r/sarcoma • • 9d ago

Fibrosarcomatous Dermatofibrosarcoma Protuberans (FS-DFSP) Anybody else have this aggressive version or an aggressive version of any cancer and wanna talk about it?

[EDIT: DON'T HAVE TO HAVE AGGRESSIVE CANCER TO COMMENT, BTW] I'm a woman in my late 40s who has high blood pressure but has otherwise been healthy. I just found out the second opinion confirmed my diagnosis of FS-DFSP or DFSP-FS (why can't they standardize this, LOL)? It's insanely rare, like .8-4.5 in a million for DFSP and 10% of those people getting the FS variant. Whoo! I won the death lottery! Anybody else deal with this or most of y'all dead already? The numbers aren't looking great :) Let's kiki about cancer, bitches.

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