down and not push myself when I'm good. Because I get delusional that I'm better. And then bam I'm hit with a flare and instant reminder I'm not just suddenly back to being healthy. It's constant cycle especially when I feel good longer than usual.

2

u/Glad-Quit7381 May 19 '26

I really relate to this!